Having forged a resilience to every one of life's obstacles thrown in their way, parents Stacy and Jeff Fulkerson of Schaumburg are tireless activists for their son, James, and other people with severe disabilities.
The urn containing the cremains of their firstborn, Jackson, sits on a shelf in their living room. Their other child, James, born by emergency C-section on Aug. 29, 2009, spent two months in the neonatal intensive care unit after suffering an intrauterine stroke. Now 10 years old and never able to move his limbs, sit, talk or eat, James -- and his diligent parents -- cope with every issue he has because of a chromosome disorder, a blood-clotting disorder, quad cerebral palsy and severe epilepsy.
The family has supported James through shock treatments, suctioning, feeding tubes, 15 operations, and countless new medications and therapies.
The Fulkersons are revered in some communities for their relentless advocacy on behalf of James and kids in similar situations.
James, however, has been cruelly mocked on Facebook. The boy can't control his muscles, and his facial expression has him looking into space with his mouth open. One photograph posted online of James in his wheelchair was transformed into a horrible meme suggesting the child was in the throes of sexual gratification.
Another photo of James in his wheelchair was used by his parents online as a way to promote the philosophy, "Instead of 'don't stare,' let's start teaching 'SAY HELLO.'"
That led to a woman posting that photo with her question, "What's the hardest part of the vegetable to eat?" Her brother responded, "Umm the wheelchair I think," and then they both posted emojis of those smiley faces with tears of laughter.
Another online troll added a picture of a giant bird above James, dropping food into his mouth. One person suggested the Fulkersons were "selfish" for not aborting their son.
"Jesus. How about we put him out of his (expletive) misery," one man says about James.
The Fulkersons read all the comments, and wonder.
"How do you live with yourself being this cruel?" Stacy says.
"I get very angry," Jeff admits. "I have to put my phone down. This is my son you're talking about."
Family friends and members of the Friends of James Facebook page, lots and lots of them, tracked down the people who posted those awful comments.
"Being honest, we thought it was just a meme, we didn't understand it was someone's son," came one response. "We see a lot of stuff on Facebook, jokes, etc., however, joke or real life, I understand this is something that shouldn't be laughed about, and for that we are sorry! On behalf of me and my sister, if you could please show the child's parents, that it was not meant to be a cruel joke."
The Fulkersons say it's good to hear people say they are sorry, but the mocking shouldn't happen in the first place.
"It's a boy in a wheelchair," Jeff says. "How can you think that's not a real person?"
The internet is filled with photos people snap to make fun of people who look different.
Those who post feel emboldened to mock people for things beyond their control. They don't know James' story. The people who do know what he has endured rally around James, who is a very popular student in a District 54 school in Elk Grove Village. He doesn't deserve to be ridiculed.
"Nothing is simple for this kid," his mom says.
"We have to fight his battles for him," his dad says.
In the meantime, they take comfort in the way James connects with people in person and on the internet. The original photo of James in his wheelchair urging people to say hello has made its mark.
"It's been booming," Stacy says. "It's been seen by 15 million people."
The good trumps the bad.
- Cerebral Palsy: Diagnosis - May 7th, 2011 [May 7th, 2011]
- Cerebral palsy treatment NeuWellness - May 14th, 2011 [May 14th, 2011]
- cerebral palsy treatment in india-indian cerebral palsy video 1 - May 20th, 2011 [May 20th, 2011]
- CP Cerebral Palsy Acupuncture Treatment Research. www.thetole.org - May 24th, 2011 [May 24th, 2011]
- cerebral palsy treatment in india/dr vipul shah/ indian cerebral palsy - June 9th, 2011 [June 9th, 2011]
- cerebral palsy treatment in india/indian cerebral palsy/dr vipul shah/follow up - June 23rd, 2011 [June 23rd, 2011]
- TheraSuit treatment for Cerebral Palsy - July 3rd, 2011 [July 3rd, 2011]
- Stem cell treatment for Cerebral Palsy-Jerica Cole's post interview.avi - July 15th, 2011 [July 15th, 2011]
- Cerebral Palsy Treatment.... Hindi - August 19th, 2011 [August 19th, 2011]
- Stem Cell Treatment for Cerebral Palsy (Periventricular Leukomalacia) - August 21st, 2011 [August 21st, 2011]
- Stem Cell Treatment for Cerebral Palsy at the XCell-Center in Germany - August 25th, 2011 [August 25th, 2011]
- cerebral palsy treatment,lilou,essentis,therasuit,banana,spider,nazarov,guez - August 29th, 2011 [August 29th, 2011]
- cerebral palsy treatment,helena,essentis,therasuit,guez,spider,nazarov,guez - September 30th, 2011 [September 30th, 2011]
- walking before training lokomat for cerebral palsy treatment - September 30th, 2011 [September 30th, 2011]
- TheraSuit Therapy for Cerebral Palsy - Case 1 - October 2nd, 2011 [October 2nd, 2011]
- Cerebral palsy patient Atillia before stem cell treatment 2.wmv - October 10th, 2011 [October 10th, 2011]
- Stem cell treatment for Cerebral Palsy-Jerica Cole's pre interview.avi - October 11th, 2011 [October 11th, 2011]
- Stem Cell Treatment - Cerebral Palsy (2) - Video - October 16th, 2011 [October 16th, 2011]
- magic treatment for cerebral palsy -indian cerebral palsy treatment in india/delhi - Video - October 18th, 2011 [October 18th, 2011]
- Cerebral palsy patient Atillia after stem cell treatment 1.wmv - Video - October 19th, 2011 [October 19th, 2011]
- Cerebral Palsy: A new treatment: Part 1 - Video - October 21st, 2011 [October 21st, 2011]
- Cerebral Palsy Hyperbaric treatment in Margate Florida 954-975-3563 - Video - October 22nd, 2011 [October 22nd, 2011]
- Cerebral palsy patient Gabor after stem cell treatment 3.1.wmv - Video - October 29th, 2011 [October 29th, 2011]
- Stem Cell Treatment for Cerebral Palsy - Video - October 30th, 2011 [October 30th, 2011]
- Brian's Story: Dr. Huo's miraculous acupuncture treatment of Cerebral Palsy - Video - October 30th, 2011 [October 30th, 2011]
- Hyperbaric Oxygen Therapy Treatment for Cerebral Palsy - Video - November 1st, 2011 [November 1st, 2011]
- After Stem Cell Transplant treatment for Cerebral Palsy - Video - November 2nd, 2011 [November 2nd, 2011]
- indian cerebral palsy treatment-dr vipul shah - Video - November 6th, 2011 [November 6th, 2011]
- Stem Cell Therapy for Cerebral Palsy - Video - November 10th, 2011 [November 10th, 2011]
- Cerebral Palsy(CP) Scientific Treatment Research Center - Video - November 10th, 2011 [November 10th, 2011]
- Cerebral Palsy Treatment - November 17th, 2011 [November 17th, 2011]
- Stem Cells: Treatment for Cerebral Palsy - Video - December 10th, 2011 [December 10th, 2011]
- Stem Cell Therapy - Cerebral Palsy Treatment || Holly Catalano Update - Video - December 29th, 2011 [December 29th, 2011]
- Lasertherapy Bular - Treatment of Infantile Cerebral Palsy - Video - January 4th, 2012 [January 4th, 2012]
- Cerebral palsy patient Bianca after stem cell treatment 3.wmv - Video - January 4th, 2012 [January 4th, 2012]
- Cerebral Palsy Treatment by Dr.Babu Sudheendra Nath - Video - January 31st, 2012 [January 31st, 2012]
- The Methodist Hospital in Houston Is First to Offer New Device to Improve Walking - February 1st, 2012 [February 1st, 2012]
- Baby Logan inspires family to help - February 14th, 2012 [February 14th, 2012]
- Santi KM Bhagat: The 8 Million That Health Care Reform Forgot - February 14th, 2012 [February 14th, 2012]
- Ben's Bells: Patient grateful for Brownies' efforts - February 19th, 2012 [February 19th, 2012]
- Family’s appeal to improve care for disabled Jack, 3 - February 20th, 2012 [February 20th, 2012]
- Families, hospitals fighting Medicaid cuts - February 20th, 2012 [February 20th, 2012]
- Barrow family’s appeal to improve care for disabled Jack, 3 - February 20th, 2012 [February 20th, 2012]
- Earnings Beat for Acorda - February 21st, 2012 [February 21st, 2012]
- Dance to support Shriners Hospital for Children - February 25th, 2012 [February 25th, 2012]
- US trip holds hope for city boy - February 28th, 2012 [February 28th, 2012]
- Santanu Mitra - February 28th, 2012 [February 28th, 2012]
- City hospital to offer walking op - February 28th, 2012 [February 28th, 2012]
- CBR's Newborn Possibilities Program Provides Cord Blood Banking at No Cost to Families with an Identified Medical Need - February 29th, 2012 [February 29th, 2012]
- Charity golfers to the fore - February 29th, 2012 [February 29th, 2012]
- Assistive Mobility Devices Designed by Mobility Research Now Offered by Rehabmart.com - March 2nd, 2012 [March 2nd, 2012]
- Help to give Aiden, 2, chance of better life - March 4th, 2012 [March 4th, 2012]
- Conman Neil Jackson jailed for six years after false sickness claims for son - March 4th, 2012 [March 4th, 2012]
- Tesco manager conned £60k out of staff for son's 'fatal illness' and spent it on holidays - March 6th, 2012 [March 6th, 2012]
- Tesco manager conned £60,000 out of staff for son¿s ¿fatal illness¿ and spent the money on holidays to Hawaii and Las ... - March 6th, 2012 [March 6th, 2012]
- Ontario At The Centre Of World-Leading Brain Research - March 6th, 2012 [March 6th, 2012]
- R5.5m claim after baby born with cerebral palsy - March 6th, 2012 [March 6th, 2012]
- Uncertainty over NHS reforms threatens future of world leading cerebal palsy centre - March 6th, 2012 [March 6th, 2012]
- Birth Injuries from Medical Malpractice Can Create a Lifetime of Financial and Emotional Challenges for Victims and ... - March 7th, 2012 [March 7th, 2012]
- Ontario brains put their heads together - March 7th, 2012 [March 7th, 2012]
- ‘PediaSuit’ helps cerebral palsy patient walk - March 9th, 2012 [March 9th, 2012]
- Charity Caudwell Children donates wheelchair to Norwich youngster - March 10th, 2012 [March 10th, 2012]
- Elgin Easter Seals gets more space, bilingual programs - March 11th, 2012 [March 11th, 2012]
- A war on brain illness should be declared - March 12th, 2012 [March 12th, 2012]
- More children now living with 'life-limiting' conditions - March 12th, 2012 [March 12th, 2012]
- Assessing innovative intervention for children with cerebral palsy - March 15th, 2012 [March 15th, 2012]
- Cerebral Palsy In Children - Innovative Intervention Evaluated - March 15th, 2012 [March 15th, 2012]
- Cerebral palsy hindering 4-year-oldâs movement - March 17th, 2012 [March 17th, 2012]
- West Fargo boy with cerebral palsy can now walk without crutches; parents credit stem cell therapy - March 19th, 2012 [March 19th, 2012]
- Cerebral palsy research brings hope to new mums - March 21st, 2012 [March 21st, 2012]
- Center offers hyperbaric treatment - March 21st, 2012 [March 21st, 2012]
- $100-million Children’s Treatment Centre to be built in lower city - March 22nd, 2012 [March 22nd, 2012]
- White Lodge Centre marks 50 years in 2012 - March 22nd, 2012 [March 22nd, 2012]
- Telethon Delivers Life Changing Services - March 23rd, 2012 [March 23rd, 2012]
- Teachers allegedly call special-needs kid 'disgusting' - March 31st, 2012 [March 31st, 2012]
- Cerebral palsy drug may offer hope for treatment - April 20th, 2012 [April 20th, 2012]
- Prevention of cerebral palsy - April 20th, 2012 [April 20th, 2012]
- Study gives new hope on cerebral palsy - April 20th, 2012 [April 20th, 2012]
- Prrvention of cerebral palsy - April 20th, 2012 [April 20th, 2012]
- PRB at Wayne State/DMC discover window of opportunity to prevent cerebral palsy - April 20th, 2012 [April 20th, 2012]