Concern over muscular dystrophy ‘misdiagnosis’

Support group set up for muscular dystrophy sufferers

8:54am Friday 1st February 2013 in News By Richard Catton, richard.catton@thepress.co.uk

A SUPPORT group for people with muscular dystrophy has been set up by a York woman whose father died at the age of 58 following a long struggle with the disease.

Clare Russell, 30, from Clifton Moor, set up the fundraising and support group after seeing her father, Peter, battle the illness for years, and is kicking off 2013 with a huge fundraising campaign which she hopes will raise 10,000 for research into the muscle wasting condition.

She said: My father passed away in November 2011. He had the illness for years and my mum was his carer for a long time.

After my dad passed away we met up with some ladies from the Muscular Dystrophy Campaign and we had the idea of fundraising. We said we just wanted to do some different things to raise money.

Her determination to raise 10,000 will see Clare attempt her first skydive in march and she has also organised a charity ball to take place two weeks later.

Last year she joined her mother Jane, 53, brother Chris, and his girlfriend, to complete the Great North Run.

As well as raising money, Clare intends to offer support to people with muscular dystrophy, to ensure they are getting access to the best services.

She said: We wanted someone in our area who people could talk to. We have not had anybody approach us yet but we want to act as a guide to people on a local level.

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Concern over muscular dystrophy ‘misdiagnosis’