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Success with neurotropin in treating pediatric lower extremity pain induced by spinal cord injury after epidural … – Dove Medical Press

Posted: June 10, 2017 at 1:44 am

Mengye Zhu,1,* Fuqing Zhou,2,* Lingchao Li,1 Qin Yin,3 Mizhen Qiu,1 Yong Zhang1

1Department of Pain Clinic, 2Department of Radiology, The First Affiliated Hospital of Nanchang University, Nanchang, 3Department of Pain Clinic, The Affiliated Hospital of Xuzhou Medical University, Xuzhou, Peoples Republic of China

*These authors contributed equally to this work

Abstract: Spinal cord injury (SCI) complicated by epidural anesthesia, though rare, can result in neuropathic pain. However, the treatment for this kind of life-altering injury remains a challenge. A 7-year-old girl was referred with dyskinesia and severe pain in her right lower extremity due to an accidental SCI following lumbar puncture. After treatment with analgesics such as gabapentin, mecobalamin, and dexamethasone/methylprednisolone for 1 week, the myodynamia had improved, but progressive pain persisted. After treatment with neurotropin, a gradual decrease in visual analog scale score from 7 to 0 was observed. We herein first describe that neurotropin produced sustained relief of pain induced by SCI. This case suggests that neurotropin might be a promising drug in treating pediatric neuropathic pain caused by SCI.

Keywords: spinal cord injury, pain, neurotropin, children

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Dancer’s path offers hope of walking for Orchard Park boy – Buffalo News

Posted: at 1:43 am

Easton Jordan has seen Lauren Walier only twice, but she already has made a powerful impression.

When the two spoke last month, 5-year-old Easton showed Walier a video of him using his walker without a sling to hold himself up one of his latest milestones.

“He continually tells people, ‘One day, I won’t need a wheelchair. I won’t need a walker. I will run across a field,'” said his mother, Jill Jordan.

The kindergartner from Orchard Park, and Walier, 19, who lives outside Atlanta, have three big things in common: cerebral palsy, a steely determination and a novel physical therapy that has helped take Walier from a wheelchair to a walker, then a crutch to a cane and, during the last year, to the top of the ballroom dancing world.

Easton recently became one of the first people in Western New York to begin an intensive form of physical therapy called the Symptom Recovery Model, which aims to retrain the body’s muscles, joints and tendons to become less spastic and more flexible.

The model is largely unused and unknown outside Georgia, where Sue Leger, a doctor of physical therapy, has developed and improved it during the last dozen years in her physical therapy practice, First Step, which has two offices in the Atlanta suburbs.

Walier whose parents, Sherry and Peter, were raised in Hamburg has been one of First Step Physical Therapy’s top patients during the past five years. The family often visits Western New York and raises money in the region through Lauren’s Make Lemon Aide Foundation for CP. They have set out to use those funds to train physical therapists in the region and help cover the cost of treatment borne by some of the families touched by cerebral palsy.

Lauren Walier’s journey has inspired Easton Jordan toward his goal of walking. (Derek Gee/Buffalo News file photo)

“I am energized by this,” said Elizabeth Bailey-Sands Clay, a pediatric physical therapist with Beyond Boundaries in Hamburg who treats medically complicated patients. “Once you meet Lauren, and you hear her story, and you watch her dance, it puts all of this into perspective for somebody like me.”

Clay whose patients during the last quarter century have included Hunter Kelly, the son of Bills Hall of Fame quarterback Jim Kelly was awarded a two-year Symptom Recovery Model training grant, courtesy of Walier’s foundation.

She has already started to use some of the techniques on Easton.

A family discovery

Jill and Brent Jordan had already begun to notice Easton wasn’t reaching developmental milestones by the time he turned 1 and struggled to blow out the candles on his birthday cake. He wasn’t rolling over or crawling independently.

“As much as my background and training prepared me for working with the special needs population,I don’t think anything can prepare you for having a child with special needs,” said Jill Jordan, a special education teacher at Williamsville South High School.

The Jordan family reached out to Erie County Intervention Services, which helped them get a diagnosis for Easton and find ways to start treatment.

Doctors discovered Easton had agenesis of the corpus callosum an underdeveloped membrane between the two hemispheres of his brain making what should be a sort of superhighway to share information more like a two-lane country road. It put him on the spectrum for cerebral palsy, a movement disorder. One in five people with the condition cant speak, according to the Cerebral Palsy Foundation. One in three cant walk. One in two live in chronic pain.

Cognitively, Easton is on track, his father said. “It’s the physical that holds him back,” he said. “We don’t want the physical to hold him back.”

CP is categorized by the type of muscle tone. Easton has increased muscle tone, known as spasticity, in both legs and his left hand.

“Did you ever have a leg cramp while you’re sleeping, one that wakes you up and gets you out of bed? That’s similar to how spasticity feels,” Clay said. “Easton has to deal with that all the time. If he doesn’t have regular stretching and regular therapy, spasticity takes over and it’s painful.”

Despite his challenges, Easton lives a life filled with love and laughter. He and his sister, Tessa, 6, are near-constant companions and the family makes regular trips to Allegany State Park, the Buffalo and Erie County Botanical Gardens and Explore & More Children’s Museum.

The Jordan family; daughter Tessa, mom Jill, son Easton, and dad Brent at their home in Orchard Park. (Mark Mulville/Buffalo News)

“We don’t alter our lifestyle,” Jill Jordan said. “We make sure we include Easton. And if he has any interests, we make sure he has the opportunity to pursue them.”

Easton loves “The Lorax” movie, “Pete the Cat” books and Chinese food. He starts his second season of Challenger T-Ball at the end of the school year.

“He will very clearly tell you where he wants to go, what he wants to do,” said his father, director of technology with the Hamburg school district.

The family including sister Kayleigh, 20, who is away at college make up “Team Easton.” Clay and several other health professionals, as well as his teachers and teacher aide, also are among the valued members. They help Easton tackle daily physical therapy as well as four rounds of occupational therapy, two rounds of speech therapy and a vision treatment each week. Team members also help with regular visits to Strong Memorial Hospital in Rochester and Shriners Hospital for Children in Erie, Pa., for treatment that includes Botox injections every six months to loosen his limbs.

Easton uses a wheelchair or chair to sit and often is tethered by a sling. He prefers to get around with his walker, including at the Green Lake playground splash park near his house.

“It’s his goal to walk,” his mother said.

Easton also has a flesh-and-blood inspiration.

A special connection

Lauren Waliers idea for her Make Lemon Aide Foundation emerged when she was 12, after she attended a cerebral palsy awareness conference at the Centers for Disease Control and Prevention headquarters in Atlanta, near her home in Milton, Ga.

She learned that about 17 million people, including nearly 1 million Americans, have CP. She also learned federal research funding is limited for a motor condition that afflicts more children than any other.

It didnt sit well. The Waliers and Atlanta attorney Robert Helfrich set up the foundation as a nonprofit in 2013 to help develop new treatments, advance research and share information to improve the quality of life for those with cerebral palsy.

The foundation hosts fundraisers in and around Atlanta, but its largest annual event, the Walk/Run/Roll in Lauren’s Shoes, is held in Western New York. This year, it will take place Sunday morning at Wilkeson Pointe in the Buffalo Outer Harbor.

Lauren Walier,of Milton, Ga., center, is the inspiration for the “The Make Lemon Aide Foundation for Cerebral Palsy,” which will host the annual “Walk/Run/Roll In Lauren’s Shoes” this weekend. (Derek Gee/Buffalo News file photo)

Walier credits the Symptom Recovery Model with the lightness she has found on her feet. She and her ballroom dance partner and instructor Mayo Alanen who has appeared on “Dancing With the Stars” on ABC won their first dance competition together in Nashville earlier this year. They have since danced in competitions in Dubai and Michigan.

“The ballroom reintegrates what I get all day in therapy,” Walier said. “Mayo doesn’t let me slack or slouch. It’s all about posture and using the correct muscles. Dancing is really a form of walking but it’s a little bit more fun for me.”

Her doctor told her earlier this year, “You are an athlete.”

A new form of treatment

Walier doesn’t love her treatments. She groaned about returning from them several weeks ago during one of her frequent visits to Western New York to see extended family members and help plan two foundation events.

That said, she likes the results.

“It’s not a magic pill, and it’s not a magic surgery,” she said. “It’s something that you have to put a lot of work into.”

Walier and her physical therapists also understand that not all patients who go through the Symptom Recovery Method make the same progress she has.

“Everyone starts in a different place and everyone’s going to end in a different place,” said Josh Davis, a doctor of physical therapy, practice manager and partner with First Step. “Given the ability of someone to devote enough time during the day to the treatment and the therapy, you will see some functional progress. You will see some improvements. Lauren had the time and the ability and the energy to be here consistently.”

Still, said Davis and Clay, almost everyone who undergoes the treatment sees demonstrable improvement and not just those with CP. The Symptom Recovery Model can be used with those of all ages and has helped those with ALS, Alzheimer’s disease and autism, brain injuries, spine injuries and stroke damage, as well as 55 other conditions, according toFirst Step.

“We’re not treating a disease, but the functional deficits that happen because of the disease,” Davis said.

The holistic approach treats the body in its entirety, trying to locate the “primary drivers” of disease, and uses several physical therapy components in varying combinations to ease the damage those drivers have wrought.

Therapy components include mind-body assimilation, manual structural correction, cold laser therapy, low-level electrical stimulation and a dry needling procedure similar to acupuncture, as well as sensory and vestibular assimilation, corrective pattern resistance exercise, and alignment through taping and bracing.

Physical therapy designed almost a century ago to treat polio patients used several of those components, Davis said, but in recent decades has focused mostly on exercise.

Walier has persevered through five years of treatment, stretching as long as eight hours a day, three times a week. She switches every hour between the 11 physical therapists and 5 assistant physical therapists at First Step. Each of them focuses on their strengths, and Walier’s needs, during one-on-one sessions. She also gets exercise “homework” for days away from therapy.

“We’re trying to do what’s best for our patients under physical therapy guidelines,” Davis said.

Health insurance plans vary as to how much of the First Step work is covered, based on individual insurance plans, Davis said, and usually cover most of the cost. The company has made special efforts to provide insurers extra information to underline the progress patients make, he said.

The Walier family her father is a successful engineer covers Lauren’s out-of-pocket costs, as well as her dance-related travel expenses, and the foundation helps others with CP get access to similar treatment. Along with paying nearly $9,000 for Clay’s training, the foundation looks to cover the cost of a select number of Western New York families to travel to Atlanta for 40 hours of Symptom Recovery Model therapy stretched over a week.

Easton Jordan and his physical therapist Elizabeth Bailey-Sands Clay. (Mark Mulville/Buffalo News)

Clay, who is also an adjunct professor at Daemen College in Amherst, has attended two of a dozen courses in Atlanta that will certify her in the model protocols and give her enough information to teach them.

“I think that this model offers me such a big bag of tricks, so many different techniques that I can pull out and apply, that if I apply them properly based on the way a child is functioning, I do believe it could benefit anyone if physical therapy is indicated,” Clay said.

That includes Easton Jordan, whose mother reached out to the Make Lemon Aide Foundation last year after reading about it in The Buffalo News then connected Clay to Lauren Walier and her family.

“Easton clearly states he wants to walk,” said Clay, “and he’s got a plan.”

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Fourth Annual Walk/Run/Roll in Laurens Shoes

What: 5K run and 1-mile walk for people of all abilities, including those with wheelchairs, walkers and strollers, to benefit the Make Lemon Aide Foundation for CP.For a unique twist, you can choose to wear ankle weights to simulate what it may be like for someone living with cerebral palsy.

When: 1-mile walk starts at 10 a.m., 5K at 10:30 a.m. Sunday, rain or shine. Race-day registration and packet pickup starts at 8:30 a.m.

Where: Wilkeson Pointe, 225 Fuhrmann Blvd. in the Buffalo Outer Harbor; there will be plenty of free parking.

Cost: $30 for adults, $15 for those under 18.

For more: Donate, register for the race or learn more about the foundation at makelemonaide.org.

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Life Lessons: Surgery for Cerebral Palsy – WFMZ Allentown

Posted: at 1:43 am

Life Lessons: Surgery for Cerebral Palsy

ALLENTOWN, Pa. – Bhoomi Manjunatha, 5, has been able to rely less on her walker and wheelchair, and more on her own two feet, because of a surgery performed at Nationwide Childrens Hospital. Her hard work and determination in physical and occupational therapy postsurgery has also helped Bhoomi continue to make strides.

Bhoomi was born with cerebral palsy and spasticity, a muscle control disorder that involves tight or stiff muscles and the inability to control those muscles. Spasticity affects more than 12 million people worldwide, including 80 percent of people with cerebral palsy.

The spinal surgery Bhoomi had in November, called selective dorsal rhizotomy, was performed by Jeffrey R. Leonard, MD, chief of Neurosurgery at Nationwide Childrens. In the operating room, the surgery team anatomically divided out dorsal nerve roots which control the sensory portion of the spinal cord. They stimulate them electronically to determine which rootlets were abnormal and section about 60 percent of the feedback to prevent the tightening and stiffness that Bhoomi experienced.

The surgery went well, but my part is easy. It is Bhoomi who has months of hard work and therapy ahead of her to strengthen her muscles to take advantage of her newfound mobility, said Dr. Leonard, who is also a faculty member at The Ohio State University College of Medicine. Without a multidisciplinary team of inpatient rehabilitation, outpatient physical therapy and occupational therapy working together, the benefits of rhizotomy would not materialize.

Bhoomi is now four months post-surgery and the clinical team continues to work with her and collect data. So far, her walking has progressed, she has less pain and Dr. Leonard predicts her posture will improve and that she will require less orthopedic procedures in the future.

Bhoomi is bright and energetic, you can see that from her smile. She is motivated and did everything that the therapist asked of her, working really hard in rehabilitation, said Dr. Leonard. I think she is going to be dramatically effected in a very positive manner after having undergone the rhizotomy.

Dr. Leonard says there is data for different treatment options for spasticity: orthopedic procedure, therapy alone, pump placement and rhizotomy. However, there are very few studies that have compared them, so he discusses with the family what is available, what has been studied and where the limitations in the data exist to determine what the best treatment options are for each individual patient. Dr. Leonards team is currently collecting more information to help fill the gap in data.

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Fundraising for little Leah’s Cerebral Palsy lifeline hope – Irvine Times

Posted: at 1:43 am

TWO Stewarton parents are on a mission to raise enough funds to help their daughter.

Little Leah Pattison was diagnosed with hemiplegia a type of cerebral palsy when she was just six months old.

The condition injured the right side of her brain before she was born and now affects her motor skills on her left side of the body.

The fighting tot is now 18 months old and is eligible to take part in a treatment for her condition in Manchester.

Parents Patricia Melly and Christopher Pattison are fundraising hard to get the 9000 cost of the pioneering CIMT treatment paid for.

Patricia said: The constraint induced movement therapy works so that Leah would be made to use her left side and not the healthy right side.

Some of the results have been wonderful and we really think that it is something she will benefit from.

The treatment would give her a much better quality of life, at the minute she would be unable to do the every day things that we take for granted, like tying shoes, using a knife and fork or tying your hair up in a ponytail.

We are looking to raise some money because it costs 9000 for four weeks of treatment it is very intensive, she would be doing three hours of therapy, five times a week.

There is also the costs of having to live in Manchester for the four weeks so we are trying to do as much as we can for that.

Leah does have a physiotherapist and occupational therapist from the NHS who are great, but they only see her once a week.

We are hoping that this therapy might be able to help her over the long term and lead a healthy and happy life.

To help with the fundraising efforts the family have been doing different events over the past few months.

They had a bottle stall at the Dunlop Gala Day and also took donations at the Des McLean show at the Palace Theatre in Kilmarnock over the weekend.

As part of their efforts they took part in the Colour Run in Glasgow in May, and Leahs dad, Christopher will be taking part in a 10k event on June 18.

Leahs plight has also got its own Crowdfunding page, and together with the other fundraising events the family have raised just over 5000.

Patricia said: We have a consultation with the team again on Friday and we are hoping to do her treatment in September.

Leah is a beautiful happy little girl who brings a lot of joy to everyone around her and she deserves this opportunity more than anyone.

It is very hard for us to ask this but If anyone can help raise funds for our little girl it would be greatly appreciated.

Donations can be made to Leahs treatment at:http://www.justgiving.com/crowdfunding/LeahPattisonCerebralPalsyTherapy.

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Umtamvuna Views: Ella needs stem cell treatment in India – South Coast Herald

Posted: at 1:43 am

Sunday lunch at the Umtamvuna River Lodge was a lovely family affair for Ryan (left), Kyle (3) and Ezette Hood of Port Edward.

GABRIELLA Dry (4) of Port Edward was born prematurely at only 29 weeks. After 75 days in NICU and a few complications she was left with neurological damage.

At a year she was diagnosed with cerebral palsy and epilepsy. Ellas life has been full of challenges, but it never stops her smiling and living life to the fullest.

YOU MIGHT ALSO BE INTERESTED IN :Little Warrior Princess needs your help

At the moment Ella and her mom Nicole are in Johannesburg for grommet surgery, blood tests and intensive hyperbaric oxygen therapy (HBOT).

Parents Kevin and Nicole of the Umtamvuna River Lodge are trying to raise funds to get Gabriella to India for stem cell treatment as this form of therapy has proven hugely beneficial with this type of cerebral palsy.

Digger succumbs

Well-respected local Digger (Digby) Elliott of Leisure Bay (77) died from heart failure at the Port Shepstone Regional Hospital on May 26. He underwent surgery for a collapsed lung in October last year and never fully recovered.

Little Gabriella Dry (4) with mom Nicole at her birthday party held at the Umtamvuna River Lodge. The family are urgently trying to raise funds to get Gabriella to India for stem cell treatment.

After suffering from emphysema for many years. Digger, who ran a steel engineering business from his home, relocated his family to the South Coast from Johannesburg thirty years ago.

His memorial service was held at the Port Edward Methodist Church last Friday and was well attended. He leaves his wife Margie and two children.

Fun family day

Winter Wonderland can be enjoyed at the Mac Banana Estate on Saturday, June 17, from 2 to 6pm. Shops are offering super specials and goodie bags and it promises to be a fun afternoon for the whole family. Pop along to Mac Banana and enjoy the experience.

Double trouble

Two long-standing residents shared a birthday on June 2. Maggie Abbott and Jeannette Offer were born on the same day some years apart. Jeannette celebrated with a great social get-together and gathering of the grans at The Cow Shed Coffee Shop last Saturday.

Is this the year

Aloes along the coastal strip are in full bloom and according to some surfing friends, the water temperature is pretty low so where are the sardines?

Local musician Billy the Skit (right) entertained golfers at the 2017 Wild Coast Sun Classic recently and was particularly delighted to meet Tellytracks Man from Durban Deez Dayanand. The congenial and likeable Deez is the public face of KZN horse-racing and the blood, sweat and tears behind the ever popular Charity Turf Challenge.

In spite of not having the little silver fish visit our shores in many years, the dream lives on! The buzz is still around the greatest shoal on earth and human nature is such that we continue to live in hope! Maybe it is this year? All news to Philippa.

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UVA Announces New Strategic Investments in Brain Research … – UVA Today (press release) (registration)

Posted: at 1:42 am

The University of Virginia on Friday detailed plans to significantly expand its research of the human brain by investing in existing areas of strength in neuroscience.

UVAs Board of Visitors approved $15.7 million over three years from the Strategic Investment Fund for the increased effort, a cross-disciplinary initiative called BRAIN, short for Bold Research Advancement in Neuroscience.

University officials said BRAIN complements efforts of the previously established Brain Institute, a pan-University institute launched in 2016 to coordinate research and efforts to better understand the brain, seek new ways to prevent, treat and cure brain diseases and injury, and to teach about what is learned.

Documentation supporting the BRAIN grant proposal highlighted UVAs recent successes in focused ultrasound, a technology used to treat a condition called essential tremor as well as other conditions; in epilepsy research and treatment; and in researching traumatic brain injury.

We now have the opportunity to capitalize on these recent scientific breakthroughs at UVA, new technologies that we have helped develop and are currently developing, and the proximity of our schools to enable teams of basic, computational and clinical researchers to tackle important neuroscience problems together and to rapidly bring these breakthroughs to the clinic, Executive Vice President for Health Affairs Dr. Richard P. Shannon said.

In all, the board announced grant funding for five proposals on Friday, with a total projected investment of $36.4 million. In addition to the BRAIN initiative, proposals approved include:

The Board of Visitors has approved 27 projects with a total investment of more than $216 million since establishing the $2 billion Strategic Investment Fund in February 2016. The fund provides transformational investments in the quality of a UVA education without relying on tuition or tax dollars. Investments could reach as much as $100 million annually.

The board previously provided grant funding for multiple, coordinated efforts to treat and cure type 1 diabetes; for a grant program that expands UVAs financial aid program for qualifying, full-time undergraduate Virginia students from middle-income families; and more.

The new investments in brain research will support research and development efforts to ultimately make transformative changes in the way experts diagnose and treat diseases such as tremor caused by Parkinsons and Alzheimers disease, epilepsy and brain injury.

It will build on these areas, in which UVA already has an advantage, allowing us to be an undisputed world leader in non-invasive approaches to treatment, and in the development and implementation of curative therapies for these diseases, said Dr. Jaideep Kapur, director of the UVA Brain Institute and Eugene Meyer III Professor of Neuroscience and Neurology.

The BRAIN initiative includes the coordinated efforts of multiple departments within the School of Medicine; the departments of Biology and Psychology in the College; the Curry School of Education; the School of Engineering and Applied Sciences departments of Biomedical Engineering, Systems Engineering and Computer Sciences; and the School of Nursing.

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Dad overwhelmed after 60k raised for MS treatment that could give him the extra time he craves to watch his … – Belfast Telegraph

Posted: at 1:42 am

Dad overwhelmed after 60k raised for MS treatment that could give him the extra time he craves to watch his children grow up

BelfastTelegraph.co.uk

A father-of-five who is fighting multiple sclerosis has raised more than 60,000 to fund treatment in Mexico.

http://www.belfasttelegraph.co.uk/news/northern-ireland/dad-overwhelmed-after-60k-raised-for-ms-treatment-that-could-give-him-the-extra-time-he-craves-to-watch-his-children-grow-up-35804345.html

http://www.belfasttelegraph.co.uk/news/northern-ireland/article35804342.ece/afd8d/AUTOCROP/h342/2017-06-09_new_31865895_I1.JPG

A father-of-five who is fighting multiple sclerosis has raised more than 60,000 to fund treatment in Mexico.

John McNaughton, who was diagnosed in 2011, hopes that the intervention will give him precious years to watch his children grow up.

After failed therapy attempts here in the UK, the 43-year-old from Glenariff in the Glens of Antrim, came across positive onlinew reviews of a private treatment in Mexico.

But he had to raise the cash before his condition got so bad that doctors would not offer him the treatment.

Initially booking to travel in mid-September, John and wife Patricia raised a massive 34,000 from fundraisers held in his local hurling club and from various donations, but needed the remaining balance by July.

This prompted John to start a crowdfunding page in April, which helped him to meet the balance after an amazing response from supporters.

John said: “The community response has been overwhelming, I thought it would be hard raising the money in three or four months, but achieving it in four or five weeks is unbelievable.”

Following this success, John has been able to move the date of his treatment forward, and will be leaving for America on June 19.

The treatment, known as Hematopoietic Stem Cell Transplant (HSCT), is offered by the Clinigue Riuz Group in Mexico.

The aim is to halt the progression of the disease, by stopping the immune system from attacking the central nervous system.

With the use of chemotherapy, harmful immune cells are removed from the body, ‘cleaned’ and then reinserted to help the immune system ‘reset’ itself.

The therapy lasts for 28 days, with approximately one year recovery time, and there is still no guarantee that it will work.

John said: “It is a relatively new study, but works for over 80% of people. One person had the therapy eight years ago and is still benefiting from it”.

Previously, John said: “There are things I’d like to be doing with the children but I can’t any more.

“It’s the simple things. A simple job is now a massive job.”

He worked as a farmer before he became ill and as his condition deteriorated, he had to assume an ‘overseeing’ role on the family farm.

John’s eldest child, 13-year-old Shea, now takes care of the hands-on maintenance, assisted by his younger siblings Clodagh (11), Eoin (8) and Ruairi (6).

John has been so ill that he has only been able to carry his youngest daughter Shannon, who is three, once since birth.

Commenting on his hopes for the future, he said that “it would be fantastic to walk again, but the aim is to slow the progression, anything else would be a bonus”.

Belfast Telegraph

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Dad overwhelmed after 60k raised for MS treatment that could give him the extra time he craves to watch his … – Belfast Telegraph

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Patients volunteer for pioneering treatment by Cambridge scientist on verge of curing multiple sclerosis – Cambridge News

Posted: at 1:42 am

Scores of people living with multiple sclerosis have put themselves forward for clinical trials as part of a Cambridge scientists bid to develop a treatment to cure the disease.

MS, an auto-immune condition which affects 2.3 million people around the world, attacks cells in the brain and the spinal cord, causing an array of physical and mental side effects including blindness and muscle weakness.

At the moment theres no cure, but Cambridge scientist Su Metcalfe and her company, LIFNano, hope to change that.

On Sunday the News told how Su has married one of the bodys cleverest functions with some cutting-edge technology. The natural side of the equation is provided by a stem cell particle called a LIF.

Su said: I discovered a small binary switch, controlled by a LIF, which regulates inside the immune cell itself. LIF is able to control the cell to ensure it doesnt attack your own body but then releases the attack when needed.

That LIF, in addition to regulating and protecting us against attack, also plays a major role in keeping the brain and spinal cord healthy. In fact it plays a major role in tissue repair generally, turning on stem cells that are naturally occurring in the body, making it a natural regenerative medicine, but also plays a big part in repairing the brain when its been damaged.

So I thought, this is fantastic. We can treat auto-immune disease, and weve got something to treat MS, which attacks both the brain and the spinal cord. So you have a double whammy that can stop and reverse the auto-immunity, and also repair the damage caused in the brain.

Sus company LIFNano has already attracted two major funding awards, from drug firm Merck and the Governments Innovate UK agency.

The company hopes to attract more investment, with the aim of starting clinical trials in 2020.

Off the back of the article regarding Sus work, people commented in their droves offering to trial Dr Metcalfes treatment, which is being touted as a possible cure.

Many also shared their experiences of living with MS.

James Stokes, 52 from Reading, was just one of many to comment on our story.

He told the News : I was diagnosed with MS on my 18th birthday of all days, but I wasnt told then that it was MS.

I had a big attack and was put in hospital; I lost my sight and couldnt speak or walk.

Even then I still wasnt officially told it was MS until a few years later.

About 10 years ago, things started to go downhill and I found myself basically housebound; I can still walk but not a great distance.

I use a walking stick, and have to use a wheelchair if Im going long distances.

MS has robbed me of my life, but when I saw this article there was a glimmer of hope.

Id love to know more about it [the process] and would be willing to take part in clinical trials.

If they could reverse my MS that would mean everything. At the moment, I feel as if Ive been given a life sentence but with no parole.

If a cure for MS is found, I could get a new lease of life and a lot more hope.

Many others also commented on the story regarding Sus work.

Debbie Brown wrote: This gives me some hope that things will improve in my lifetime. Diagnosed with RRMS in 2000. Very interested in registering for a clinical trial.

Amy Keighley said: My father was diagnosed with MS in 1996. He has been on several medications and is currently being treated by Dr Tornatori at Georgetown University Medical Center.

He fights every day and lives life to the fullest. He and my mother have been together since 1950. They were 15 years old. They are both retired from operating a jewellery store together for 23 years.

They try to travel every month and my dad’s spirits remain high. I would like to ask that my dad be considered for the clinical trial.

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Patients volunteer for pioneering treatment by Cambridge scientist on verge of curing multiple sclerosis – Cambridge News

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Stecklein joins the staff at Koerner Chiropractic and Physical Therapy – hays Post

Posted: June 8, 2017 at 1:46 pm

Stecklein

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Koerner Chiropractic and Physical Therapy, 2707 Vine, Ste. 1, has welcomed physical therapist Dr. JillianStecklein, PT, DPT, to the practice.

Stecklein grew up in suburban Chicago. After completing her bachelors of science in molecular and cellular biology and psychology from the University of Urbana-Champaign, she completed her doctorate of physical therapy at the University of Illinois at Chicago. She has a great passion for physical therapy and has wanted to be a physical therapist since high school.

She previously was the clinic manager and physical therapist at Coal Creek Physical Therapy in Colorado. She is excited to be living in Hays and working at Koerner Chiropractic & Physical Therapy. She met her husband, Kelton, who is from Hays, while at a catholic adventure camp in the Rockies. She finds great joy in serving the community with her skills and experience. She enjoys sharing time with her family, the outdoors, cooking, bible studies, competing in triathlons, and volunteering to help the underserved.

She brings a variety of exceptional skills and knowledge for treatment including: post-surgical rehab, vestibular rehab, concussion management, and excellent skills for management of acute and chronic pain. Whether you are looking to play on the ground with your grandkids or run a marathon, she is passionate about getting all people back to the highest quality of life possible.

She is certified in Functional Dry Needling (Dry Needling). It is an awesome way to speed up the recovery process using a thin filament needle inserted directly into the muscle to help increase blood flow, reduce inflammation, and reduce tissue tension quicker.

Jill also brings a wealth of knowledge, experience, and treatment for postnatal women. If you are a postnatal woman experiencing any urinary leakage or if you have noticed a separation of the muscles on the front of your stomach, you may have a residual diastasis recti, or separation of the abdominal muscles. This could result in hernias, lower back pain and even create a tummy that wont go flat again. Her treatment can help you avoid long-term changes and injury.

Additionally, she has the knowledge and experience in treatment of pediatric patients. If you care for or know a child who is having any difficulty with meeting their motor milestones: delayed rolling, sitting, crawling, or walking; give her a call. She utilizes fun activities and therapeutic play to help kids get stronger and learn how to move. Whether the child was premature, has torticollis, or deals with other developmental delays because of diagnoses like cerebral palsy, muscular dystrophy, or Down Syndrome; she makes sure everyone has the opportunity to maximize their movement.

Furthermore, she is trained in Selective Functional Movement Assessment (SFMA). It takes a global look at your movement patterns and can help tell if you are about to have an injury; and potentially be able to reduce the risk of having that injury by working on dysfunction before it even happens. It is a great way of screening your workers or athletes for injury.

She is also trained in the Associative Awareness Technique (AAT), which addresses anxiety, depression and PTSD that might be limiting your progress in therapy.

Physical therapy is an amazing blend of preventative medicine, leadership, exercise and nutrition, and I cant wait to help you get back to what you love! she said.

Call Koerner Chiropractic & Physical Therapy at 785-628-2105 to schedule a free consultation.

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Stecklein joins the staff at Koerner Chiropractic and Physical Therapy – hays Post

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Brain Injury Programs for Rehabilitation and Treatment

Posted: at 1:45 pm

We offer comprehensive brain injury programs that cover the continuum of care. Every treatment plan is unique to the individual, not one size fits all.

Pate provides six hours of therapy per day vs. the industry standard of four hours a day. We strongly believe this contributes to our outcomes. We are dedicated to:

Every persons medical situation is unique so our treatment plans are fully customized to each patients needs. Pates individualized, holistic treatment honors the whole person, including personality, likes and dislikes, hobbies, family life and profession.

Free transportation to treatment is provided for all residents and for day neuro patients within a sizableradius of our centers.

This program allows patients to visit us up to six hours a day, Monday Friday. During daily therapy, patients receive personal attention in a compassionate environment that encourages success.

Each patients treatment is specifically designed around his or her unique needs and goals, offering a clear plan for reinforcing daily living skills and encouraging leisure activities. Each personalized plan is focused on not only improving the patients mobility, communication, and cognitive abilities, but also enhancing adaptive behaviors. We also provide additional support with counseling for patients, families, and couples.

Our transitional inpatient brain injury program is designed forpatients who are medically stable, yet require 24-hour individualized rehabilitation to return to their highest level of independence. During rehab, patients live with us in a safe, supervised environment that provides round the clock care. The program focuses on areas such as physical functioning, communication, cognitive treatment, daily living activities, community integration, leisure activities, psychological adjustment and behavior management. Patients and families work together with our staff to tailor a program specific to their needs. Our residences are located in Irving, Fort Worth and Anna, Texas.

We provide long term residents in this program with a safe, secure, and relaxing rural environment where they receive specialized care and support in the least restrictive way possible.

We work closely with families, healthcare providers, insurance companies and the resident to create an individual program of life-long support that is sensitive to financial considerations and promotes the best outcome.

Pate offers the only CARF-accredited Post Acute Stroke Specialty Program in North Texas. Designed for patients who need brain injury programs that focus on the unique challenges posed by stroke, the programs goal is helping people regain the highest independence level possible. We offer family support and education, adaptations for home and work environments if needed, and a driver rehabilitation program for all medically qualified patients.

Pate Rehabilitation provides the same specialized care and support in Spanish as we do in English. Spanish-speaking therapists and caregivers work with each patient and family to develop a personalized plan for better results. This includes therapies conducted in Spanish-speaking environments, enabling patients to practice these skills in their own cultural communities. Our research includes ongoing clinical studies that focus on improving rehabilitation results specifically for diverse groups including Spanish speakers. Read More

Physical therapy helps patients improve mobility, reduce pain, and restore function through therapeutic exercise and functional training, and the use of assistive and adaptive devices and equipment.

Physical therapy covers many skills and includes:

Our occupational therapists (OTs) help patients regain everyday skills, including:

From hand dexterity to fine motor skills, OTs work to re-integrate patients into their home, work and school environments. They also focus on evaluating these environments and then recommending adaptations to the environment to fit the persons lifestyle, whether its assistive technologies or task changes. They provide guidance and education for family members, employers and caregivers to assist in the healing process.

Our speech/language pathologists help patients regain the ability to:

Therapeutic exercises target speech muscle strengthening, language-focused training and strategy development, and social conversation training. For those patients who have swallowing and eating difficulties, speech/language pathologists target muscle stimulation, strengthening, and coordination to regain the ability to swallow safely.

Our treatment teams provide cognitive rehabilitation that is evidence-based, meaning our approaches are backed by years of scientific studies and research.

When our treatments are combined with functional, individualized therapy activities, it enhances each patients best potential to recover their most important brain skills and abilities, such as memory, attention, and problem solving just to name a few.

Our psychologists and behavioral analysts assist patients struggling with depression and frustration, and help them replace maladaptive and sometimes self-destructive behaviors with new, more appropriate actions that make it easier to create an environment of success for themselves. Instead of punishment, Pates approach is rewards-based and encouraging, helping to modify and reinforce behaviors positively.

Many of our patients want to return to work. Our vocational rehabilitation staff members, led by a PhD-level vocational specialist, evaluate and assess each patient to successfully re-enter the working world. By conducting in-depth professional evaluations to determine the persons abilities and interests, our specialists help patients not only learn and practice everything from workplace behaviors to interview skills, but also help them understand their own unique abilities and challenges to return to their previous job or identify new career, volunteer or educational options.

With biofeedback, patients make the mind-body connection. Our therapists teachpatients to help themselves with techniques for handling the general stress, pain management and sleep disturbances often experienced after a brain injury. Therapists use specialized equipment that measures physiological activity and teach patients how to recognize these signs of stress in their bodies. Once they internalize this new awareness, patients are trained intechniques like breathing, meditation and mindfulness to calm the body, reduce stress and sleep better. These are life-long skills that endure long beyond rehabilitation.

The deep connection between horses and people has existed for thousands of years. Equine therapies at Pate use the sensitivity of horses to human emotions to help patients recognize their inner state. This therapy gently guides patients to physical, emotional and psychological recovery.

We offer Equine Assisted Learning (EAL) as well as Equine Assisted Psychotherapy (EAP). Available at our Brinlee Creek Ranch. Pate is the only brain injury rehabilitation center to offer these therapies in North Texas.

Many patients find the therapy pool to be the first place they can move without pain. The pool is equipped with many aquatic therapy features to aid recovery:

Adjustable depth to increase or decrease weight bearing and increase stability Strategically placed jets to create resistance and work on patient stability and range of limb motion Treadmill at the bottom of the pool, including a camera and monitor, for instant feedback relating to gait and balance Water temperature between 88-90 degrees to promote joint flexibility and mobility, relieve pain, decrease muscle spasms and increase muscle relaxation

Counseling is offered to individuals, families and caregivers. The counselor provides support and guidance to allow the individual to increase their awareness and acceptance of thoughts and feelings. Many people experience depression, anxiety, and other common emotional reactions in response to a traumatic event. Counseling offers a safe and supportive environment that allows for emotional processing, coping and adjustment. For families, counseling can help process emotions, create healthy coping strategies, encourage understanding and strengthen bonds. Pate offers:

Pates emphasis on neuropsychology in brain injury rehab is unique. Neuropsychology focuses on how the brain influences thinking. The first step we offer our patients is a comprehensive evaluation to assess overall brain function:

Intellectual functioning Attention and concentration Speech and language Verbal and visual memory Problem solving and judgement Emotional functioning and personality assessment

The results of this advanced testing give our therapists deeper insight into the individuals brain function and provide a foundation for our therapy plans. Our psychologists and neuropsychologists oversee these plans on an ongoing basis to evaluate progress and make adjustments when needed.

Pate Rehabilitation is among a small number of organizations who employ Driver Rehabilitation Specialists certified by the Association for Driver Rehabilitation Specialists (ADED).

Driver training and evaluation is included in the rehabilitation program for individuals who meet certain criteria. The program does not utilize a simulator. On-the-road training helps participants regain their independence.

Animals have a special way of connecting to people with brain injuries. They offer comfort, cuddling and can motivate patients to become more physically active. Grooming a dog or playing fetch helps patients improve their motor skills. Its also more fun to take a walk with a pet when encouraging people to begin moving. Pates pet therapy brightens everyones day (including our therapists). This popular program is offered at every location.

Pate partners with Physical Medicine & Rehabilitation physicians associated with UT Southwestern Medical Center. Physical Medicine & Rehabilitation physicians from UTSW visit Pate weekly to meet the rehabilitation medical needs of patients.

Patients admit to Pate at various levels. Using our own unique systematic assessment program called Pate Environmentally Relevant Program Outcome System, or PERPOS, patientsreceive a score that will indicate the best fit toone of our three teams so treatment is tailored to their current skills and provides peer support.

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Brain Injury Programs for Rehabilitation and Treatment

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