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Disabled couple fought red tape on way to altar – Lewiston Morning Tribune

Posted: Published on January 27th, 2020

LUCASVILLE, Ohio As the wedding photographer snapped away, Sherri and Bill Adams leaned over their wheelchairs for a kiss. One felt good, so they enjoyed another. And another Continue reading →

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Europe’s guardian of stem cells and hopes, real and unrealistic – INQUIRER.net

Posted: Published on January 27th, 2020

Submerged in liquid nitrogen vapor at a temperature of minus 175 degrees Celsius, hundreds of thousands of stem cells from all over Europe bide their time in large steel barrels on the outskirts of Warsaw. Present in blood drawn from the umbilical cord of a newborn baby, stem cells can help cure serious blood-related illnesses like leukemias and lymphomas, as well as genetic conditions and immune system deficits. Polish umbilical cord blood bank PBKM/FamiCord became the industrys leader in Europe after Swiss firm Cryo-Save went bankrupt early last year Continue reading →

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St. Louis School includes all students in the classroom – Arlington Catholic Herald

Posted: Published on January 27th, 2020

When second grader Matthew Reeder rolled through the doors of St. Louis School in Alexandria in 2014, he had no idea his presence was paving the way for students with special needs Continue reading →

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Yet Again, Disability Films and Disabled Actors Were Snubbed by the Oscars – Yahoo Lifestyle

Posted: Published on January 27th, 2020

The nominations for the Academy Awards were announced Monday, January 13. Once again, there is much-deserved criticism that all of the acting categories and the Best Director category arent diverse. Continue reading →

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Annual Tea By the Sea held at The Marine Room – The Marine Room at the La Jolla Beach & Tennis Club partnered with St. Madeleine Sophie’s Center…

Posted: Published on January 27th, 2020

Debra Emerson (SMSC CEO), featured artist Deseray Lee, and Judy Mantle, president of the board of trustees, wearing some of Lees jewelry. DIANA CAVAGNARO / VILLAGE NEWS The Marine Room at the La Jolla Beach & Tennis Club partnered with St. Madeleine Sophies Center (SMSC) to host the sixth annual Tea By the Sea on Jan Continue reading →

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U of T neurobiologists discover switch that turns muscles on and off – News@UofT

Posted: Published on January 27th, 2020

In aYouTube videowith nearly 12 million views, a young woman stands facing the camera, giving a dance lesson. Mid-sentence, her legs buckle and she collapses to the floor. She sits upright groggily butseconds later, her upper body and head slump forward and she lies motionless. Continue reading →

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Did FDA lower the bar in its Sarepta decisions? We discuss – STAT

Posted: Published on January 27th, 2020

Containing new coronavirus may not be feasible, experts say, Containing new coronavirus may not be feasible, experts say, as they warn of possible sustained global DNA sleuths read the coronavirus genome, tracing its origins DNA sleuths read the coronavirus genome, tracing its origins and looking for dangerous mutations How fast can biotech come up with a vaccine How fast can biotech come up with a vaccine for the latest outbreak? Continue reading →

Posted in Muscular Dystrophy Treatment | Comments Off on Did FDA lower the bar in its Sarepta decisions? We discuss – STAT

Is the Medication You’re Taking Worth Its Price? – Undark Magazine

Posted: Published on January 27th, 2020

Austin was three years old and Max was a newborn when their mother, Jenn McNary, learned they had a rare genetic condition called Duchenne muscular dystrophy. Continue reading →

Posted in Muscular Dystrophy Treatment | Comments Off on Is the Medication You’re Taking Worth Its Price? – Undark Magazine

Santhera Reports Net Revenues 2019 and Highlights Pipeline Progress – GlobeNewswire

Posted: Published on January 27th, 2020

Pratteln, Switzerland, January27, 2020 Santhera Pharmaceuticals (SIX: SANN) generated net revenues of CHF27.9 million in 2019 from sales of Raxone for the treatment of Lebers hereditary optic neuropathy (LHON), which was out-licensed to Chiesi Group from August 2019. The Company made strong progress in advancing its lead neuromuscular compounds Puldysa (idebenone) and vamorolone towards market entry and regulatory submission, respectively. We are pleased about Santheras strong progress in 2019 and are excited about the prospects 2020 holds, said Dario Eklund, CEO of Santhera Continue reading →

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FDA continues to struggle with implications of approving Sarepta’s drugs – STAT

Posted: Published on January 27th, 2020

Containing new coronavirus may not be feasible, experts say, Containing new coronavirus may not be feasible, experts say, as they warn of possible sustained global DNA sleuths read the coronavirus genome, tracing its origins DNA sleuths read the coronavirus genome, tracing its origins and looking for dangerous mutations How fast can biotech come up with a vaccine How fast can biotech come up with a vaccine for the latest outbreak? Continue reading →

Posted in Muscular Dystrophy Treatment | Comments Off on FDA continues to struggle with implications of approving Sarepta’s drugs – STAT

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