I was an intersex child who had surgery. Don’t put other kids through this. – kgw.com

Kimberly Mascott Zieselman, Opinion contributor , TEGNA 9:10 AM. PDT August 09, 2017

Kimberly Mascott Zieselman, months after her intersex surgery, in Concord, Mass., in 1983. (Photo: Family Photo)

I was born with typically male XY chromosomes and internal testes instead of ovaries and a uterus, but my body developed to appear typically female.

My intersex condition was invisible until I reached puberty and failed to menstruate like other girls. On the advice of doctors at a major hospital, my parents agreed that I should have surgery to remove my healthy gonads, without my knowledge or consent.

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My natural hormone production ceased, and I was forced onto hormone replacement therapy for the rest of my life. I was just 15. Doctors also recommended to my parents that I receive invasive surgery to create a more typically sized vagina thankfully, my parents refused. I didnt find out about any of this until I was 41 years old.

Intersex people like me up to1.7% of the population are born with sex characteristics that do not fit typical definitions of male or female. I haveandrogen insensitivity syndrome. Because my body was resistant to androgens, including testosterone, in the womb, my natural hormones automatically converted into estrogen through a process calledaromatization.

Intersex people have been the last bastion of dont ask, dont tell, with doctors commonly telling parents for many years that the best thing they could do for their children was to have surgery done, even when they are infants, so they can grow up normal.

These and other surgeries have been commonly performed on intersex children in the USAsince the 1960s. But in the 1990s, intersexadults began speaking outagainst these non-consensual and medically unnecessary procedures because of their lifelong physical and psychological consequences.

Despite decades of controversy over the procedures, doctors continue to operate on childrens gonads, internal sex organsand genitals when the kids are too young to participate in the decision even though thesurgeries are dangerousand could be safely deferred. Its rare that urgent health considerations require immediate surgical intervention. The results of these cosmetic surgeries are often catastrophicand the supposed benefits largely unproven.

As executive director ofinterACT, the nations only organization dedicated exclusively to protecting the legal and human rights of intersex youth, I am thrilled that since interACTs founding in 2006, we have seen progress frommedical associations but not enough, and not nearly quickly enough.

Its not time for more data collection or dialogue;its time for these surgeries to stop.

I know firsthand the devastating impact they can have,not just on our bodiesbut on our souls.We are erasedbefore we can even tell our doctors who we are. Every human rights organization that has considered this practice has condemned it, some even to the point of recognizing it asakin totorture.

We know that most physicians want to do the right thing for their patients, just as parents want to do the right thing for their children. The right thing, unequivocally, is to wait until an intersex person can participate in these life-altering decisions. The right thing is to afford them the same dignity and autonomy that is due to everyone and refrain from inflicting irreversible harm solely because of a discomfort with difference.

The fewdoctors who refuse to bring their practices in line with human rights standards tell us there is a silent majority of patients who are happy they had their childhood surgeries, but they have been unable to produce those happy patients for us to talk to.Wedohear from people who are extremely grateful they were spared surgery, as well as parents of intersex children who are growing up just fine without medical intervention.

Some doctors have dismissed us as angry activists, but our position has support from theUnited Nations, theWorld Health Organization,Amnesty International, theState Department, everymajorLGBTQ rightsorganization in the United States, three formerU.S. surgeons generaland almost every intersex organization in the world.Now, interACT and Human Rights Watch have published anew reportechoing those calls for a ban.

These institutionsare not just angry activists. They areprincipled human rights defenders drawing on data, laws and the medical ethics concept of do no harm.

Most important, intersex children and adults are telling us that they want the freedom to make decisions about their own lives and bodies.

Working with intersex youth every day, I can tell you these kids are perfect as they are and they are telling us that their bodies aren't shameful and dont need to be fixed.

Kimberly Mascott Zieselman is executive director ofinterACT, an organization that advocates for intersex youth.

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I was an intersex child who had surgery. Don't put other kids through this. - kgw.com