Category Archives: Batten Disease Treatment

Beyond Batten Disease Foundation Expands 2nd Annual “Run to the Sun” Overnight Relay to Accommodate More Runners

Beyond Batten Disease Foundation today announced expansion of its Run to the Sun long-distance overnight relay. As many as 350 runners will begin the relay at Enchanted Rock on the afternoon of Saturday, April 28, and finish on Sunday, April 29 at the Austin Museum of Art’s Laguna Gloria for a breakfast celebration. The relay run will help raise awareness of Batten disease and funding for the … Continue reading

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Doug Casey: "It's a Dead-Man-Walking Economy"

In an interview with Louis James, the inimitable Doug Casey throws cold water on those celebrating the economic recovery. [Skype rings: It's Doug Casey, calling from Cafayate, Argentina. He sounds tired, but pleased with himself.] Continue reading

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Upper St. Clair: Quality of life at heart of family's efforts

An Upper St. Clair family is being aided in their fight against Batten Disease, a fatal neurological disorder that both of their sons have, by the support and caring of members of the community, this time in the form of “Shooting for the Stars” — a basketball fundraiser. Continue reading

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Men Fighting Back Against Cancer Will Walk 100km

This Saturday Dennis Papa and Stephen Binz will be setting off to walk 100ks each at the Cancer Society, Relay For Life event held at Kumeu Showgrounds. Continue reading

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Sponsors, entertainment announced for Moms Club egg hunt

The fourth annual Moms Club of Bedford Easter Egg Hunt is scheduled for Saturday, March 31 from 9-11 a.m. at the NH Sportsplex in Bedford. Continue reading

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International experts clarify hormonal changes of menopause

A panel of US and international experts met in September 2011, in Washington, DC, to review the latest scientific data on the hormonal changes that mark reproductive aging in women and to reach consensus on defining the reproductive stages in a woman's life from pre-menopause to the late postmenopausal period. STRAW+10 represents an update to the landmark STRAW (Stages of Reproductive Aging … Continue reading

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Students develop a novel way to teach interdisciplinary care

A unique board game developed by a group of medical students at Western University will help bridge gaps between various health disciplines to better educate students about their roles in interdisciplinary health teams. Continue reading

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Combination therapy may improve life span and motor function of infants with Batten disease

Infants with Batten disease, a rare but fatal neurological disorder, appear healthy at birth. But within a few short years, the illness takes a heavy toll, leaving children blind, speechless and paralyzed. Continue reading

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Agreement on short-term SGR 'patch' fails to ensure access to care or advance needed reforms

Our organizations, representing nearly 400,000 physicians and medical student members, are deeply disappointed by the agreement in Congress to enact another short-term “patch” that neither solves, nor moves us closer to solving, the Medicare physician payment crisis. We are especially frustrated because Congress has had a short-lived window of opportunity to eliminate the Medicare Sustainable … Continue reading

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Food scientists fortify goat cheese with fish oil to deliver healthy omega-3 fatty acids

Fish oil is an underused ingredient in the food industry because of its association with a strong odor and aftertaste. A new study in the February issue of the Journal of Food Science, published by the Institute of Food Technologists, shows that fish oil can be added to goat cheese to deliver high levels of heart-healthy omega-3 fatty acids without compromising taste or shelf-life. Continue reading

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