Page 11234..1020..»

Category Archives: Cerebral Palsy Treatment

About Cerebral Palsy | What is CP? |

Posted: August 16, 2017 at 9:47 pm

What is Cerebral Palsy?

While Cerebral Palsy (pronounced seh-ree-brel pawl-zee) is a blanket term commonly described by loss or impairment of motor function, Cerebral Palsy is actually caused by brain damage.

The brain damage is caused by brain injury or abnormal development of the brain that occurs while a childs brain is still developing before birth, during birth, or immediately after.

Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. It can also impact fine motor skills, gross motor skills and oral motor functioning.

Signs and symptoms of Cerebral Palsy may not always be apparent at birth. The child will likely experience a delay in development and growth milestones.

About two to three children out of every 1,000 have Cerebral Palsy studies in the United States studies have yielded rates as low as 2.3 per 1,000 children to as high as 3.6 per 1,000 children.

Today, although there is no cure for Cerebral Palsy, but the condition can be managed and individuals with Cerebral Palsy can live a long, healthy and quality life. To learn about the various aspects of Cerebral Palsy, click on the links below.

See the original post:
About Cerebral Palsy | What is CP? |

Posted in Cerebral Palsy Treatment | Comments Off on About Cerebral Palsy | What is CP? |

Outsourcing proposed to trim Lodi budget – Lodi News-Sentinel

Posted: at 9:47 pm

With the City of Lodi already struggling to balance budgets, local leaders are exploring ways to make sure the city stays solvent with soaring pension costs expected to eat up bigger chunks of the general budget in the coming years.

Back in June, when the City Council approved the 2017-18 budget, Councilman Bob Johnson suggested that the city consider outsourcing some of its services to save money, and he reiterated the idea at a recent council meeting.

An online service is needed to view this article in its entirety. You need an online service to view this article in its entirety.

Need an account? Create one now.

kAm(92E x [email protected]@D65 H2D 9:C:?8 2 4@?DF=E2?E H9@ [email protected]=5 4@>6 😕 2?5 =@@6?ED 2?5 7:?5 @FE :7 2?J @7 E96> >256 2?J D6?D6 [email protected] @[email protected]:?8[ [email protected]?D@? D2:5]k^Am

[email protected]?D@? DF886DE65 E92E :7 [email protected]@E:@?2= 2EE249>6?ED E@ [email protected] 6>[email protected]]k^Am

kAmqJ 92G:?8 2? @FED:56C 5@ :E[ :E 364@>6D G6CJ @3;64E:G6 2?5 E96 D6?D:E:G:EJ >2J 36 =6DD6?65[ [email protected]?D@? D2:5]k^Am

[email protected]?D@? [email protected] E92E E96 4:EJ 2=C625J @[email protected] E96 vC2A6{:?6 [email protected]:@? D6CG:46D 2?5 25565 E92E DEC66E >2:?E6?2?46 😕 [email protected][email protected]? [email protected]: 😀 4@?EC24E65 @FE E@ &?:E65 r6C63C2= !2=DJ 2=@?8 H:E9 E96 =2?5D42A:?8 >2:?E6?2?46 2E wFE49:?D $EC66E $BF2C6]k^Am

kAm(92E 6=D6 [email protected]=5 36 5@?6[ 96 2D >2<: e96 c6bf6de e2="<" : a2c>2:?E6?2?46] [email protected] E92E >[email protected] 8@:?8 E@ 92G6 E@ 4@>6 😕 2?5 =@@ 5@ [email protected] A2C2:?E6?2?46 >2

[email protected]?D@? 2=D@ BF6DE:@?65 :7 D@>6 A2CED @7 G69:4=6 7=66E >2:?E6?2?46 [email protected]=5 36 [email protected] @FE E@ [email protected]= 82C286D]k^Am

kAm%96D6 2C6 E96 E9:?8D x E9:?2A=6>6?E E96 @[email protected]:?8 H:E9 E96 =62DE 2>@F?E @7 4@?7FD:@? 2?5 A2:?[ [email protected]?D@? D2:5]k^Am

kAmqJ @[email protected]:?8 D@>6 @7 :ED D6CG:46D[ [email protected]?D@? DF886DE65 E92E E96 4:EJ [email protected]=5 [email protected]:3=J D2G6 3J [email protected] E2<: a6>

kAmpC6 E96 @[email protected]?:E:6D @FE E96C6n [email protected]?D@? BF6DE:@?65] x> DF886DE:?8 E96J 2C6] x> DF886DE:?8 H6 92G6 D@>[email protected] 4@>6 😕 2?5 :>A2CE:2==J =@@2A2CE:2==J :>A=6>6?E E96> 2?5 D2G6 FD >@?6J]k^Am

[email protected]?D@? 2=D@ A@:?E65 @FE E92E E96 4:EJ 925 2 5:D4FDD:@? [email protected] @[email protected]:?8 [email protected]?E A=2?E 2 76H J62CD 28@[ 3FE E96 [email protected]?4:= [email protected] ba E@ 2? [email protected]??6 [email protected]?46 [email protected] 😕 E96 >2;@C:EJ 2?5 D96 D2:5 96C DE2?46 DE:== 92D?E 492?865]k^Am

[email protected]?46 C676C6?465 [email protected]

[email protected] 4@>A2C6 :E E@ E96 r:EJ @7 [email protected]>6E65[ 2?5 E96 H2E6C H2D [email protected]:3=6 2?5 :E E@@ E@ 86E :E 324:==:@? 😕 2 A=2?E 2?5 EFC? :E @G6C E@ D@>6@?6 H9@ 😀 2 [email protected]:E>2<:>A2?Jn %96J 2C6 [email protected] 8@:?8 E@ =@@

[email protected]?D@? D2JD E92E 56DA:E6 E96 D=:89E :?4C62D6D 😕 D2=6D E2I C6G6?F6 E96 4:EJ 😀 6IA6C:6?4:?8[ E96 C6G6?F6 A2=6D 😕 4@>A2C:D@? E@ E96 4:EJD A6?D:@? =:23:=:EJ[ 8@:?8 FA S` >:==:@? 2??F2==J]k^Am

kAm(6 2C6 9625:?8 :?E@ 2 9@=6 E92E E96C6 😀 ?@ 86EE:?8 @FE @7[ F?=6DD H6 E26 5C2DE:4 DE6AD[ 96 D2:5]k^Am

kAm(9:=6 96 766=D E96 4:EJ H:== 36?67:E 7C@> @[email protected]:?8[ [email protected]?D@? D2:5 E96C6 2C6 2 76H ?682E:G6D]k^Am

kAm%96 @3G:@FD ?682E:G6 😀 E96 :>A24E FA@? A6CD@??6= 2?5 6>[email protected] @7 E96 r:EJ @7 [email protected]:[ D@>6 H9@ >2J 92G6 [email protected]?J @7 H9@> =:G6 😕 E96 4:EJ[ 96 D2:5] %92E H:== 42FD6 D@>6 8C:67[ >2J36 4@?D:56C23=6 8C:67[ 3FE H96? x 962C E96 4:EJ >2?286C 4@?E:?F2==J D2J E@ E96 4:EJ [email protected]?4:= H6 [email protected]=5 36 :?D@=G6?E 😕 7:G6 J62CD[ E92E >62?D [email protected]=6 92G6 E@ >2

kAm(:E9 E96 6I46AE:@? @7 @[email protected]:?8 @A6C2E:@? @7 E96 H2E6C EC62E>6?E A=2?E[ [email protected]?46 D2:5 D96 [email protected]=5 36 @A6? E@ 5:D4FDD:?8 @[email protected]:?8 :7 D96 H2D AC6D6?E65 H:E9 4@>A2?:6D E92E 2C6 C6AFE23=6 2?5 E92E H:== EC62E E96 r:EJ @7 [email protected]: 2D :7 :E H2D E96:C @H?]k^Am

[email protected]:?8 @7 4:E:K6?D 2DD6ED 92G6 ?6G6C [email protected]? E@ 36 2 8@@5 >@G6 😕 E96 A2DE[ D96 D2:5 [email protected] >6 2 4:EJ E92E 92D 366? DF446DD7F= H:E9 :E[ 2?5 E96? >2J36 x== 4@?D:56C :E]k^Am

kAmpD @7 [email protected][ D96 😀 DE:== [email protected] 4@?G:?465 E92E @[email protected]:?8 😀 E96 36DE :562 [email protected] E96 4:EJ E@ D@=G6 :ED 7:?2?4:2= :DDF6D]k^Am

kAm%96 {628F6 @7 r2=:[email protected]?:2 r:E:6D 😀 24E:G6=J [email protected]<: h:e9 r2="!t#$" de2e6="68:D=2EFC6" e ecj d h6>6 E9:?8D E92E 2C6 8@:?8 E@ 96=An p3D@=FE6=J[ 3FE x 5@?E E9:?6 😀 E96 H2J E@ 8@]k^Am

[email protected]?46 D2:5 [email protected]=6 [email protected]=5?E 36 BF:4:DD E96 [email protected]?286C 2?5 E96 {628F6 @7 r2=:[email protected]?:2 r:E:6D 😀 5@:?8 E@ 4@>32E E96 A6?D:@? [email protected]=6> 3642FD6 D96 36=:6G6D E96C6 😀 2 D@=FE:@? E96C6]k^Am

kAmx 8F2C2?E66 [email protected] E96 $E2E6 @7 r2=:[email protected]?:2 😀 [email protected] 8@:?8 E@ =6E cga 4:E:6D 8@ 32?2J >2AD 😕 2?5 >26 492?86D E@ E96 A6?D:@?]k^Am

[email protected]:?8 E@ r:EJ |2?286C $E6G6 $49H232F6C[ :7 E96 DE2E6 [email protected]?E E246?E 😕 r2=:[email protected]?:2 H:== 492?86 [email protected] E96 [email protected]]k^Am

kAmx7 E96 DE2E6 [email protected]?E 492?86 A6?D:@? =2H[ x E9:?36C @7 4@>>F?:E:6D 2C6 8@:?8 E@ DF776C 325=J 😕 H2JD E92E H:== 9FCE E96 DE2E6[ $49H232F6C D2:5] $@ x5 36 DEF??65 :7 E96 DE2E6 [email protected]?E 7:?2==J 4@>6 E@ E96 C62=:K2E:@? E92E E96J ?665 E@ 5@ D@>6E9:?8[ 3FE E96 DE2E6 =68:D=2EFC6 H@?E 5@ 2?JE9:?8 F?E:= E96 52> 😀 3C@ F?E:= E96 7=@@5 H2E6CD DE2CE C:D:?8] ~?46 E96 7=@@5 H2E6CD 2C6 C:D:?8 x E9:?2EE6C @7 H9@ [email protected]?D 😕 E96 >62?E:>6]k^Am

[email protected]:?8 E@ $49H232F6C[ :ED E@@ 62C=J E@ 4@?D:56C @[email protected]:?8] w6 D2:5 :7 E96 4:EJ [email protected] [email protected] E92E @AE:@?[ :ED 2 A@=:E:42= 564:D:@? E92E H:== F=E:>2E6=J C6DE H:E9 E96 [email protected]?4:=]k^Am

kAm%96C6 😀 2 H9@=6 [email protected] @7 C6D62C49 E92E 92D E@ 36 5@?6 E@ 7:8FC6 :7 2?JE9:?8 [email protected]=5 36 @[email protected][ 2?5 :7 D@[ H92E E92E [email protected]=5 36 2?5 H:E9@FE 8@:?8 E9C@F89 E92E AC@46DD[ x 42?E :56?E:7J 2?JE9:?8[ 96 D2:5]k^Am

Read the original post:
Outsourcing proposed to trim Lodi budget – Lodi News-Sentinel

Posted in Cerebral Palsy Treatment | Comments Off on Outsourcing proposed to trim Lodi budget – Lodi News-Sentinel

Robotic Training Method May Improve Gait, Posture in Kids with Cerebral Palsy, Researchers Say – Cerebral Palsy News Today

Posted: August 15, 2017 at 1:41 pm

A new robotic training method targeting posture and crouch gait in children with cerebral palsy (CP) was developed by a research team from theSchool of Engineering and Applied Science at Columbia University.

In a pilot study titled Robot-driven downward pelvic pull to improve crouch gait in children with cerebral palsy, published in the journalScience Robotics, team leader Sunil Agrawal described how his teams robotic training system was engineered to improve muscle strength and coordination.

One of the major reasons for crouch gait is weakness in soleus muscles, Agrawal, a professor of mechanical engineering and of rehabilitation and regenerative medicine, said in a news release. Thesoleus isan extensor muscle from just below the knee to the heel that plays a key role in preventing the knee fromcollapsing and providing propulsion during movement, or gait cycles.

We hypothesized that walking with a downward pelvic pull would strengthen extensor muscles, especially the soleus, against the applied downward pull and would improve muscle coordination during walking, Agrawal said.

We took an approach opposite to conventional therapy with these children: Instead of partial body weight suspension during treadmill walking, we trained participants to walk with a force augmentation, he said.

Knowing that the soleus muscle is activated more intensely when weight is added to the body during walking, researchers focused on strengthening the soleus, hypothesizing that this would help children with crouch gait increase their standing and walking abilities.

The researchers developedthe Tethered Pelvic Assist Device (TPAD) system as a light, wearable, cable-driven robot that assists movement when walking on a treadmill.

TPAD is a unique device because it applies external forces on the human body during walking, said Jiyeon Kang, a PhD candidate and lead author of the study. The training with this device is distinctive because it does not add mass/inertia to the human body during walking.

Working with six children with cerebral palsy over six weeks, the team examined their muscle strength and coordination while continuously monitoring motion and ground reaction forces.

They found that the training was effective in both enhancing the childrens upright posture and improving their muscle coordination. Other walking features like step length and range of motion also improved.

Feedback from the parents and children involved in this study was consistent. They reported improved posture, stronger legs, and faster walking speed, and our measurements bear that out, said Heakyung Kim, a Columbia University professor of pediatrics who treated the children involved in the trial.

We think that our robotic TPAD training with downward pelvic pull could be a very promising intervention for these children, Kim added.

Among other symptoms of cerebral palsy, such as slow walking speed or reduced range of motion of the joints, crouch gait is characterized by excessive flexion of the hips, knees, and ankles. Its caused by a combination of weak extensor muscles that cant hold an upright posture along with tight flexor muscles that limit the joints range of motion.

While providing propulsion to complete the gait cycle, the soleus keeps the shank upright during the mid-stance phase of the cycle to help the knee extend properly.

Currently, there is no well-established physical therapy or strengthening exercise for the treatment of crouch gait, Agrawal said.

The research team plans to continue testing the robotic training methodin clinical studies, eventually with larger groups of patients and potentially with children who have hemiplegic and quadriplegic cerebral palsy.

Robotic Training Method May Improve Gait, Posture in Kids with Cerebral Palsy, Researchers Say – Cerebral Palsy News Today

Posted in Cerebral Palsy Treatment | Comments Off on Robotic Training Method May Improve Gait, Posture in Kids with Cerebral Palsy, Researchers Say – Cerebral Palsy News Today

Family hopes to crowd-fund medical trial of cerebral palsy therapy with Kokoda Track mission – ABC Online

Posted: August 14, 2017 at 3:46 am

Updated August 14, 2017 17:31:02

How far could you carry a six-year-old?

To the park? To the shops? What about along the entire Kokoda Track?

Michael Shearman is going to do just that. His son Max weighs 27 kilograms. The Kokoda Track stretches 96 exhausting kilometres.

So why would Michael carry Max that far?

Max was diagnosed with cerebral palsy when he was an infant.

It’s a brain disorder that affects about 34,000 Australians. Symptoms range from physical weakness in one limb through to an almost complete lack of voluntary movement.

The diagnosis was devastating for Max’s parents, Michael and Claire.

“I remember just that breathlessness of going, ‘What does this mean?’ first,” Claire tells 7.30.

“They were talking wheelchairs. They didn’t know if he’d be able to talk, how his brain was going to be functioning and what the outcomes were going to be.”

The Shearmans explored therapies and treatments to try to improve Max’s mobility and muscle development, ranging from botox and bobath therapy to physiotherapy and yoga.

They say there were breakthroughs from time to time, but nothing seemed to provide a lasting improvement.

Then they came across the TheraSuit.

“There was a program on one of the TV shows that we watched,” Michael says. “And it showed TheraSuit and what TheraSuit is.

“We asked a few therapists about TheraSuit and they said, ‘Oh no, we haven’t got that in Australia, no therapists are trained in that in Australia’.”

But the Shearmans kept looking, and when a therapist they knew decided to train in TheraSuit therapy and offered to take Max on as a patient, they jumped at the opportunity.

“There are a lot of conflicting opinions,” Claire says. “A lot of people who didn’t know much about it said: ‘Look, it’s just another gimmick, it is a waste of time, it’s a waste of money’.

“We had tried so many different things it was just again a bit of trial and error and going, ‘OK, well we’ll give it a go and see. Everything is worth a try’.”

The TheraSuit has its origins in a space suit created for the Russian cosmonaut program. It functions by constricting muscles and applying pressure to the body to build up muscle strength.

It’s used as a cerebral palsy treatment in dozens of countries around the world, but isn’t widely used in Australia and doesn’t attract government funding subsidies.

Several studies of the TheraSuit overseas returned underwhelming findings.

A 2011 study concluded: “Children wearing the TheraSuit during an intensive therapy program did not demonstrate improved motor function compared with those wearing a control suit during the same program.”

A study published in July 2017 noted: “Enthusiasm with new therapeutic approaches needs to be guided by scientific evaluation. The low quality of evidence suggests caution in recommending the use of these therapeutic suits. New studies could change the findings of this review.”

Despite the findings of these studies, the Shearmans are adamant the TheraSuit has opened up a new world of mobility for Max.

“I was really sceptical at the start, as with all sorts of therapies that I have been sceptical of, because I have never seen any easy fix,” Michael says.

“When they put the suit on they can activate certain muscles just by tightening bungees and tightening elastic cords on the suit that holds it together. They go through a whole exercise program with those muscles activated.

“It helps retrain the brain as well as the muscles, you know, to reignite pathways within your brain.

“Max is a completely different boy to how he was since he has done the TheraSuit.

“He is riding a bike. He’s walking. And he surfs now. I can push him on the waves and he can trim himself along and paddle in.”

“All over, there are lots of functional things that he has gained,” Claire says. “But it’s really the strength. He’s so muscly now, whereas he used to be such a little whippet.”

Max’s TheraSuit therapist, Zoe Planck, says he has made significant advances.

“The whole point of intensive therapy is to see accelerated functional outcomes in comparison to traditional therapy methods,” Ms Planck said.

“So for Max, a huge goal for him was to strengthen his body enough that he could stand independently. But now he is strong enough that he is taking independent steps.

“And then not only that, he has got so much more strength in his body that the left arm that is affected [by cerebral palsy] is now so much more functional in daily life, using it to help him dress, to eat, to play.”

But the TheraSuit doesn’t come cheaply. The Shearmans say they spent $30,000 last year on the therapy.

They managed to afford it, but know many families simply can’t.

“I wanted to start campaigning to help other kids get access to this therapy,” Michael says. “So I thought, ‘We need to fund a trial’.

“I have got to raise $450,000, I have got to put 15 kids through this intensive program in 2018 and I am going to have it reviewed properly.”

The Shearmans have joined forces with researchers at Monash University’s Hudson Institute of Medical Research to start designing a trial to run next year.

“Just because it works in Max, doesn’t mean it’s going to work in every kid with cerebral palsy,” associate professor Tim Moss from the Hudson Institute tells 7.30.

“We need to start off with a well-defined group of children whose cerebral palsy we can quantify and measure before and after the treatment.

“If we know it works in that sort of context then we’d be justified going further and trialling it in kids with perhaps more-severe or less-severe cerebral palsy.

“This is one therapy that hasn’t been properly studied.

“There’s no adverse effects of the therapy, but there has not been an ability yet to show benefit from those treatments. But of course lack of evidence is not equal to evidence of a lack of effect.”

Michael Shearman is confident the trial he is trying to fund will show great results.

“Once we can prove that this intensive therapy does work, if we can put that to the Government, maybe other kids can grab hold of this therapy.”

With a huge fundraising task ahead of him, Michael decided to do something outrageous.

He hatched a plan to carry Max along Papua New Guinea’s notorious Kokoda Track on an eight-day mission to raise awareness and as much money as he could to fund the trial.

The past few months have been a whirlwind of fundraising, travel planning, immunisations and discussions with Max’s doctors and a lot of practice walks.

As a serving police officer Michael is pretty fit. But even he’s a little intimidated by the prospect of carrying Max for days along the Kokoda track.

“He’s just under 27 kilos now. The little bugger has put on a little bit more weight since I decided to go, four kilos I think he has put on,” Mick laughs.

Michael and Max fly out for Papua New Guinea this week, with a support team of friends and family alongside them.

Max says he can’t wait to go swimming in rivers and visit village schools in Papua New Guinea.

“We obviously went through all the checks with the paediatrician and got all the health checks,” Claire says.

“There is a paramedic going on the trip, which is very nice for me.

“I don’t doubt Michael for a second. He has got the strength and fitness and the mental strength to do it. But having Max on his back is something else. I’ll be really happy when they get back.”

Michael says the Kokoda trip will be a powerful bonding experience for him and Max.

“As father and son we’ll be rock solid after this, without a doubt.

“Max is told every day he can be anything, he can do absolutely anything you want. And I want him to know that.

“I hope, and obviously I dream, about Max being able to be fully independent.

“To drive a car, have a job, raise a family of his own, help other people that are similar to him and proving that cerebral palsy isn’t a life sentence.

“Yes you’ve got it for life, but it is not a sentence.”


First posted August 14, 2017 14:07:24

Go here to read the rest:
Family hopes to crowd-fund medical trial of cerebral palsy therapy with Kokoda Track mission – ABC Online

Posted in Cerebral Palsy Treatment | Comments Off on Family hopes to crowd-fund medical trial of cerebral palsy therapy with Kokoda Track mission – ABC Online

Stem Cell Registry Will Facilitate Finding Donors – Financial Tribune

Posted: August 12, 2017 at 10:43 pm

One of the obstacles on the way of successful stem cell transplant is problems in finding a good match for the recipient.There is only 25% chance that siblings offer one another a human leukocyte antigen match (or simply a tissue type match) while in 75% of cases patients need to find a match from unrelated donors, Dr. Azim Mehrvar, head of MAHAK Specialized Pediatric Cancer Hospital, was quoted by ISNA as saying.Last month, MAHAK opened a stem cell registry to facilitate the search for donors who are a match to blood disorder patients the first of its kind in Iran.The best transplant outcome happens when a patients HLA and the donors HLA closely match. HLA is a protein or marker found on most cells in a body and is used to match with a donor for bone marrow or cord blood transplant.All people between the ages of 18 and 50 can come to the center and register to help children suffering from cancer.The process is easy: Once an applicant is registered, his/her cheek cell sample (buccal swab) is sent for HLA typing, the result of which is stored in the registry. The process takes only a few minutes.In the future if the persons HLA type matches with any patient looking for a match, the donor will be contacted to donate their blood stem cells to potentially save a life, the physician said.After finding a good match, the donor receives a health check-up to make sure he/she is fit and healthy to donate. Then they will be given an injection called GCSF (Granulocyte Colony Stimulating Factor) every day for 5 days. This is to release stem cells from the bone marrow into the peripheral blood flow.On the fifth day, blood stem cells are collected in a 3-4 hours outpatient procedure called apheresis. The stem cells are then transferred to the hospital to be grafted.Stem cells can be used to treat a variety of disorders including hematopoietic and genetic disorders and even cerebral palsy. Cerebral palsy is an umbrella term for the effects of damage to a developing brain by various causes. It is connected with a range of symptoms, including muscle weakness and movement problems.According to the charitys website (, currently donors can be registered only in Tehran. The budget to maintain the registry has been provided by Bahman Group, an Iran-based auto company under license of Japan carmaker Mazda.Mahak, a non-governmental organization dedicated to helping children, was established in 1991 by Saideh Ghods.The society is funded entirely by donations and has supported 11,505 children suffering from cancer in the past 17 years. The 18,000-square-meter rehab center and hospital in the north of Tehran was completed in 2003 and can house 120 children, each with a family member. The rehab center has diagnostic and treatment wards on par with global standards.

Read the original:
Stem Cell Registry Will Facilitate Finding Donors – Financial Tribune

Posted in Cerebral Palsy Treatment | Comments Off on Stem Cell Registry Will Facilitate Finding Donors – Financial Tribune

Music festival to help raise cash for youngsters’ treatment – Rotherham Advertiser

Posted: August 11, 2017 at 7:41 pm

Festival committee members, (from left to right), Cllr Gill Shaw, Cllr Peter Blanksby and Cllr Wendy Fowkes with Daisy Garforth, dad, Lee and mum, Hollie. 171296-4

A TWO-day music festival will raise money to treat two young girls with cerebral palsy from the same village.

The charity event on Wales Recreation Ground will help fund treatments for seven-year-old Daisy Garforth and Taylor Dobbs (3).

A variety of music acts will be performing in the marquee between 6pm and 11.30pm on Friday and from noon until midnight on the Saturday.

Cash raised will help fund therapy for both Kiveton Park girls, whose brain conditions were caused by complications at birth.

Daisy was born with cord presentation and was starved of oxygen for about 20 minutes, resulting in brain damage which caused her athetoid dystonic cerebral palsy.

Mum Hollie (32) said: It means her muscles can be very, very floppy or very, very tight and it affects all four limbs.

Several of Daisys treatments are unavailable on the NHS, including the three times a week she has hyperbaric oxygen therapy in Leeds.

Since Daisys been going for oxygen therapy in the last 18 months, she hasnt suffered a cold, chest infection or anything like that, said Hollie.

The youngster also attends Londons specialist Bobath Centre for a fortnight each year for intensive physio, speech and language and occupational therapy. The placement is funded but not the familys travel or accommodation.

And neuro training, which maps which parts of the brain are over and under used, is another treatment the family is considering.

Daisy has learned to walk using a frame and attended mainstream school at Kiveton Park Infants.

Dad Lee (41) said: The head said when we first went there that if they had to knock walls down to accommodate Daisy, then they would.

He also said they wanted it to be a classroom of children, not a classroom of children and Daisy. She has come on so much at that school, with a fantastic group of children around her.

Taylors mum Suzie Oates is looking to the US for treatment for her daughters quadroplegic cerebral palsy.

She said: Taylor is a happy three-year-old with a beautiful soul and deserves every opportunity to thrive.

She requires specialist care, help and support, including adaptations and specialist equipment to support her everyday living.

Like any mother, Id like to give her every chance to exceed expectations and meet milestones many parents take for granted.

Unfortunately, a lot of these treatments are not available in the UK and the costs are high.

More here:
Music festival to help raise cash for youngsters’ treatment – Rotherham Advertiser

Posted in Cerebral Palsy Treatment | Comments Off on Music festival to help raise cash for youngsters’ treatment – Rotherham Advertiser

Judge dismisses suit over disabled kids’ treatment under Fla. Medicaid system; case heads to appeal court – The Ledger

Posted: at 7:41 pm

Federal judge dismisses suit against care provided by Florida’s Medicaid system

TALLAHASSEE A legal battle will continue about whether Florida’s Medicaid program has provided proper services to children with severe medical conditions.

Attorneys for children and the U.S. Department of Justice gave notice this week that they will take the five-year battle to the 11th U.S. Circuit Court of Appeals in Atlanta. The move came after a federal district judge in June sided with the state Agency for Health Care Administration and the state Department of Health, and dismissed the case.

The case has centered on allegations the state violated the Americans with Disabilities Act and other laws by failing to provide services that would allow medically complex children to stay in their homes and communities. It was filed on behalf of children who had been placed in nursing homes or who were considered at risk of going into such facilities.

Senior U.S. District Judge William Zloch in the June ruling approved the recommendations of a magistrate judge, who focused on changes the Medicaid program had made. U.S. Magistrate Judge Patrick Hunt wrote that the plaintiffs could no longer show they were in danger of being denied medically necessary private-duty nursing services a key issue in the case or that they were at risk of institutionalization.

The notices of appeal, as is common, do not detail the argumentsthe children’s attorneys and the U.S. Department of Justice will make at the appeals court. But the notices, filed Monday, indicate that several rulings in the case will be challenged, including Zloch’s June dismissal order.

The Department of Justice also will challenge a September 2016 ruling by Zloch that the department lacked legal standing to file its complaint under part of the Americans with Disabilities Act.

The overall legal fight dates to 2012, when attorneys for the children filed suit against the state in federal court in South Florida. The Department of Justice filed a lawsuit in 2013, and the cases later were consolidated.

Zloch last year turned down a request to have the case certified as a class action, finding that a particular Medicaid recipient’s risk of institutionalization will often turn on individualized circumstances, such as the recipient’s particular medical condition and the recommendations of her physicians. Plaintiffs offer no objective measure by which to gauge the persons included within the class.

In their notice of appeal filed Monday, attorneys for the children indicated they will also challenge that rejection of a class action.

The children in the case need intensive medical attention because of issues such as relying on tracheotomy tubes and having conditions such as cerebral palsy, according to court documents. They are identified only by initials.

Read the original here:
Judge dismisses suit over disabled kids’ treatment under Fla. Medicaid system; case heads to appeal court – The Ledger

Posted in Cerebral Palsy Treatment | Comments Off on Judge dismisses suit over disabled kids’ treatment under Fla. Medicaid system; case heads to appeal court – The Ledger

Myth on why the rich don’t treat disabled kids – The Star, Kenya

Posted: August 7, 2017 at 12:42 pm

Many disabled children from well-off families at the Coast do not get treatment or special care because of a myth that their condition protects wealth, researchers from the Kenya Medical Research Institute say.

Yet, most of these children suffer from neurological disorders that cause drooling.

Drooling by a person with a disability is sometimes related to the perceived wealth of a parent, often the father, they say in a study, which was published in the peer-reviewed open access scientific journal published by the Public Library of Science (Plos One) last week.

Drooling (dripping of saliva) can be caused by neurological disorders such as cerebral palsy, down syndrome and autism among others, which can be managed.

In the past, myths on disability were associated with poor, uneducated people. But researchers said both rich and poor families tend to view many of those disabled children as sources of wealth.

Kemris Joseph Gona said they are described as having been placed under or on a seat for demons or ghosts.

The child just sits with saliva dripping; he-she is in a terrible condition while the father has a lot of money, said one of the respondents in the research conducted in Kilifi County early this year.

The study was part of a project to promote disability awareness in small communities, and is titled Preparation of Communities: Using personal narratives to affect attitudes to disability in Kilifi, Kenya..

Researchers collected information through 21 focus group discussions involving 263 participants.

On a positive note, they said medical explanations for disability are beginning to emerge, with increasing numbers of families seeking medical advice for children.

Lead researcher Dr Karen Bunning, from University of East Anglias School of Health Sciences, which collaborated in the research, said, The different explanations represent a real mixture of traditional, religious and biomedical beliefs.

Read the original here:
Myth on why the rich don’t treat disabled kids – The Star, Kenya

Posted in Cerebral Palsy Treatment | Comments Off on Myth on why the rich don’t treat disabled kids – The Star, Kenya

New Hope for Children Who Nearly Drown – Scientific American (blog)

Posted: at 12:42 pm

Conrad was 17 months old when Dave, his grandfather, was babysitting him at their home in Temple, Texas. The two had been playing in the pool and went inside for a break. Dave set to unloading dishes in the dishwasher, unaware that Conrad had snuck back outside.

As he finished the dishes, Dave looked out the window and noticed something odd. There was what looked like a floating bundle of clothes in the swimming pool. It was his grandson.

Fortunately, Conrad responded to cardiopulmonary resuscitation (CPR), but its unclear how long his lungsand his brainwent without oxygen.

Drowning is the second most common cause of accidental death in children to age four. As in Conrads case, CPR is fortunately very successful, with 66 percent of nearly drowned children surviving. But even when resuscitated, the seconds and minutes that the brain is deprived of oxygen come at a great cost. This type of damage is known as anoxic brain injury.

Anoxic brain injury is a clinical term that indicates damage to the brain that occurs due to lack of oxygen. There is a spectrum of injury ranging from complete recovery to minor to widespread brain damage. Within this spectrum lies what is known as the disorders of consciousness, with the extent of damage being proportional to the loss of consciousness.

In the case of nearly drowned children, the injury is frequently thought to be widespread. Nearly drowned children are labeled minimally conscious or even in a persistent vegetative state (with no consciousness) and the prevailing medical prognosis is grim: treatment and recovery is difficult if not impossible.

Conrad was left with profound brain damage. He remained comatose, unresponsive for weeks. Following his emergence from the coma, parents and doctors struggled to understand what partif anyof Conrads brain function remained.

Liz Tullis, Conrads mother, explained to UT Health San Antonio, When Conrad survived his accident, I was not given much hope or guidance; in fact I was encouraged to institutionalize Conrad. Other families were encouraged to withdraw care.

One complication was that it was difficult to tease out what normal, adult brain functions had been lost because of the injury and which simply hadnt grown out yetrecall that Conrad was less than two years old when his accident happened. Even before the accident we wouldnt have expected him to hopscotch or spell.

Conrads doctors felt his brain was severely damaged and that, if he improved at all, he might only be able to take food by mouth or do simple movements like roll over or hold his head up. Whether Conrad would be able to think and reason wasnt on the table.

That Conrads ability to think was uncertain reflects a clinical malaise surrounding the detection and prediction of internal mental states. It also reflects a very specific clinical limitation: the clinical interview requires movement.

Whether listening to your heart beat (contracting, relaxing, contracting, relaxing), observing you breathe in and out, tracking the way your eyes focus, and perhaps most importantly, evaluating your mental and emotional state based on the words you speak, the clinicians skill rests on some form of movement. Subtract movement and the clinician can gather no data.

But what if a patient cant move? Or at least move in a meaningful way? Does lack of movement necessarily imply lack of thought? (Non moveo ergo non cogito ergo non sum?)

With time, Conrad regained a limited ability to movenot coordinated, purposeful movements like hopscotch, but rather the ability to wiggle and squirm. He couldnt speak. To all outward clinical evaluations, he had reached his optimum treatment potential.

When their insurance would no longer cover Conrads physical therapy and treatments, the Tullis family could fortunately self-pay and persist with the hope that their baby would continue to improve.

Liz had a sense that Conrad was in there and wanted to sort out whether there was evidence for that. She approached Dr. Peter Fox, a neurologist and neuroscientist at the UT Health San Antonios Research Imaging Institute, to see if there was something he could do to help Conrad, perhaps some avant-garde brain-computer interface that could improve his state.

Dr. Fox said he could offer no treatment, but with the help of modern brain imaging methods, he could see what brain systems Conrad had intact. He offered to design a study of nearly-drowned children with anoxic brain injury. With the help of his then-graduate student, Dr. Janessa Manning, a pediatric neuroscientist currently at the N.I.H.s Perinatology Research Branch, they began to peer inside Conrads brain and inside the brains of 9 other children with near-fatal drowning. They chose to use resting-state functional Magnetic Resonance Imaging (resting-state fMRI).

Resting-state fMRI was an ideal method to study these childrens brain function because it is task-free, meaning that each child only had to remain still in the MRI scanner. The method captures the brains intrinsic activity in the absence of a specific task. Resting-state fMRI has shown that brain networks that subserve motor and even cognitive functions like language, memory and emotion are continuously and dynamically active in the resting brain.

The results of their study, published July 31, 2017 in the journal Human Brain Mapping, suggest there is great hope for children with anoxic brain injury. The pattern of brain damage wasnt as widespread as previously thought and indicates much higher levels of brain function.

In ten out of ten of the children studied, damage was most severe in important motor networks deep inside the brain. This explained the absence of purposeful movement in children like Conrad.

Also in all ten of the children, brain networks involved in language, emotion, and memory were seemingly preserved. This means that those children were awake and alert even though their absence of coordinated movement labeled them minimally conscious. Liz was right, Conrad was in there.

Dr. Mariam Ishaque, an MD-PhD student (and neurosurgery applicant) who spearheaded the project, was surprised how well Lizs clinical impression was borne out by the imaging data. She recalled to me that one child couldnt talk, or control his movements. But he made eye contact with us. I could tell that he was annoyed that we were keeping him awake [they scanned the children at night]. You could tell he knew what was going on. It was striking.

It appeared that near-fatal drowning causes an anoxic brain injury that is more akin to focal stroke than to widespread brain damage. These children had a clinical condition more akin to locked-in syndrome (where some patients have enough consciousness to write a book!) than a persistent vegetative state, where the brain function is flat-lined.

This is a new syndrome, Dr. Fox remarked to me. Its not taught in medical schooland this study presents a new level of sophistication for functional MRI. We have developed a method of using resting-state fMRI to diagnose individual patients. We hope that these results will help bring resting-state fMRI and per-patient analyses into the clinical arena.

What this exciting study promises isnt a new treatment, but a way to direct these children to different therapies. Soon after a near drowning, this study suggests that children could benefit from neuroprotective agents or even similar therapies that stroke victims receive. In addition, it suggests that in some cases, parents and doctors are justified in continuing support.

Nearly drowned children like Conrad could very well be fully-conscious, able to think and reason, able to understand social situations and humor and Dr. Seuss.

As Dr. Manning explained to me, If these children are in fact locked-in, then they are part of a much larger population who share similar types of brain damage, like children with cerebral palsy. This presents opportunities for clinicians and educators to develop methods to intellectually challenge these children who are very much conscious, just in a different way.

See the article here:
New Hope for Children Who Nearly Drown – Scientific American (blog)

Posted in Cerebral Palsy Treatment | Comments Off on New Hope for Children Who Nearly Drown – Scientific American (blog)

Siskin Children’s Institute Hires Kimberly Arnold, DPT – The Chattanoogan

Posted: August 4, 2017 at 6:45 pm

Siskin Childrens Institute announces the addition of Kimberly Arnold, DPT to the Center for Developmental Pediatrics team. Dr. Arnold brings a wealth of knowledge and experience to an already outstanding team of medical professionals serving children with special needs in our community.

Dr. Arnold received her doctorate degree in physical therapy in 2005 from Samuel Merritt College in Oakland, California. She has a special interest in treating children with Cerebral Palsy and other neuromotor disorders and became certified in Pediatric Neuro-Developmental Treatment in 2015. In addition to working in multiple public school settings in northern Georgia with pre-k through school age children and young adults, Dr.

I am so excited to join the Siskin Center for Developmental Pediatrics as the physical therapist. I so loved the experience of my son attending the Siskin Early Learning Center when he was younger and being part of the Siskin family. I am honored to join the therapy team and look forward to serving this wonderful community of children and families, says Dr. Arnold.

Siskin Children’s Institute Hires Kimberly Arnold, DPT – The Chattanoogan

Posted in Cerebral Palsy Treatment | Comments Off on Siskin Children’s Institute Hires Kimberly Arnold, DPT – The Chattanoogan

Page 11234..1020..»