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Category Archives: Cerebral Palsy Treatment

Cord blood gives families hope

Posted: Published on March 14th, 2013

When a baby is born, medical professionals routinely throw away a sick child's potential lifeline. Dr. Hugh Miller of Obstetrix Medical Group, 5301 E. Grant Road, is working to establish the upside of storing umbilical cord blood, which contains stem cells that doctors may someday be able to use to heal a variety of medical conditions. Miller, Cord Blood Registry and the Save the Cord Foundation created the Newborn Possibilities Program. Cord Blood Registry processes and stores cord blood stem cells, for babies born after high-risk deliveries, for use in future treatments. Miller chose participants by establishing an algorithm to identify pregnant mothers whose fetuses were at risk of developing cerebral palsy and other neurological problems. Between 2009 and 2011, the program selected 1,200 babies. Cord Blood Registry pays for the cord blood collection, processing and storage in the registry's stem cell processing and storage facility. Costs can be prohibitive for parents who want to store cord blood. Banking costs about $2,000 initially, then between $100 and $200 a year. Marana resident Jessica Schaefer, whose 2-year-old son, Logan, is participating in the study, is eager to discover the treatment's potential. A subsequent study has been crucial for Schaefer, a 36-year-old … Continue reading

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Cerebral Palsy Family Network Launches Community Support Forum

Posted: Published on March 14th, 2013

The Cerebral Palsy Family Network has launched an online forum for parents of children with cerebral palsy to have conversations and share ideas to better the lives of their children. Austin, TX (PRWEB) March 14, 2013 The new online forum compliments our website and active social media presence, allowing community members to maintain ongoing discussions about raising a child with cerebral palsy, said Lee Vander Loop, CP Family Network Editor. We hope parents and caregivers will use the forum to share tips, ask questions, and provide support and encouragement to other parents, added Vander Loop. To participate in the discussion, visit cpfamilynetwork.org and click on the forum link on the home page. Before posting a question or comment, community members will need to create an account and check their email for a temporary password. Further instructions are available upon log-in. Once registered, members can contribute to existing conversations or start their own topics. Cerebral Palsy Family Network The Cerebral Palsy Family Network is a 501-C3 non-profit organization whose mission is to provide medical and legal resources to families and children with cerebral palsy. Among the resources it offers parents are the Cerebral Palsy Online Resource Directory, a free searchable database … Continue reading

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Miraculins to License Additional Preeclampsia Technology from Mount Sinai Hospital

Posted: Published on March 12th, 2013

WINNIPEG, MANITOBA--(Marketwire - Mar 11, 2013) - Miraculins Inc. (TSX VENTURE:MOM), a medical diagnostic company focused on acquiring, developing and commercializing diagnostic tests and risk assessment technologies for unmet clinical needs, announces today its plans to add to its suite of maternal health biomarkers under license from Mount Sinai Hospital''s Samuel Lunenfeld Research Institute by signing a term sheet to license methods and reagents for detecting hydroxylated Hypoxia Inducible Factor 1 alpha ("HIF-1aOH"), a promising biomarker with potential in differentiating high and low risk pregnancies, including risk of preeclampsia. The technology is part of the pioneering research on preeclampsia and placental development being conducted by Dr. Isabella Caniggia, Senior Investigator at the Samuel Lunenfeld Research Institute, in collaboration with Dr. Martin Post, a Senior Scientist at The Hospital for Sick Children. Dr. Caniggia is also a member of Miraculins'' Scientific Advisory Board and is cross-appointed at the University of Toronto as a Professor in Obstetrics and Gynecology as well as Physiology. In addition to its promise in maternal health and preeclampsia, HIF-1aOH also presents an opportunity as a cancer biomarker and of further note, the license will include unique monoclonal antibodies highly sensitive to HIF-1aOH and the exclusive rights to … Continue reading

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Poker Legend Yosh Nakano Launches RealHangoverRelief.com Website

Posted: Published on March 12th, 2013

LOS ANGELES, March 12, 2013 /PRNewswire/ --Veteran poker pro and 2006 CBC Intercontinental Poker Champion Yosh Nakano hosted a launch party for RealHangoverRelief.com to benefit the One Step Closer Foundation (http://www.1scf.com), a cerebral palsy charity. The party took place Feb. 21 at the Vintage Bar, adjacent to the L.A. hot spot Belasco Nightclub. In attendance were fellow poker veterans Marsha Waggoner, Robert Turner, Jon Mosero and Mort Silas, who at 90 plays poker six days a week. Other celebrities in attendance were poker players and TV personalities Maria Ho and Tiffany Michelle. Reality show teammates in the "Amazing Race," they each hold the distinction of being the "last woman standing" in the World Series of Poker Main Event in their respective years. Among the event's sponsors were Keepnit Reel Fishing & Poker Tournament, Waiakea Water, One Hope wines, Luna Malvada tequila, Friends of the Vine and "Gutshot Straight." Also sponsoring the event was Nakano's long-time friend and fellow poker enthusiast Dr. Jerry Buss, who died Feb. 18. With the memorial service for the owner of the Los Angeles Lakers still fresh in everyone's thoughts, Nakano says his first instinct was to reschedule the launch of RealHangoverRelief.com. "He was a visionary … Continue reading

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Generosity of parents who gave away £22,000 raised for their seriously ill daughter to help little boy they’ve never …

Posted: Published on March 7th, 2013

Abigail Williams, 7, suffers from Batten Disease, a fatal genetic disorder Her parents hoped money would pay for successful stem cell treatment But doctors say any procedure would be futile as condition is incurable So they have donated cash to Kyle Weaver, 3, for spinal operation in U.S. By Simon Tomlinson PUBLISHED: 06:37 EST, 6 March 2013 | UPDATED: 13:30 EST, 6 March 2013 A kindhearted couple have given away 22,500 raised for their seriously ill daughter to help a sick child they've never met after being told the money would not find a cure for their little girl. Kevin and Christine Williams hoped the cash would pay for successful stem cell treatment for seven-year-old Abigail, who suffers from a fatal genetic disease. But they have been told her condition is incurable and paying thousands for any further procedures would be futile. Overwhelming generosity: Christine Wililams (left) and her husband Kevin have given away 22,500 to help a boy to walk for the first time after being told the money wouldn't cure their daughter Abigail (right) For a new lease of life: The Williams family have donated the money to three-year-old Kyle Weaver (pictured) who they have never met so … Continue reading

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Data from First Clinical Trial of GGF2 in Heart Failure Presented at the American College of Cardiology 62nd Annual …

Posted: Published on March 7th, 2013

ARDSLEY, N.Y. & NASHVILLE, Tenn.--(BUSINESS WIRE)-- Acorda Therapeutics, Inc. (Nasdaq: ACOR) and collaborator Vanderbilt University Medical Center today announced data from a Phase 1 clinical trial of Glial Growth Factor 2 (GGF2) designed to study safety, tolerability and exploratory measures of efficacy in people with heart failure who were already on optimized regimens of currently available therapies. The study evaluated the effects of a range of doses, with each participant receiving a single dose. Data from this trial, which enrolled patients at Vanderbilt and St. Josephs Hospital in Atlanta, GA, are being presented on Sunday, March 10 at the American College of Cardiology 62nd Annual Scientific Session in San Francisco, CA. We have completed the first in human trial with GGF2 in patients with heart failure, and especially want to thank our patients who volunteered for this important study. We are very encouraged by the results, said Daniel Lenihan, M.D., Professor of Medicine and Director, Clinical Research at the Vanderbilt University Medical Center, Division of Cardiovascular Medicine. It is notable that trends of long-lasting and dose-related improvement in cardiac function were seen following a single dose in patients who were already optimized on standard therapies. GGF2 warrants further investigation as … Continue reading

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Ill daughter’s fund donated to boy

Posted: Published on March 7th, 2013

7 March 2013 Last updated at 06:51 ET Please turn on JavaScript. Media requires JavaScript to play. Kyle Weaver needs an operation in the US to help him walk A couple who raised money to help their seriously ill daughter are giving the money to another child after her condition was found to be incurable. Kevin and Christine Williams, of Conwy, collected 22,500 to pay for pioneering stem cell treatment for Abigail, seven. They have now given it to a three-year-old boy with cerebral palsy who lives 10 miles away, but they had never met. It will help Kyle Weaver, of Llysfaen, walk, and his parents say they are "astounded" by their generosity. We are shocked, astounded and amazed at the Williamses' generosity Mr Williams said: "It's not fair for us to have 22,500 sitting in a bank while hoping for a cure that may never come, while another little boy is sick and needs the money for an operation. "So we hope Kyle's family can make good use of the money." Go here to see the original: Ill daughter's fund donated to boy … Continue reading

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Parents of girl too ill for treatment give away £22,500 to another sick child

Posted: Published on March 7th, 2013

The Williams family, from Conwy, launched Abigails Fund after their daughter was diagnosed at the age of three with Batten disease, an inherited degenerative disorder which eventually leaves children blind, bedridden and mentally impaired, and can be fatal. Abigail underwent successful stem cell therapy in China in 2010, which led to a slight improvement of her symptoms, and her parents had hoped she could have further treatment in the US. But her incurable condition has worsened to the extent that Abigails parents have decided she is too poorly to travel abroad. Shes just not well enough unfortunately over the last 12 months Abigail has got a lot more poorly, said Mr Williams. We still owe a large debt of gratitude to the public for what they did for Abigail. Its Kyles money now his needs are more imminent than Abigails. Hopefully people who donated will understand. Mr Williams and his wife, 25, decided to donate the money to Kyle, even though they had never met him, after reading about an appeal by the boys parents for money to pay for treatment abroad, called Kyles Miracle Wish Fund. It means he will be able to fly to Missouri for an operation … Continue reading

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Metro Detroit Boy Undergoes Groundbreaking FDA Stem Cell Trial For Cerebral Palsy

Posted: Published on March 6th, 2013

byKathryn Larson WWJ Newsradio 950 Its a ground breaking new FDA trial. And a Metro Detroit boy is one of the first children in the world to participate in the procedure to treat his cerebral palsy with the use of cord blood stem cells. It takes a lot of love, but life in the Kijek house is full of joy, smiles and now hope. He has a contagious laugh and that smile. Hes a really cool kid. Hes in there. He wants to do all of those things. He loves snowmobiling he loves going on rides at amusement parks. Anything that little boys love, said Maureen Kijek. Meet Drew, his mom Maureen and dad Christopher. Each day, they care for their 11 year with old son. Drew suffers from cerebral palsy. The condition causes muscle spasms, tremors and the inability to voice his thoughts or even hold his head up. His brain and his muscles dont work together. The things that he wants to do he lacks the motor coordination for, explained Kijek. And that means life can be a challenge at times. Its like baby steps weve got to cross the Grand Canyon, but weve got to do it … Continue reading

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Cerebral Palsy ¦ Treatment and Symptoms – Video

Posted: Published on March 4th, 2013

Cerebral Palsy Treatment and Symptoms XXXXXX◄ Cerebral Palsy treatment mdash; Finding the right information about Cerebral Palsy treatment symptoms, is crucial to managing Cerebral Palsy. Learn more about the best current treatment for you.► XXXXXXX Website: http://www.MainMD.com Provides valuable health information, tools for managing your health, and support to those who seek information. You can trust that our content is timely and credible. Discussions http://www.MainMD.com YouTube: http://www.YouTube.com Facebook: http://www.Facebook.com Twitter: http://www.Twitter.com THIS VIDEO CAN NOT BE RE-UPLOADED OR USED IN ANY WAY WITHOUT WRITTEN PERMISSION FROM MAINMD PRODS -MainMD All Rights Reserved- By: MainMDcom … Continue reading

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