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Back-to-School Tips for Students Who Have CP, Other Disabilities – Cerebral Palsy News Today

Posted: Published on August 23rd, 2017

The alarm clock sounds, waking you from your peaceful sleep. You wonder why the alarm went off so early. Then you realize this is the day to return to school after a summer that seemed to go by exceptionally fast. You hear a knock at the door and a parent comes into your room to help you get dressed. Your thoughts race about the normal back-to-school things, but you also wonder if your peers will accept you this year and how your teachers will react. This is a typical first day of school for a student who has a disability. I was that student, the only one who had a significant disability in school. Although not all of my school experiences were bad, there are some things I wish I knew then that I know now. School is a temporary, but necessary, journey for someone who has a disability. The better educated you are, the easier time youll have as an adult. So, no matter what happens in school, try your absolute best to earn great grades and learn. Not all teachers will welcome you with open arms into their classroom. Hopefully, nowadays, more teachers are open to and educated … Continue reading

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Joplin Kiwanians continue mission of support – Joplin Globe

Posted: Published on August 23rd, 2017

WEBB CITY, Mo. Christy Graham's son was born deaf and blind with cerebral palsy, and his brain was in a constant state of seizure. He was eventually enrolled at the Cerebral Palsy Center of Tri-County in Webb City, where speech was among the many therapies and services he received. He never spoke, but his teachers were able to work with and improve his mouth functions, his mother said. "We were blessed because I don't know what we would have done without it," she said. Graham is now the executive director of the Cerebral Palsy Center, which on Tuesday received a $6,000 donation from the Joplin Kiwanis Club for speech therapy and services. She said that amount will also help pay for transportation of pupils to and from the center, 1401 W. Austin St. The funds were raised primarily through the Kiwanis Club's annual golf tournament, said Jim Zerkel, president of the Joplin club. "Our mission is to help children," he said. "We do most everything here locally. We all think (the Cerebral Palsy Center) does outstanding work over here." The Joplin Kiwanis Club has a long relationship with the center, which works with local children who have developmental delays or … Continue reading

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13th annual Drop Zone lifts charity to new heights – Winnipeg Free Press

Posted: Published on August 23rd, 2017

Its an ear-popping elevator ride thats sure to make lumps rise in the throats of some of the 65 people signed up to rappel 272 feet back down to Earth for charity. Allie Onslow is one of them. "Im excited but nervous," said Allie. Seated in a wheelchair with pink foam noodles taped to the sides and Hawaiian leis hanging from the handlebars, Allie who has cerebral palsy was ready to rappel in style. "When Allie was born she was three months premature and she weighed two pounds and five ounces," said her mom Wendy Onslow. "At the time we didnt know if she was going to walk or talk or anything, but Allie can definitely speak her mind and make choices. She can do some things for herself, but walking she cannot." It was Allies first time participating in Drop Zone, the fundraising event for the Society of Manitobans with Disabilities (SMD), but she's been involved with the organization for years as a client, volunteer and ambassador. "She always wanted to do it, and we told her when she turned 18 she could do it, so here we are," said her mom. After turning 18 last September, Allie and … Continue reading

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International research group to explore underlying genetic causes of cerebral palsy – Gears Of Biz

Posted: Published on August 23rd, 2017

A new international research group has been established to investigate the underlying genetic causes of cerebral palsy, spurred on by the discoveries of University of Adelaide researchers. The news comes as the Adelaide team behind the new collaboration has been awarded a $1 million grant to continue its groundbreaking work, from The Tenix and Cerebral Palsy Foundations. The newly established International Cerebral Palsy Genomics Consortium includes members from universities in China, Canada, USA, Sweden, Turkey, and Australia. The new consortium has grown from the research leadership of Emeritus Professor Alastair MacLennan, AO, and Professor Jozef Gecz, based in the University of Adelaides Robinson Research Institute. Professors MacLennan and Gecz and their Australian Cerebral Palsy Research Group have led the field internationally in showing that cerebral palsy is often linked to a genetic susceptibility. For decades, it has been the belief that cerebral palsy occurs when a child experiences a lack of oxygen during pregnancy or at birth. However, the evidence shows that at least one in four cerebral palsy cases is associated with genetic mutations, Emeritus Professor MacLennan says. The group has built up a large DNA biobank from cerebral palsy families linked to de-identified pregnancy details and cerebral palsy … Continue reading

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When eczema gets you banned from driving a rideshare – Malay Mail Online

Posted: Published on August 23rd, 2017

AUGUST 23 Imagine being plagued with a constant itch, to the point you often find yourself scratching yourself absentmindedly or even in your sleep. Welcome to the life of someone with eczema. My friend has severe eczema to the point he scratches a lot and has scabs all over his body. While it looks unsightly, it isnt actually contagious. Just this week, however, one of his rideshare passengers (hes currently a fulltime rideshare driver) reported him to the service and he was suspended just because his skin scared people. There isnt actually one kind of eczema its the common name given to a group of conditions that can cause skin to become itchy and inflamed. While many people can manage the condition with the appropriate treatments, there are some who find living with it a struggle. Eczema can easily flare up without warning triggers can include a change of diet, stress, a change in weather, exposure to allergens. What saddens me is that isnt the first time my friend had his driver status revoked it was the second time. Despite reinstating his account previously after explaining himself and presenting a doctors letter, said service suspended his account again this time … Continue reading

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Transgender YouTubers had their videos grabbed to train facial recognition software – The Verge

Posted: Published on August 23rd, 2017

About five or six years ago, one of Karl Ricaneks students showed him a video on YouTube. It was a time lapse of a person undergoing hormone replacement therapy, or HRT, in order to transition genders. At the time, we were working on facial recognition, Ricanek, a professor of computer science at the University of North Carolina at Wilmington, tells The Verge. He says he and his students were always trying to find ways to break the systems they worked on, and that this video seemed like a particularly tricky challenge. We were like, Wow theres no way the current technology could recognize this person [after they transitioned]. To tackle the problem, Ricanek did what all good scientists do: he started collecting data. Like all AI systems, facial recognition software requires stacks of information to train on, and although there are a number of sizable and freely available face databases available (ranging in size from thousands to millions of images), there was nothing documenting faces before and after HRT. So, Ricanek turned to the internet a decision that would later prove to be controversial. On YouTube, he found a treasure trove. Individuals undergoing HRT often document their progress and post … Continue reading

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How I regenerated along with ‘Doctor Who’ – Syfy – SYFY WIRE (blog)

Posted: Published on August 23rd, 2017

Im not the only transgender fan of Doctor Who. My friends and I have frequently used the term "regeneration" as a silly way to refer to elements of our transitions, often when posting progress photos, or wishing each other luck the night before someones top surgery. At Gallifrey One, a Who convention I attend every year, we even had someone create preferred pronoun ribbons as part of the badge ribbon tradition, wherein attendees hang an increasing number of colorful ribbons until they, intentionally or not, somewhat resemble Tom Bakers iconic scarf. Still, while Im not alone in my identity within this particular fandom, I have had a rather specific connection to the show that has, almost eerily at times, run parallel to my own regeneration. It started in 2013, when Matt Smith regenerated into Peter Capaldi. It was Christmas night; I was sitting in my best friends basement for our annual tradition of watching the Doctor Who Christmas special projected onto his home theater wall, fueled by a fancy bottle of whiskey my dad had bought me. By this point we already knew Capaldi was on the way, wed seen his eyebrows help save Gallifrey a few months earlier, but … Continue reading

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Being on the brink of puberty is scary and expensive for this transgender kid and her family – KRCU

Posted: Published on August 23rd, 2017

Mazy Gilleylen of Overland is looking forward to her 12th birthday in September. But shes dreading what comes next. Approaching puberty is alarming for transgender kids like Mazy. The changes puberty brings can feel like their bodies betrayal of who they are. Doctors can prescribe puberty-blocking drugs to prevent unwanted prevent breast growth or a deepening voice. But the cost is out of reach for many families. Mazys parents are struggling to pay for what they see as a lifesaving measure. "We have no time to wait because she's going into middle school and we definitely have puberty knocking at our door," her mother Amber Gilleylen said. ((AUDIO: St. Louis Public Radio's Nancy Fowler visits Mazy Gilleylen and her family in their Overland home.)) My heart tells me Im a girl Mazy was assigned a male gender at birth. But ever since she could talk, shes insisted she knows who she really is. My heart tells me Im a girl; Im just a girl, Mazy said. When she was 8, her family began calling her Mazy and embracing her pink clothes and barrettes. She has friends who only know her as a girl with long hair and turquoise fingernails. But … Continue reading

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In the Business of Women’s Health – The Story Exchange

Posted: Published on August 23rd, 2017

The absence of women in medical studies, both as subjects and researchers, has serious repercussions for female patients. But a growing number of women doctors and business owners are stepping up to solve these problems. By Candice Helfand-Rogers Female entrepreneurs are starting up medical businesses to address the health needs of other women. (Credit: National Eye Institute) Editors note: This article introduces a series spotlighting women whose medical businesses are turning profits by serving other women. Marje Isabelle was inspired to start Fertile Matters, a London firm that uses hormones to track clients fertility and improve their chances of becoming pregnant, in part by an infuriating personal encounter. She says that, during a visit to a male gynecologist, he told her, if a woman comes in and says she has hot sweats or cant sleep and is tired or has mood swings, hell put them on hormone replacement therapy. Then he added: If they dont come back screaming, then its the right dose. Its an extreme example of a pervasive problem: the failure of many doctors and medical experts to consider and sometimes even acknowledge the fact that womens bodies work differently than mens. It exists on every level of … Continue reading

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A fitting tribute to a fundraising giant – Fort Wayne Journal Gazette

Posted: Published on August 23rd, 2017

Not everyone found Jerry Lewis funny. Some even found him offensive. But no one can deny the impact he had oncomedy and film over a career that stretched from his early childhood almost until his death Sunday at 91. For 45 years,Lewis played another role many people remember at least as well ashis long list oflight comedies and occasional dramatic parts. Lewis' annual Muscular Dystrophy Associationtelethons weremarathon broadcasts that usually began on Labor Day weekendand ranas long as 211/2 hours. And, like his comedy, the shows were not to everyone's tastes. Some contended that his broadcast and similar fundraisers exploited young disease sufferers. But Lewis' affection for the young people he called Jerry's kids was genuine, and many, many people were moved to donate: Over the years, Lewis raised more than $2billion for research into treatment for muscular dystrophy and related diseases. We are deeply saddened by the death of humanitarian and MDA Telethon star and national chairman, Jerry Lewis, Northern Indiana MDA Executive Director Sonja Cronin said in an email Monday. MDA would not be the organization it is today if it were not for Jerry's tireless efforts on behalf of 'his kids.' His enthusiasm for finding cures for … Continue reading

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