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Category Archives: Cerebral Palsy Treatment

Acorda Therapeutics Provides Corporate Update at 31st Annual J.P. Morgan Healthcare Conference

Posted: Published on January 7th, 2013

ARDSLEY, N.Y.--(BUSINESS WIRE)-- Acorda Therapeutics, Inc. (Nasdaq: ACOR) today announced that AMPYRA (dalfampridine) Extended Release Tablets, 10 mg unaudited net sales for the fourth quarter of 2012 were $73 million and unaudited AMPYRA 2012 full-year net sales were $266 million. These results are subject to completion of the Companys year-end audit. The Company provided 2013 guidance for AMPYRA net sales revenue of $285-$315 million. Guidance for Zanaflex (tizanidine hydrochloride) and ex-U.S. FAMPYRA revenue is $25 million, which includes sales of branded Zanaflex products, royalties from ex-U.S. FAMPYRA and authorized generic tizanidine hydrochloride capsules sales, and $9.1 million in amortized licensing revenue from the $110 million payment the Company received from Biogen Idec in 2009 for FAMPYRA ex-U.S. development and commercialization rights. Guidance for 2013 sales, general and administrative (SG&A) expense is $170-$180 million and 2013 research and development (R&D) expense is $60-$70 million. The increase in SG&A and R&D expenses in 2013 over 2012 is primarily related to research and commercialization expenses for the recently acquired product Diazepam Nasal Spray. Based on this guidance, the Company expects to be cash flow positive in 2013. President and CEO Ron Cohen, M.D. will provide a corporate overview, including the Companys recent acquisition … Continue reading

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Small step is giant leap forward for Rochdale cerebral palsy boy Adam Kutereba

Posted: Published on January 7th, 2013

A little boys new year wish came true when he managed to stand unaided for five minutes for the first time in his life. Brave Adam Kutereba has had a whirlwind 12 months in which he captured the hearts of thousands of people who raised 86,000 for surgery to change his life forever. The 10-year-old was born with tetraplegic cerebral palsy and has spent much of his life in a wheelchair. But an operation in the USA known as selective dorsal rhizotomy has given him renewed hope. Specialists at St Louis childrens hospital in Missouri lengthened his hamstrings, heel and knee cords to help him walk. Adam has been improving bit by bit since the treatment in August. He can now walk with a frame and has managed 21 minutes on a treadmill without a break. And on Christmas Day he stunned his family by standing up for five minutes without any aid. "Things have been amazing since the operation," said Adams mum Rachel, 34. "He is getting better all the time. It was a very special Christmas for our family." See the rest here: Small step is giant leap forward for Rochdale cerebral palsy boy Adam Kutereba … Continue reading

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Cerebral palsy stalks parents

Posted: Published on January 7th, 2013

Balurghat, Jan. 6: Their son died when he was 18. Now Ranjit Ghosh and his wife Jharna are spending sleepless nights afraid that they are going to lose their 11-year-old daughter Arpita soon. Both children began to suffer from cerebral palsy from early childhood. Ranjit, a resident of Andirpara, who sells sweets he makes to various shops, could not afford treatment. Neither Balurghat, nor any other place in South Dinajpur, has any help to offer to those suffering from cerebral palsy. The patients need rehabilitation at specialised centres, absent in South Dinajpur. The nearest facilities are in Siliguri. "Arpita was normal for some time after birth. But eight months onwards we noticed that she was not developing like other kids. We met local child specialists, who said that she would be normal after some time. But the girl did not grow. Later, we came to know that it was cerebral palsy," says Ranjit. "My second son Ripan died from the same disease. He died two years ago. He was 18. We exhausted all our in his treatment. Now we don't have any money. I don't know what I can do for Arpita. She is going to die," Ranjit said. Their … Continue reading

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Family in lurch without cerebral palsy treatment

Posted: Published on January 7th, 2013

Their son died when he was 18. Now Ranjit Ghosh and his wife Jharna are spending sleepless nights afraid that they are going to lose their 11-year-old daughter Arpita soon. Both children began to suffer from cerebral palsy from early childhood. Ranjit, a resident of Andirpara, who sells sweets he makes to various shops, could not afford treatment. Neither Balurghat, nor any other place in South Dinajpur, has any help to offer to those suffering from cerebral palsy. The patients need rehabilitation at specialised centres, absent in South Dinajpur. The nearest facilities are in Siliguri. "Arpita was normal for some time after birth. But eight months onwards we noticed that she was not developing like other kids. We met local child specialists, who said that she would be normal after some time. But the girl did not grow. Later, we came to know that it was cerebral palsy," says Ranjit. "My second son Ripan died from the same disease. He died two years ago. He was 18. We exhausted all our in his treatment. Now we don't have any money. I don't know what I can do for Arpita. She is going to die," Ranjit said. Their elder son is … Continue reading

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Newport man with cerebral palsy turns 80

Posted: Published on January 2nd, 2013

Henry Bartlett, 80, speaks about how he deals with cerebral palsy. A Newport man is welcoming the new year after celebrating his 80th birthday on Dec. 21. It is another milestone for Henry Bartlett who may be the oldest person alive with his condition. Bartlett suffers from cerebral palsy. He said because of all the therapy and treatment he received as a child, he is able to live an independent life. "Because I looked and walked and spoke like I do, I had a hard time getting a job," Bartlett said. Despite the odds, he worked as a bookkeeper in Miami before retiring in Newport. He was active with the Boy Scouts of America, Kiwanis Club and served on several boards. "What really keeps me going is God... and because I love people. I help them all my life," Bartlett said. Bartlett lives alone in his own home but has a nurse that comes by three times a week. Go here to see the original: Newport man with cerebral palsy turns 80 … Continue reading

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Lookback at 2012 – £20,000 raised for Hope For Georgia

Posted: Published on January 1st, 2013

Buy photos Natalie Naughton with her daughter Georgia. Picture by Marcus Mingins 3712010MMR ONE OF the most incredible Bromsgrove stories of 2012 has been the Hope For Georgia campaign, which saw 20,000 raised in just 12 weeks for town youngster Georgia Almquest, who really captured residents' and readers' hearts. Georgia has cerebral palsy and the spastisity in all four of her limbs, caused by the condition, means the two-year-old cannot hold her head up, sit or crawl. Doctors said specialist stem-cell treatment, which is available in America, could improve her quality of life and provided her with the only chance she had of being able to walk. The Hope For Georgia campaign was launched in a bid to raise the 20,000 to send her for the special treatment. We at The Standard saw posts about it on Facebook and contacted Georgia's mum Natalie to ask if we could help publicise the campaign and get the cash flooding in. That was back in September and, thanks to residents, local businesses and other organisations holding a host of fund-raising events and donating to the cause, the funds were raised in just three months. Among the events organised during that time were a … Continue reading

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U.S. children's hospitals treating more complex, expensive conditions

Posted: Published on December 30th, 2012

By Alan Mozes HealthDay Reporter THURSDAY, Dec. 27 (HealthDay News) -- An in-depth profile of many U.S. children's hospitals suggests that children with complex chronic diseases such as cerebral palsy are taking up an increasingly larger share of hospital resources. The finding raises concerns about how well freestanding pediatric hospitals can handle a rapidly growing group of patients that are, by definition, difficult and expensive to care for. "Children with medical complexity are often relying on a myriad of services to get their health care needs met," said study lead author Dr. Jay Berry, an assistant professor of pediatrics with Boston Children's Hospital and Harvard Medical School in Boston. "These services include primary and specialty care, home nursing and case management." Most children seen in hospitals are healthy overall, but require treatment for an acute sickness, such as pneumonia, the authors stressed. But a minority of children suffer from lifelong chronic sickness, such as those born with heart disease; neurological diseases such as cerebral palsy, which impairs muscle tone and movement; or Down syndrome, a chromosomal disorder that affects the nervous system and may include heart, hearing and skeletal problems. It's not unusual for children with complex conditions to see … Continue reading

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the lennon fund

Posted: Published on December 30th, 2012

guests against aberdeen Lennon Heyder is a three year old boy who lives with Spastic Quadriplegia Cerebral Palsy. Spastic quadriplegia is the most severe form of cerebral palsy, in which all four limbs and the trunk are affected. Born fourteen weeks premature, one of twins, Lennon spent his first thirteen weeks in hospital, and suffered from chronic lung disease, which threatened his life. An undiagnosed hernia, followed by a major operation followed, before Lennon was finally allowed home to mum Lisa, dad Liam and twin sister Kayla. Since then, Lennon was diagnosed in November 2011 with Spastic Quadriplegia Cerebral Palsy affecting all four limbs. This is the most severe form of Cerebral Palsy, where all four limbs and the trunk are affected, as well as difficulty in controlling muscles in the mouth and tongue. Further complications associated with this condition include seizures, bowel and bladder dysfunction, scoliosis, hip dislocation, tooth decay and skin sores. Lennon was further diagnosed with Profound Neurodevelopmental delay, where a childs basic survival instincts are not inhibited, as is the norm. This can lead to problems with balance, motor control, hand-eye co-ordination and perceptual skills. Also, as a result of treatment for his lung disease, Lennon … Continue reading

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PolyU Researchers Develop Novel Treatment for People with Hemiplegic Arms

Posted: Published on December 28th, 2012

Researchers of The Hong Kong Polytechnic University (PolyU)'s Department of Rehabilitation Sciences have developed a novel treatment for people with hemiplegic arms because of stroke or unilateral cerebral palsy in order to speed up their recovery. Coined "Remind to move," the treatment requires the patients to wear a specially made sensory cueing wristwatch (SCW-V2), which is designed to provide pertinent sensory signals at a fixed interval. (PRWEB) December 26, 2012 The research was led by Dr Kenneth N. K. Fong, Associate Professor of the Department of Rehabilitation Sciences, who indicated that one of the common problems with arm recovery after stroke or in children with cerebral palsy is the "learned non-use." With learned non-use, a portion of motor impairment of the patient is not resulted from the brain cell damage but from the learned suppression of the movement, and that makes an individual unable to move or develop the arm further. Dr Kenneth Fong therefore developed a sensory cueing wristwatch to promote the attention and overcome "non-use" of hemiplegic arm through sensory cueing (e.g. vibration) emitted by a portable ambulatory wristwatch device tied to the upper limb, thereby reminding the subject to move his/her arm as instructed by the therapist. … Continue reading

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Speak easy

Posted: Published on December 26th, 2012

What do autism, stuttering, cleft lip and palate, and voice disorders have in common? They all can lead to childhood communication difficulties that speech pathologists have been trained to treat. And the list doesn't stop there. The trained therapists can help children who are late talkers, primary school children who want to quit school because of learning problems, children born with cerebral palsy, and many others. RELATED: Different way with words | Help for all at any age They also deal largely with adults who have a range of difficulties, from teachers or singers whose vocal folds are damaged from overuse, to elderly people with poor hearing, and those who have suffered a stroke (see stories next page). In addition, their expertise extends to treating children and adults with swallowing problems. One in seven Australians has some form of communication disability, which may be the result of problems with speech, voice, fluency, hearing, using and understanding language, or reading and writing. About 8.5 per cent of three-year-olds and 12 per cent of four-year-olds - amounting to about 10 per cent of pre-primary children - have some form of communication delay or difficulty, including stuttering. Dr Erin Godecke, postdoctoral research fellow … Continue reading

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