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Category Archives: Cerebral Palsy Treatment
Injured Gazan Teen Denied Exit Permit for Medical Treatment – International Middle East Media Center
Posted: June 26, 2017 at 10:50 am
Khaled Ghamri, 17, in the intensive care unit of Al-Aqsa Martyrs Hospital, central Gaza. (Photo: courtesy of Ghamri family)
Israeli authorities denied 17-year-old Khaled Ghamri an exit permit to travel from Gaza to Jerusalem, for medical treatment ,after Israeli forces critically injured him during a protest near the Israel-Gaza border on May 23.
Israeli forces across the border fence shot Khaled, then 16, near Bureij refugee camp, in central Gaza, with live ammunition on May 23, critically injuring him. The bullet caused an arm fracture, damage to multiple organs, as well as severe bleeding that left him in a coma. On the treating doctors recommendation, the family applied for an urgent permit for Khaled and an escort to travel through the Israeli-controlled Erez crossingto Jerusalem for specialized care, but the permit was denied.
We are waiting to transfer him to the hospital in Jerusalem, but we dont know why Israel is refusing to let him in through Erez crossing, said Khaleds father to Defense for Children International Palestine. He has the right to be treated and return home to his family and his school.
Dr. Iyad Jabri, the head of Surgery and Urology Department at Al-Aqsa Martyrs Hospital in Deir Al-Balah, told DCIP that a single bullet hit Khaleds right arm, cut through a nerve and caused a fracture. The bullet exited from the other side of this arm, Jabri said, and settled in the right side of Khaleds stomach, causing damage to the aorta, liver, right kidney, ureter, and intestines.
Khaled underwent surgery to remove his right kidney and repair damage to his aorta. Heavy blood loss carried the possibility of damage to other organs, including his brain, and caused a nine-day coma, according to Jabri.
While Khaled was still in a coma, on May 27, his family applied for permission for Khaled to exit Gaza for treatment in an Israeli hospital but the Israeli Civil Affairs Office handed them a denial decision, according to the boys father, Husni Ghamri.
On May 31, when Khaled recovered from the coma, he began daily courses of dialysis to remove toxins in his left kidney.
Ghamri said that he filed a second medical travel permit request on Khaleds behalf on May 31 and is awaiting a response from Israeli authorities.
According to the World Health Organization (WHO), over 42 percent of Palestinian requests for medical travel out of Gaza were denied or delayed by Israeli authorities in April 2017. Of this number, three children were denied and 178 children were delayed care.
WHO also reported that three Palestinians, including a 5-year-old girl with cerebral palsy, died in Gaza in April while waiting for permission to leave for external treatment.
As a state party to the Convention on the Rights of the Child, Israel has obligated itself to recognize childrens right to the enjoyment of the highest attainable standard of health and to facilities for the treatment of illness and rehabilitation of health, as laid out in Article 24.
Search IMEMC: DCIP
Posted: at 10:50 am
A YOUNG girl is going to have her long locks shaved off to raise money for a Melksham youngster with cerebral palsy, to help him walk more easily.
Raife Wilson was born having lost the majority of his right temporal lobe due to a significant bleed to the brain, which led to numerous difficulties including cerebral palsy.
His family are currently aiming to raise 45,000 so he can have life-changing surgery which will ease stiffness and spasticity and 10-year-old Skye Williams is going to have her head shaved to boost funds.
Mum Keileigh Williams, 31, of Bowerhill, said: Skye has wanted to do it for a while but wasnt sure which charity to pick, so when Laura said she was setting up a charity for Raife, it seemed like the obvious choice.
Her hair goes all the way down past her shoulders so its going to be a big shock when it all comes off. Shes having a number 4 done so its going to be very different.
Were so proud of her, shes a very caring young girl, as is her sister, Phoenix.
My six-year-old son Aston had cancer two years ago and is currently in remission, so Skye and Phoenix became even more caring and selfless as a result of that.
The shave will take place on stage at the Trowbridge Civic Centre on August 4, when CBBC presenter Gemma Hunt brings a fun-filled, pirate-themed party to the town to raise money for Raife.
Skye’s hair will be donated to the Little Princess Trust, which makes wigs from real hair for children losing their own hair through cancer treatment.
Raifes mum, Laura Wilson, who is close friends with Mrs Williams, said: We are so proud of Skye and very grateful, its a very brave thing for a 10-year-old girl to do.
We cant wait for Gemmas party, it falls on Raifes birthday and hes so excited.
For more information and tickets, visit https://www.trowbridgecivic.co.uk/event/Gemmas+Pirate+Party
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Head shave to raise money for Raife – Wiltshire Times
Posted: June 25, 2017 at 9:43 pm
Photo courtesy Make-A-Wish Oregon
PORTLAND, Ore. A recent Ridgefield High School graduates wish of sharing his love of music came true on Sunday thanks to he Make-a-Wish Foundation of Oregon.
Nathan Ehline played his music in front of a packed house at Portlands Crystal Ballroom.
Ehline, who suffers from Cerebral Palsy, had a bad reaction to a drug treatment and was in the hospital with a life-threatening condition.
Nathan plays piano and cajn, and says music was a huge part of the healing process. He says music gives him an out-of-body experience while he’s going through treatment.
He hopes this once-in-a-lifetime experience can inspire others while they’re going through treatment.
Just the joy you get out of it. When you’re done with the show or start with it, it sends chills down your spine,” said Ehline.
Nathan said his love of music started three years ago when he and a friend played at First Thursday in the Pearl District. He says he regularly uploads his music online.
This is a developing story; updates will be posted.
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Young man’s wish of sharing the healing power of music comes true – KATU
Injured Palestinian teen in Gaza denied exit permit for medical treatment – Ma’an News Agency (press release)
Posted: at 4:43 am
(AFP/Abbas Momani, File)
Dozens of young protesters had taken to the border to protest in solidarity with a mass Palestinian prisoner hunger strike, and clashed with Israeli forces that fired live ammunition at the crowd.
According to DCIP, when the teen was hospitalized, a doctor recommended that the family apply for an urgent exit permit and an escort to travel through the Israeli-controlled Erez border crossing to Jerusalem for specialized care.
Khalid underwent surgery to remove his right kidney and repair damage to his aorta. Heavy blood loss carried the possibility of damage to other organs, including his brain, and caused a nine-day coma, medical sources at al-Aqsa Martyrs Hospital in Deir al-Balah told DCIP.
While Khalid was still in a coma, on May 27, his family applied for an exit permit so he could be treated in an Israeli hospital, but the Israeli Civil Affairs office denied the application.
After Khalid recovered from the coma on May 31 and began daily courses of dialysis to remove toxins in his left kidney, the family filed a second permit request, for which they are still awaiting a response, DCIP said.
We are waiting to transfer him to the hospital in Jerusalem, but we dont know why Israel is refusing to let him in through Erez crossing, Khalids father told the organization. He has the right to be treated and return home to his family and his school.
According to the World Health Organization (WHO), over 42 percent of Palestinian requests for medical travel out of Gaza were denied or delayed by Israeli authorities in April 2017. Of this number, three children were denied and 178 children were delayed care.
WHO also reported that three Palestinians, including a five-year-old girl with cerebral palsy, died in Gaza in April while waiting for permission to leave for external treatment.
According to the group, 52-year-old Talat Mahmoud Sulaiman al-Shawi, a resident of Rafah in southern Gaza, was diagnosed with a kidney tumor. Due to the delay in receiving the urgently needed medical treatment, the cancer metastasized to his spine, causing paralysis of the lower half of his body, al-Mezan wrote at the time.
The group further said it deeply regrets the enduring harm inflicted on Palestinian patients in the Gaza Strip, and deplores Israeli practices that cause further deterioration of patients health conditions. Al Mezan asserts that such practices amount to grave and systematic violations of International Human Rights Law and International Humanitarian Law.
The rights groups said that had documented a a stark increase of Israeli violations, in recent months, as half of the patients who submitted requests for travel permits have been denied access to hospitals.
Parents, stakeholders tell Kaine they’re concerned about potential Virginia Medicaid cuts – Richmond.com
Posted: June 24, 2017 at 8:46 am
U.S. Sen. Tim Kaine, D-Va., met with stakeholders in Richmond on Friday for a roundtable discussion on the potential effect of Medicaid cuts in Senate Republicans health care proposal.
Kaine met with about 25 interested parties, including representatives of ARC of Virginia, the Virginia Department of Medical Assistance Services, AARP Virginia, Voices for Virginias Children, the Virginia Association of Nurses, Planned Parenthood and the NAACP.
The heart of this bill is dramatic cuts to Medicaid, Kaine said at the SunTrust Center on East Main Street.
Kaine said he wants GOP senators to slow the bills progress and hold hearings.
Kaine spent much of the hour listening to stories from Virginians who said that without Medicaid assistance they would not have the means to care for children who are seriously ill, or who deal with mental health problems or developmental disabilities.
You cannot balance the health care act on the back of the most vulnerable citizens, said Kim Goodloe, president of ARC of Virginia. People with developmental disabilities who want to live with family members, or live independently, are at risk of losing services that are vital to keeping them out of nursing homes or state institutions, she said.
Our biggest fear is home-based community services are going to be the last thing to be funded, she said. Hospitals are going to be paid, nursing homes are going to be paid, and these direct-service providers are at the bottom of the barrel.
Melissa Earley, a registered nurse, said that if you take away coverage for mental health, thats going to have a direct impact on medical health.
Kaine told of a family in Albemarle County, whose son, a rising senior, has cerebral palsy. He uses a wheelchair, is nonverbal and uses an iPad to communicate. His parents are pleased that he is on track to graduate from high school but noted that they could not have afforded his wheelchair without Medicaid.
Theres a powerful argument that Medicaid services are independence promoters, Kaine said.
Marsha Williamson of King and Queen County, a former Richmond resident, says her son, Jesse, 28, has schizophrenia and has progressed with the help of medications.
Because of services in place now, he can get medication, he can get treatment, she said. If he cant get medications and treatment, its just my worst fear that he will end up being someone on the street, she said.
John Whitbeck, chairman of the Republican Party of Virginia, said in a statement Thursday that the Senate bill isnt perfect, but that it is an important step on the road to Obamacare repeal.
Anyone remotely familiar with health insurance knows just how badly broken Obamacare is, he said. In Virginia, premiums have gone up 77 percent since 2013.
Posted: June 19, 2017 at 5:45 pm
Researchers conclude that electroacupuncture plus moxibustion increases the clinical effective rate of physiotherapy for the treatment of infantile cerebral palsy. Binzhou City Traditional Chinese Medicine Hospital researchers combined Traditional Chinese Medicine (TCM) therapy (i.e., electroacupuncture and moxibustion) with standard physiotherapy. Patients receiving both TCM care and physiotherapy in a combined treatment protocol had superior patient outcomes compared with patients receiving only physiotherapy. The physiotherapy control group achieved a total effective rate of 78.9%. The TCM care plus physiotherapy treatment group achieved a total effective rate of 92.9%. The addition of TCM care to physiotherapy increases the total effective rate by 14%. Lets take a look at the results.
The study design was as follows. The investigation involved the selection of 80 patients who received acupuncture and physiotherapy treatment at the acupuncture department of the Binzhou City TCM Hospital. Patients were randomly assigned to a treatment group and a control group. The treatment group had 42 patients, and the control group had 38 patients. Both groups received identical physiotherapy. The treatment group received acupuncture and moxibustion therapy in addition to physiotherapy.
The statistical breakdown for each randomized group was as follows. The treatment group was comprised of 31 males and 11 females, with an average age of 4 (2) years. The control group was comprised of 29 males and 9 females, with an average age of 5 (2) years. The patients from both groups were comparable as there were no significant differences in terms of their gender and age relevant to patient outcome measures prior to beginning the investigation.
Both patient groups underwent identical physiotherapy regimens. A 1 2 hour physiotherapy session was conducted once daily for 5 consecutive days, followed by 2 break days. In total, physiotherapy was administered for 6 months.
The treatment group also underwent scalp and body style acupuncture, electroacupuncture, and moxibustion. Scalp acupuncture for the treatment group was administered on the following lines:
The body style acupoints for the treatment group were the following:
For scalp acupuncture, treatment began with patients resting in the supine or sitting position. Upon disinfection, a 0.25 mm x 25 mm filiform acupuncture needle was inserted obliquely along each selected line and was manipulated with the Ping Bu Ping Xie (attenuating and tonifying) technique. After elicitation of a deqi sensation, the acupuncture needles were connected to an electroacupuncture device. A disperse-dense wave was applied with an intensity level set to patient tolerance levels or until muscle contractions were observable. The needles were retained for 30 minutes for each acupuncture session.
For body style acupuncture, treatments began with patients resting in the supine or sitting position. Upon disinfection, a 0.25 mm x 25 mm filiform acupuncture needle was inserted perpendicularly into each selected acupoint and manipulated first with the attenuating (lifting and thrusting) technique and then with the tonifying-rotating technique. After elicitation of a deqi sensation, a 15 25 minute needle retention time was observed. The moxibustion acupoints for the treatment group were the following:
Between 2 3 of the total 7 acupoints were selected randomly for moxibustion treatment. Long moxa sticks were ignited and held 2 3 cm above each selected acupoint. Moxa was left in place until the local skin showed initial signs of redness, this is approximately at the 5 10 minute marker. Acupuncture plus moxa treatments were administered once daily for 5 consecutive days, followed by 2 break days. In total, the treatment was conducted for 6 months.
The patients general status were scored before and after treatments. In addition, all patients underwent Gross Motor Function Measure (GMFM) assessment before and after their treatments. The GMFM is a clinical tool designed to evaluate changes in gross motor function in children with cerebral palsy. After treatment, the treatment efficacy for each patient was categorized into 1 of 4 tiers:
The researchers compared results. The treatment group significantly produced greater positive patient outcomes than the control group. The total effective rate for the control group that received physiotherapy as a standalone therapy was 78.9%. The total effective rate for the treatment group receiving a combination of physiotherapy and TCM care was 92.9%. The addition of TCM care to physiotherapy increases the total effective rate by 14%. Based on the clinical outcomes, the researchers conclude that physiotherapy combined with electroacupuncture and moxa is superior to using physiotherapy as a standalone procedure.
In Traditional Chinese Medicine, infantile cerebral palsy falls under the following class of disorders: Wuchi (translated as the five slownesses), Wuruan (translated as the five softs), or Wuying (translated as the five stiffnesses). Wuchi is caused by inherent insufficiency of essence and blood, especially insufficiency of kidney jing-essence. Wuruan is caused by inherent qi deficiency of zang-fu organs and kidney jing-essence insufficiency. Wuying is also caused by kidney jing-essence insufficiency. In infantile cerebral palsy, kidney jing-essence insufficiency leads to qi and blood deficiency, malnourishment of the seven orifices on the head, and lack of clarity of the spirit-mind.
The researchers also provide insight into TCM treatment principles based on the aforementioned understanding of infantile cerebral palsy. The focus of treatment is upon three aspects. First, scalp acupuncture opens the seven orifices, stimulates the brain, and benefits the spirit-mind. Second, body acupuncture on kidney related acupoints benefits the kidneys, replenishes jing-essence, and tonifies kidney qi. Third, body acupuncture on yangming meridians and other local areas resolves tetany and relieves pain. Electric stimulation and moxibustion were also used in the study as a supplement to manual acupuncture treatment. Moxibustion warms and frees the meridians, disperses stasis, and strengthens the muscles. Electric stimulation activates the repair and regrowth of nerve cells.
In a related clinical study conducted at the Neijiang Second Peoples Hospital, Xie and Lu conclude that acupuncture and massotherapy significantly alleviates drooling and improves quality of life scores for cerebral palsy patients. Xie and Lu conclude that cerebral palsy patients treated with acupuncture and massotherapy had significantly greater positive patient outcomes than patients receiving neither acupuncture nor massotherapy. Patients receiving acupuncture and massotherapy had less drooling and demonstrated significant improvements in fine motor movements, adaptive behavior, and social behavior compared with the control group. Acupuncture plus massotherapy patients also demonstrated the ability to consume meals independently better than the control group. The results indicate that acupuncture is an effective adjunct form of medical care for patients with cerebral palsy.
References Jiao YX et al. Therapeutic Observation of Electroacupuncture plus Moxibustion for Infantile Cerebral Palsy [J], Shanghai Journal of Acupuncture and Moxibustion, 2017, (05):525 528.
Xie AS & Liu LX. (2015). Clinical Observations on Acupuncture and Massotherapy for Cerebral Palsy-salivation. Shanghai Journal of Acupuncture and Moxibustion. 34(6).
Li SQ. (2015). Clinical Observation on Acupuncture Combined with Rehabilitation Training for Treatment of Infantile Cerebral Palsy. Chinese Journal of Integrative Medicine on Cardio/Cerebrovascular Disease. 13(2).
Wang X, Du YH & Xiong J. (2011). Acupuncture and rehabilitation training in treating infantile cerebral palsy. 38(3): 408-413.
FDA Expands Dysport’s Approval for Treatment of Lower Limb Spasticity in Adults – Multiple Sclerosis News Today
Posted: at 5:45 pm
Posted: June 15, 2017 at 1:46 pm
Yet another botched birth at a state hospital has cost the Gauteng health MEC more than R17.8 million.
In terms of a settlement reached in the High Court in Pretoria this week, the MEC agreed to compensate Bushbuckridge mother Rosalina Mucavele for the damages sustained by her son, Bennett, who suffers from severe cerebral palsy after botched treatment and a Caesarean section gone wrong at the Tambo Memorial Hospital in Boksburg six years ago.
The hospital claimed Mucavele was to blame for her sons brain damage because of her alleged use of a toxic herbal medicine, Isihlambezo, but she denied using the medicine.
The court ruled in 2015 that the MEC was 100% liable for Bennetts damages and that the hospital could not prove that the herbal medicine had caused the childs brain damage.
Mucavele testified that she was made to wait for three hours without anyone attending to her at the hospital and she and the doctor could not communicate because they did not speak the same language.
A nurse later told her she could not give natural birth because she had taken traditional medicine and she had to go to theatre.
She could immediately see something was wrong with her baby after his birth as he showed no signs of life but no one wanted to tell her what was wrong.
The court accepted expert evidence that the admission process had taken too long, that the babys distress should have been picked up earlier and that a senior doctor should have been called in much earlier to do an emergency C-section.
The DAs Jack Bloom said in May the Gauteng health department had paid out more than R1 billion to settle 185 medical negligence cases since January 2015, and that 51 more claims, totalling over R14.4 million, were pending.
He said brain-damaged babies made up 76% of the claims paid out, which amounted to R769 million for 50 claimants.
Most of the claims came from the Chris Hani Baragwanath Hospital, followed by the Steve Biko Hospital.
The departments annual report for 2016/17 set aside R13.4 billion for potential medical negligence claims. Bennett will need specialised medical treatment, therapy, equipment and full-time care for the rest of his life.
Posted: June 14, 2017 at 9:47 am
Arielle Levin Becker / CTMirror.org
Medical marijuana products available for sale at Prime Wellness, a dispensary in South Windsor.
The recreational marijuana debate is tabled for now, but 18,000 Connecticut residents are using the drug to help with specific debilitating medical conditions.
Medical marijuana was legalized in May of 2012 and put into practice in September of 2014. In the five years since its legalization, the number of dispensaries grew from six to nine. The number of patients in Connecticut now stands over 18,000. Regulations expanded to allow minors with certain serious illnesses to use medical marijuana. St. Francis Hospital and Medical Center began testing the drug as an alternative to opioids.
Connecticut Drug Control Division director Rod Marriott said the program is well-received by patients. Its always great to hear about a patient thats using a product from medical marijuana in Connecticut thats helping them to have a better quality of life, Marriott said.
Among the 22 qualifying conditions are cancer, glaucoma, HIV/AIDS, Parkinsons, multiple sclerosis, epilepsy, post-traumatic stress disorder, cerebral palsy and cystic fibrosis. Marriott estimates about 7,000 new patients are added each year.
Its difficult to determine how the number of patients in Connecticut stacks up against that in other states because programs and qualifying conditions vary widely across the country.
Initially, six dispensaries were approved by the state and established in Hartford, Branford, Bethel, South Windsor, Bristol and the Uncasville section of Montville. In 2016, two more dispensaries were added in Milford and one in Waterbury to meet higher demand in Fairfield and New Haven counties.
Connecticut is the only state that offers medical marijuana as treatment for cystic fibrosis, cerebral palsy, psoriasis and psoriatic arthritis and post-laminectomy syndrome. Cystic fibrosis and cerebral palsy are on the short list of qualifying conditions for minors in the state.
Connecticut is one of only three states that doesnt list chronic or severe pain as a qualifying condition, along with Illinois and New Hampshire. Connecticut and New Hampshire each list around 20 qualifying conditions and Illinois lists about 40.
The Department of Consumer Protections (DCP) Board of Physicians recommended seven new conditions this year, including spasms or pain from fibromyalgia, rheumatoid arthritis, postherpetic neuralgia, muscular dystrophy, migraines, hydrocephalus with headaches and trigeminal neuralgia. The board also has recommended that muscular dystrophy be added to the list of conditions for minors.
Medical marijuana patients, current and prospective, are encouraged to attend Board of Physicians meetings and testify about their experience with medical marijuana or their wishes to have a condition added. The Board of Physicians makes recommendations, which then pass through the states Office of the Attorney General and theRegulation Review Committee of the General Assembly.
Marriott also noted that the state classifies marijuana as a Schedule II drug, at odds with the more-restrictive federal Schedule I classification.
While many states regulate medical marijuana through their public health departments, the DCPregulates medical marijuana in Connecticut. DCP communications director Lora Rae Anderson said while other states regulate medical marijuana as they would liquor, the DCP wants marijuana to be seen as a pharmaceutical drug. We want to make sure that medical marijuana is treated just like any other prescription drug, Anderson said.
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18000 now use medical marijuana in CT – The CT Mirror