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Category Archives: Cerebral Palsy

Poet With Cerebral Palsy Speaks To Early Eugenics Movement – NPR – NPR

Posted: August 15, 2017 at 1:44 pm

In her book The Virginia State Colony For Epileptics And Feebleminded, poet Molly McCully Brown explores themes of disability, eugenics and faith. Kristin Teston/Persea hide caption

In her book The Virginia State Colony For Epileptics And Feebleminded, poet Molly McCully Brown explores themes of disability, eugenics and faith.

Growing up in southwestern Virginia in recent decades, poet Molly McCully Brown often passed by a state institution in Amherst County that was once known as the “Virginia State Colony for Epileptics and Feebleminded.”

Since 1983 the facility, which was founded in 1910, has been called the Central Virginia Training Center, and it is now a residential home for people with various intellectual disabilities. But in the early 20th century, the place Brown now refers to as “the colony” was part of the eugenics movement taking hold in the U.S., and a variety of treatments now considered inhumane were practiced there including forced sterilization. Brown, who has cerebral palsy, notes that had she been born in an earlier era, she might have been sent to live at the institution herself.

“It is impossible to know that for sure,” she says. “I can look at my life and look at my family and look at my parents and think, No, never. That never would have happened. But I also understand that if I had been born 50 years earlier, the climate was very different.”

She hopes to give voice to those early generations of residents, in her book of poetry, The Virginia State Colony For Epileptics And Feebleminded.

For Brown, the themes of disability and poetry have been constant throughout her life: “In my life, there has always been my body in some state of falling apart or disrepair or attempting to be fixed, and there has always been poetry. And I couldn’t untwine those things if I tried.”

Interview Highlights

On seeing the buildings and grounds of the old facility

It was incredibly moving and incredibly powerful. The place is interesting because it is still an operational facility for adults with really serious disabilities, although it is in the process of closing. But like a lot of things in Virginia, it was initially built on an enormous amount of land. And, so, a really interesting thing happened, which is that as the buildings that were originally part of the colony fell into disrepair, they were largely just moved out of and new buildings were built on accompanying land, but those original buildings were not necessarily torn down. So the place itself is this really strange combination of functioning facility and ghost town of everything that it has been. I’ve never been in a place that felt more acutely haunted in my life.

On how some people assume her physical disability means she also has an intellectual disability

We do have a strange tendency in this country to equate any kind of disability with less intellectual capability and with even a less complete humanity. Certainly as a child and as a teenager and even now as an adult [I] encountered people who assumed that just because I used a wheelchair, maybe I couldn’t even speak to them. I often get questions directed at people I’m with, as opposed to me, and that’s a really interesting phenomenon.

On the connection between poetry and theology

Both poetry and theology for me are about paying attention to the world in a very intentional way, and about admitting a mystery that is bigger than anything that I rationally understand. … I think poetry has always been for me a kind of prayer. So those things feel very linked for me. And, again, poetry does feel like the first and in some ways best language I ever had for mystery and for my sense of what exists beyond the world we’re currently living in.

On how Catholicism has helped her accept her body

One of the things that I find so moving about Catholicism is that it never forgets that to be a person is inherently and inescapably and necessarily to be in a body a body that brings you pain, a body that brings you pleasure, a body that can be a barrier to thinking more completely about your life and your soul but [that it] can also be a vehicle to delivering you into better communion with the world, with other people and to whatever divinity it is that you believe in.

What Catholicism did for me, in part, is give me a framework in which to understand my body as not an accident or a punishment or a mistake, but as the body that I am meant to have and that is constitutive of so much of who I am and what I’ve done and what I hope I will do in the world.

More and more … I’ve come to see my body as a place of pride and potential, and as something that gives me a unique outlook onto the world. And I’d rather that, I guess, than be infuriated by it.

On her twin sister, who died shortly after birth

She lived about 36 hours after we were born. … It’s a phenomenon in my life that I have not a lot of rational explanation for, … but it is true that I miss my sister with a kind of intense specificity that has no rational explanation, and that I feel aware of her presence in this way that I can’t exactly explain or articulate, but which feels undeniable to me. …

I do think that that sort of gave me no other option than to believe in some kind of something beyond this current mortal life that we’re living. Because what is the explanation otherwise for the fact that I feel like I miss and I know this person who only lived a matter of hours? And for the fact as much as I know that she is dead and is gone in a real way, she doesn’t feel “disappeared” to me.

On how her physical disability and her poetry are intertwined

I think the easiest way I have of describing it is I have two [early] memories. … One of them is of sitting on a table in a hospital room in the children’s hospital in St. Louis, choosing the flavor of the anesthetic gas I was going to breathe when they put me under to do my first major surgery. I was picking between cherry and butterscotch and grape. And the second memory that I have is of my father reading a Robert Hayden poem called “Those Winter Sundays.”

Roberta Shorrock and Therese Madden produced and edited this interview for broadcast. Bridget Bentz, Molly Seavy-Nesper and Deborah Franklin adapted it for the Web.

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Young girl with cerebral palsy has mode of transportation stolen … – BarrieToday

Posted: at 1:44 pm

NEWS RELEASE

BARRIE POLICE SERVICE

*************************UpdateTuesday, August 15, 2017

The Barrie Police Service has received numerous e-mails, direct messages and telephone calls from the residents of Barrie and the Greater Toronto Area, all wishing to purchase the victim a new ride-on toy car.

With the assistance of social media and our media partners Toys R Us has offered to purchase a new ride-on toy for the little girl. The family is overwhelmed by the generosity and would like to thank everyone.

The investigation is ongoing.

Original release

The Barrie Police Service is seeking the publics assistance to find and return a ride-on toy car that belongs to a 10-year-old girl with cerebral palsy.

The toy car was stolen from outside a home on Bourbon Circle, Sunday night at 11:30 p.m. A witness reported seeing a male and a young boy drag the toy car away from the side of the home and onto the sidewalk. The child was then observed getting into the toy car and driving it away as the male followed.

Any theft is unacceptable, and in this particular incident this theft leaves a 10-year-old girl with limited mobility. The car is not just a toy, it has become a mode of transportation for the 10-year-old girl when outside playing with her family and friends.

The suspect is described as;

Anyone with information is asked to contact Constable Graber of the Barrie Police Serviceat 705-725-7025, ext. 2753,[email protected] call Crime Stoppers at 1-800-222-TIPS, leave an anonymous tip online atwww.tipsubmit.com.

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Eight-year-old Elvis Presley fan with cerebral palsy enjoys ‘absolutely fantastic’ holiday to home of his hero – Lancashire Telegraph

Posted: at 1:44 pm

AN eight-year-old avid Elvis Presley fan with cerebral palsy was ‘all shook up’ after having a holiday at the home of his hero.

Blackburn’s Samuel Hosker has been on an ‘absolutely fantastic’ weeklong trip to Graceland, the former home of Elvis Presley in Memphis, Tennessee.

An anonymous businessman paid for the child and his parents to enjoy the trip, who heard about Samuel’s love of Elvis after his parents set up a now completed campaign to raise 30,000 for surgery not available on the NHS.

The family even got to enjoy an extra day in America after a flight mix up meant they had an extra days stay paid for.

Mother Michelle Hosker, 39, said their stay at the Guest House Hotel, which was located on the Graceland Estate, was ‘amazing’ for all of them.

She said: “It was absolutely fantastic.

“Samuel absolutely loved every minute of it.

“He was singing along to all the songs.

“Memphis is just Elvis mad, there is Elvis everywhere.

“It was just perfect for Samuel, it was a dream come true.”

More than 60,000 has been raised in total for Samuel, who will now undergo an operation in September which will prevent him being wheelchair bound.

That fund also included a donation from the mystery benefactor who paid for Samuel’s trip of a life time.

Highlights of the holiday included taking a the Elvis Presley Tour, walking round his old mansion, signing his name on the at the site and visiting where he was buried.

They also got to see his old ‘Lisa Marie Plane’ and ‘Hound Dog’ jet on the trip.

The family also went on a tour of Memphis, which included trips to Elvis’ home, the zoo, the famous BB King Blue Club and the site where Martin Luther King was shot.

Samuel also got the chance to visit Marlowe’s Restaurant, which was adorned with a variety of music memorabilia, and he arrived in style in a pink Cadillac.

Another highlight of the trip for both parents and child was a trip to Beale Street, which featured venues full of soul and blues music.

The family said Samuel is already planning to go again.

Mrs Hosker said: “We keep thinking about how great it was, it is a bit of a comedown after.

“Samuel wants to go again in a few years and is asking if we can save up.

“We just can’t thank the person enough for ending us there, words just aren’t enough.”

Samuel will be having his spinal dorsal rhizotomy surgery on September 21 at Alder Hey Childrens Hospital in Liverpool.

Following surgery, Samuel, a pupil at St Peters RC Primary School, will have to undergo two years of intensive physiotherapy.

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Eight-year-old Elvis Presley fan with cerebral palsy enjoys ‘absolutely fantastic’ holiday to home of his hero – Lancashire Telegraph

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Tips for Being an Excellent Teacher to Students With Disabilities – Cerebral Palsy News Today

Posted: at 1:44 pm

As the summer closes, our attention turns toward school. School bags, pencils, crayons and other school supplies are at the forefront of parents and students minds. When the student has a disability, however, there are many other aspects to think through and be prepared to handle. If you are a teacher with a student who has a disability, there are many suggestions that you can use not only to make you a successful teacher, but also help your student be more comfortable and ready to learn.

The first step on your to-do list is to research the disability of the student. I sat through an entire individualized education plan (IEP) meeting once, and the mainstream teacher continued to say that the student had multiple sclerosis instead of cerebral palsy. Please avoid this embarrassment and do research. As you research, keep in mind that each student is an individual. So, you might know the facts about the disability, but each disability affects the person in unique ways.

If your student uses a wheelchair or mobility device, it might be tempting to have him or her sit in the very front of class. Now its your time to be creative. Students who have disabilities do not want to stand out anymore than they already feel they do. If you seat students by alphabetical order, then think about how you can do that for disabled students as well. If you cant put them in the middle of the classroom, at least put them on the end of the row in the middle or back. Consider various desk layouts, such as a horseshoe placement.

Try to set your mind not to place any limits on the student. If you have in your mind that students cant succeed, then you arent going to teach them in the way they deserve. Set no limits on your students and they will soar. Be realistic without setting any limitations that will hurt or hinder them. If students think a teacher believes in them, all kinds of terrific things will happen.

If your student has a speech impediment, you might feel the need to ignore him or her because its easier on both of you. But for all students there will be a time when they will not be in the safety of the school and they will need to communicate with others. Practicing communication is a benefit, as is discovering the best methods for them to communicate. Do not allow other students to make fun of how someone talks. We all communicate differently, and that needs to be respected.

Be prepared to adapt to the student. I was a very good algebra student, even though I had to dictate everything to my aide. My teacher knew I knew the material, so for the final exam, he gave me five different problems that covered everything he was looking for instead of insisting I do the full 30-question test that would take me hours to dictate.

Wonderful teachers have similar qualities. They care, learn, seek solutions and want children to succeed. Try putting yourself in the shoes of the student. What kind of teacher would you want to have?

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Note:Cerebral Palsy News Todayis strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician orother qualified health providerwith any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofCerebral Palsy News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to cerebral palsy.

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Tim Tebow joins fan with cerebral palsy as she sings ‘God Bless America’ – Fox News

Posted: at 1:44 pm

Tim Tebow had another heartwarming moment Saturday, joining a fan with cerebral palsy as she sang “God Bless America.”

Tebow, who plays for the St. Lucie Mets, a minor league baseball team affiliated with the New York Mets, joined the fan during a game against the Tampa Yankees.

“Moment of the night: fan w/ cerebral palsy sings God Bless America and asked Tebow to join her. This is what it’s all about,” Jason Woodell tweeted.

While Tebow didn’t join her in her rendition, his presence beside her was apparently all she needed.

Tebow’s latest act of kindness comesafter a video went viralshowing the ex-NFL quarterback forsaking practice swings prior to an at-bat to shake an autistic boys hand — and followed it up with a monster three-run home run.

Tebows three-run homer on July 29 lifted the St. Lucie Mets to a 10-3 victory over the Charlotte Stone Crabs.

Tebow is hitting .238 with a .305 on-base percentage and five home runs for St. Lucie. He’s hit eight home runs with two teams this season.

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Little boy with Cerebral Palsy appeals for help for 100000 operation to get ‘new legs’ – ITV News

Posted: August 12, 2017 at 10:44 pm

A family from Garndiffaith in Torfaen are appealing for help to raise enough money to fund an operation for their little boy.

Lincoln Hope is five and has Cerebral Palsy. His particular condition might be helped with surgery, but isn’t currently available in the UK. So his family are trying to raise enough money for an operation in the USA known as Selective Dorsal Rhizotomy (SDR).

As many children with Cerebral Palsy get older, the effects on the body are quite severe. As the bones grow everything tightens up and they start to get deformities in their bones and joints so the operation is really more for going forward for the future really so he doesn’t end up in a wheelchair or severe mobility issues as he’s getting older.”

Jess Hope, Lincoln’s mum

On September 9 a fundraising night of comedy will be held at St David’s Hall with comedians Frankie Boyle and Francesca Martinez. All proceeds will go towards the Lincoln’s Legs appeal.

Last year the Welsh Government did fund 14 patients to receive that specialist SDR surgery – and are currently evaluating the programme, which they are running alongside the NHS in England.

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Little boy with Cerebral Palsy appeals for help for 100000 operation to get ‘new legs’ – ITV News

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Mother of cerebral palsy child establishes Inclusive Educational Centre – Ghana News Agency

Posted: at 10:44 pm

Accra, Aug. 12, GNA -Mrs Ellen Affam-Dadzie, a mother of a seven-year old girl with cerebral palsy,has established an Inclusive Educational Centre to cater for children withspecial needs and offer the parents the opportunity to work and earn an income.

The Centre; With GodCerebral Palsy Ghana, also offers physiotherapy services and provides qualitycare for children with cerebral palsy for free.

Mrs Affam-Dadzie, inan interview with the media, said she knew how stressful and frustrating it wasto have a child with the condition and decided to offer support to enablemothers of such children to earn an income.

I do not believe thatany family or person should become poor simply because they had a child withcerebral palsy. The mothers inability to work, among other factors, is whatcauses many families to kill these children or even wish their children dead,she said.

Mrs Affam-Dadzie saidsince government was not doing much to support families of such children, shedecided to start the Centre as her contribution towards reducing their burden.

She said the Centrealso gave the children with special needs an opportunity to mingle with otherchildren, adding; We are practicing inclusion.

Mrs Affam-Dadziecalled on the Government to ensure that the inclusive education policy embracedmajority of children with cerebral palsy, if not all.

She said the very fewschools in Ghana that admitted children with the condition were very expensive,which many parents could not afford.

We also intend to setthe mothers up in small enterprises so we train the unemployed mothers in soap,beads, batik and tie and dye making among other things, and we hope thatcorporate organisations will come on board to help us enhance the lives offamilies with children who have cerebral palsy, she said.

Mrs Hannah Awadzi,Initiator of the Special Mothers Project, lauded the initiative saying; Thisis what the project is looking for; we need mothers to take up the fight forservices and do something to help children with cerebral palsy.

She called on theGovernment, corporate organisations and volunteers; both home and abroad, tosupport the Centre to make it viable.

GNA

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Kyle Miller: Golfer with cerebral palsy plays PGA Tour-sanctioned event – CNN

Posted: August 11, 2017 at 7:44 pm

Should he win the USPGA Championship at the North Carolina course, the 24-year-old will become the youngest man in history to complete the career grand slam.

More than 2,000 miles north, just across the Canadian border, fewer TV cameras and spectators are at the Country Hills Golf Club, Calgary — but PGA Tour history has already been made nonetheless.

When Kyle Miller took to the first tee of the ATB Financial Classic on Thursday, he became the first person diagnosed with cerebral palsy to play in a PGA Tour-sanctioned event.

Thanks to a sponsors’ exemption, which has been earned through years of hard work, charity fundraising and sheer determination, Miller has realized a lifelong dream — and one that he was told not to reach for.

“It’s amazing,” a delighted Miller told CNN. “You know when you see your name on the PGA Tour app or the PGA Tour website and you’re reading the storylines … you realize your dreams are coming true.”

“And how many times I’ve read through those articles or looked at those tee times and seen guys that I knew.

“I’ve been able to teach and inspire countless people with disabilities that achieving your dream is possible, regardless of what people tell you.”

Golf-obsessed

Miller’s road to reach the top has been painful, grueling and fraught with obstacles. Since being diagnosed with cerebral palsy, the 26-year-old has undergone 14 separate surgeries related to his condition.

The Canadian says he has been golf-obsessed “ever since I can remember” and was practicing every day by the time he was eight.

Though, due to the cerebral palsy, doubts remained as to whether he would ever be able to take his passion further than practice rounds and driving ranges.

“Let’s be honest, I have one good side and it’s a very difficult a sport,” Miller said. “You see there are mechanics that are involved, hand-eye coordination.

“There are a lot of things that as an athlete I actually posses quite well, it’s just I only have one good side to a certain extent.”

As the years went by, however, and Miller entered adulthood, his weaker, left side became stronger, healthier and much more active.

Over the last year in particular, he says, he’s picked up a lot of distance in his game, something he describes as “slow progression, late blooming.”

Miller’s skill and perseverance has seen him become a member of the PGA of Canada and a qualified coach at GOLFTEC Calgary Midnapore, a club he has given hundreds of lessons at since he became an instructor in 2014.

Making the cut

His aim at the ATB Financial Classic is to make the cut, though he says a hectic week of media interviews, continual fundraising and practicing hasn’t allowed him to think about potential celebrations.

“Right now, I’m just keeping one foot in front of the other,” he says matter-of-factly. “It’s all one thing at a time.”

Having “worked his tail off” playing on the Canadian tour for many years and, more recently, coaching and traveling with a tour professional, Miller is confident there isn’t anything that can surprise him.

“My experiential knowledge of traveling and handling a lot of stuff on the plate is pretty high, as far as a golf tournament goes,” he says with an air of confidence.

“One thing I do have to remind myself is I don’t have to make it more complicated that it is.

“You know, I’ve prepared for a lot of golf tournaments, I have good support around me and now it’s just to really go and enjoy it. It’s something that hasn’t been done before.”

Charity work

While making the cut would represent some personal glory, whenever Miller takes the course he is never playing for himself.

“I’m doing a lot of effort on my part to raise money,” he says. “Any tournament I ever play, I’m gonna be raising money for charity, right? That’s part of the program.

“I have to do something, I am a pioneer in this concept now and I’m going to hold that strong. So I have to do it properly and that’s what I’ll do my entire career.”

Miller believes golf is “excelling” with its charity work and disability equality.

He says he has always admired the amount of money PGA Tour-sanctioned events have raised and believes other sports should follow suit.

Beating the odds

The chances of a young golfer making it to the professional ranks are slim — making Miller’s achievement even more remarkable.

“I’ve slipped the odds in life because at a young age I was dealt bad cards, hard cards to make a success out of,” he says defiantly.

“I had a lot of people looking at me with sympathy. I had a lot of people looking at me telling not to dream too big just in case it didn’t work out. You know what I’m saying?

“I knew very early on that I was going to have to create these cards into one of the greatest success stories.”

When the scratch golfer steps up and strikes the ball off the first tee, officially becoming part of the PGA Tour, Miller’s story will have come full circle.

Every year for the past 34 years, the PGA Tour has hosted the Shriners Hospitals for Children Open, the same chain of hospitals at which Miller underwent the 14 surgeries that have today allowed him to compete.

“What are the odds of that?”

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Battling cerebral palsy, Boyd finds his drive at the gym (VIDEO) – Sentinel & Enterprise

Posted: at 7:44 pm

Despite having cerebral palsy, Dwayne Boyd decided he wanted to start going to the gym for the first time at the age of 46 and began working out at Planet Fitness in Leominster. SENTINEL & ENTERPRISE/JOHN LOVE

LEOMINSTER — One of the first things you notice about Dwayne Boyd is his handshake: a bone-cracking grip not unlike the animated hand of a stone statue.

Another thing you will notice are the crutches those vice-like hands are clasped to.

“What people don’t know is that I’m actually quadriplegic. My arms aren’t affected as badly, but they are,” he said.

Of Leominster’s roughly 40,000 residents, Boyd has one of the best excuses not to go to the gym. Diagnosed with cerebral palsy when he was just 6 months old, Boyd relies on his crutches to get around and also experiences limited mobility in his arms.

He decided to join Leominster’s Planet Fitness in 2015, at the age of 44.

Dwayne Boyd began going to the gym for the first time at the age of 44. Despite having cerebral palsy, Boyd is a regular at Planet Fitness in Leominster. SENTINEL & ENTERPRISE PHOTO/JOHN LOVE

Although he had lifted weights in high school and college, it had been years since Boyd had incorporated exercise into his regular daily routine.

“What really kicked me in the butt to get in here was a pretty sad situation,” Boyd explained.

Right around the same time his mother was starting to experience symptoms of small vessel disease, a condition Boyd likens to Alzheimer’s Disease, Boyd was separating from his wife, eventually leading the couple to a divorce.

“I had a lot coming down at me all at once and I just needed to do something positive,” he said.

Gym manager Erin Hillman has worked alongside Boyd during much of his time at the gym and still remembers the day in April 2015 when he first came in to sign up for a membership.

“I remember him seeing that it would work for him. How excited he was that he could start here was just so motivating for me, our staff, and even members of the gym,” she said.

Hillman said that Boyd is among the gym’s most popular members and that his progress from only being able to use a handful of the gym’s exercise equipment to having mastered a variety of workouts continuously motivates his fellow athletes.

“A lot of people who might not have a visible disability will come up to me and confide in me.

As he gets older, Boyd said cerebral palsy does seem to make him a little more aware of his body’s age. His joints creek a little louder and he sometimes feels a little slower, but the best way of keeping aging at bay is by staying active. Boyd works out three times a week and isn’t showing and signs of slowing down.

Though he recognizes that there are lots of reasons why people might not go to the gym, he does have this advice to those who don’t exercise: “You’ve got to use it or lose it.

Follow Peter Jasinski on Twitter @PeterJasinski53.

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Charity that supports Glaswegians with cerebral palsy awarded over 11000 – Glasgow Live

Posted: at 7:44 pm

Community project Bobath Scotland Cerebral Palsy Centre in Glasgow has been awarded a 11,770 grant from the Scottish Children’s Lottery.

Bobath Scotland offers advice, help and support to children and adults living with cerebral palsy, and their families.

Specialist therapy focuses on reducing pain, developing communication and mobility so children and adults with cerebral palsy can make the most of their own abilities and everyday life.

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Parents, siblings, teachers, local therapists and others learn how best to support and include each person.

Bobath Scotland supports anyone with a diagnosis of CP, regardless of their age or location, and endeavours to reach as many people as possible at their specialist centre in Glasgow, online, and in their own communities.

Stephanie Fraser , CEO of Bobath Scotland Cerebral Palsy Centre, said: Bobath Scotland is committed to helping everyone with cerebral palsy in Scotland live their lives to the full.

“This wonderful donation from The Scottish Childrens Lottery will enable young people with CP to take advantage of opportunities and the desire for a fulfilled, independent, adult life that their peers take for granted. Thank you. Your support changes lives.

“Chance to Connect supports projects working in the areas of community development and citizenship, giving young people across Scotland the chance to live in a safe, supportive and stimulating community.”

Jennifer Reoch , Scottish Childrens Lottery presenter, said: I am thrilled to present this cheque to Bobath Scotland Cerebral Palsy Centre from the monies generated from the Scottish Childrens Lottery which was established in order to promote and support the development and potential of children and young people in Scotland.

“Thank you to those who play the Scottish Childrens Lottery; you are helping to support the great work that this charity undertakes.

Charities that support children in Scotland can apply online for Scottish Childrens Lottery funding.

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