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Families of Boys with Duchenne Muscular Dystrophy Band Together to Fund Research – Newswise (press release)

Posted: Published on April 12th, 2017

Newswise BALTIMORE, MD (April 12, 2017) Three grassroots foundations founded by the families of young boys diagnosed with Duchenne muscular dystrophy (DMD) have jointly awarded a $100,000 grant to Kennedy Krieger Institutes Center for Genetic Muscle Disorders for research into novel drug therapies. The funding from Ryans Quest, of New Jersey, along with Michaels Cause and Pietros Fight, both of New York, will enable the scientific team to study existing drugs that have shown early therapeutic promise in cell cultures. "We remain dedicated to helping identify existing FDA-approved drugs that can be repurposed to help treat Duchenne muscular dystrophy and ultimately expedite potential therapies for patients," said David Schultz, co-founder of Ryans Quest and father of 11-year-old Ryan, who has DMD. Researcher Dr. Kathryn Wagner, and her colleagues Gabsang Lee and Congshan Sun, recently screened existing drugs using human myoblasts derived from induced pluripotent stem cells (iPSCs) from individuals living with DMD. The iPSCs are a type of stem cell that can be generated from mature living cells. Several drugs reliably produced a positive therapeutic response in the cells in culture. With this funding, the findings will be validated and trialed in the mouse model for DMD. As many of … Continue reading

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MDA walk to raise funds for muscular dystrophy, ALS – Florida Weekly

Posted: Published on April 12th, 2017

Editions: April 12, 2017 April 5, 2017 March 29, 2017 March 22, 2017 March 15, 2017 March 8, 2017 March 1, 2017 February 22, 2017 February 15, 2017 February 8, 2017 February 1, 2017 January 25, 2017 January 18, 2017 January 11, 2017 January 4, 2017 December 28, 2016 December 21, 2016 December 14, 2016 December 7, 2016 November 30, 2016 November 23, 2016 November 16, 2016 November 9, 2016 November 2, 2016 October 26, 2016 October 19, 2016 October 12, 2016 October 5, 2016 September 28, 2016 September 21, 2016 September 14, 2016 September 7, 2016 August 31, 2016 August 24, 2016 August 17, 2016 August 10, 2016 August 3, 2016 July 27, 2016 July 20, 2016 July 13, 2016 July 6, 2016 June 29, 2016 June 22, 2016 June 15, 2016 June 8, 2016 June 1, 2016 May 25, 2016 May 18, 2016 May 11, 2016 May 4, 2016 April 27, 2016 April 20, 2016 April 13, 2016 April 6, 2016 March 30, 2016 March 23, 2016 March 16, 2016 March 9, 2016 March 2, 2016 February 24, 2016 February 17, 2016 February 10, 2016 February 3, 2016 January 27, 2016 January 20, 2016 January 13, 2016 January … Continue reading

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Man with cerebral palsy is memorable in more ways than 1 … – Washington Times

Posted: Published on April 12th, 2017

Man with cerebral palsy is memorable in more ways than 1 ... Washington Times Derryberry and Jim Bradford, 73, recounted their remarkable story and how they unexpectedly met during an event hosted April 4 by the Kingsport Chamber of ... and more » Read this article: Man with cerebral palsy is memorable in more ways than 1 ... - Washington Times … Continue reading

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Valeo Pharma and Zambon Form Partnership for Parkinson’s … – Business Wire (press release)

Posted: Published on April 12th, 2017

MILAN--(BUSINESS WIRE)--Newron Pharmaceuticals S.p.A. (Newron) (SIX: NWRN), a biopharmaceutical company focused on the development of novel therapies for patients with diseases of the central nervous system (CNS) and pain, is pleased to note the news from its partner Zambon, that it has entered into a partnership with Valeo Pharma for the Canadian market to provide the 100,000 patients living with Parkinsons access to Xadago (safinamide). Canada represents one of the eight major markets. *World Parkinson's Day (WPD) is observed every year on April 11, the birthday of Dr. James Parkinson, the English physician who first described the symptoms of the disease, in 1817; thus, the 2017 WPD marks 200 years since publication of An Essay on the Shaking Palsy. The full text of the announcement from Zambon and Valeo Pharma is as follows: Valeo Pharma and Zambon form partnership for Parkinsons Disease Treatment Xadago (safinamide) in Canada April 11, 2017 Zambon S.p.A., an international pharmaceutical company strongly committed to the central nervous system (CNS) therapeutic area, and Valeo Pharma Inc., a specialty pharmaceutical company dedicated to registering and launching innovative prescription products in Canada, today announced a strategic agreement to commercialize Xadago (safinamide) for the treatment of Parkinsons disease in … Continue reading

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Van, Wheelchair Belonging to Special Needs Teen Stolen | NBC … – NBC Boston

Posted: Published on April 12th, 2017

NEWSLETTERS Receive the latest local updates in your inbox Police are investigating a heartless crime at Franciscan Childrens Hospital in Boston, where a patients handicap accessible van and wheelchair went missing from the parking lot while the teenager was getting treatment in another state. James Bostic, 17, suffers from cerebral palsy. He and his mother left for Minnesota in November to get treatment for some of the symptoms he was experiencing. What they thought would be a quick trip turned into a five-month stay, and now that they are ready to come home, they have discovered what they rely on is missing. They left their minivan, with a wheelchair inside, parked at Franciscan Childrens Hospital. When weeks turned into months in Minnesota, James mom Beth called the hospital to check on it. "There were a couple of snow storms in Boston so thats why I called someone at the hospital to see if we needed to move the van," Beth Bostic said. "Thats when I found out the van was missing." The theft is devastating to the family who is set to return to Boston from Minnesota later this week. Even after insurance covered the rest of the loan on … Continue reading

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THANK YOU: A303 crash victim’s thanks after 10000 raised for brain injury treatment – This is The West Country

Posted: Published on April 12th, 2017

AN ILMINSTER man who suffered a life-changing brain injury after a tragic car crash has thanked the public after they raised more than 10,000 to help him get treatment. Will Mieville-Hawkins NHS treatment was stopped in March and members of the public have since rallied round to raise thousands of pounds to help, including a stranger who ran in the Taunton Marathon for him. Will, 26, of Station Road, was involved in a car crash on A303 in April 2016 in which he sustained a life-changing brain injury. He said: I suffered a big brain injury but I am not sure of the actual details. It left me unable to walk and unable to use one of my arms. Will was in a coma for a month and also lost his memory from the crash until July. The latest fundraiser to support Will is Bonnie Bow-Thompson of Bradford on Tone, who ran the Taunton Half-Marathon on April 2, raising more than 500 to help Will pay for his latest treatment. I didnt know her at all and I had never met her before, Will said. I felt incredibly overwhelmed when I found out. I met her for the first time … Continue reading

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Aggie research team working on anti-seizure nasal spray – Bryan-College Station Eagle

Posted: Published on April 12th, 2017

Researchers at Texas A&M University's Health Science Center are working to develop new ways to minimize brain damage in seizure patients using a nasally administered compound to decrease potentially harmful swelling. The team's research was published Monday in the Proceedings of the National Academy of Sciences, where the researchers explained the principles being used in the study. Texas A&M College of Medicine and Associate Director of the Institute for Regenerative Medicine Ashok K. Shetty, who served as a co-senior author of the study, said the work specifically looked at the effects of a nasal compound using vesicles, isolated from adult stem cells, on preventing brain damage caused by the seizure disorder status epilepticus -- a condition that can causes single seizures of more than 30 seconds or a series of seizures during which consciousness is lost. "Clinically [status epilepticus] is a medical emergency," Shetty said. "Typically, neurologists give a combination of anti-epileptic drugs to stop the seizures, but whatever damage the seizures are doing leads to inflammation in the brain -- which those drugs do not typically treat...In this case, we nasally injected [the compound] and it resulted in suppression of the inflammation which caused multiple beneficial effects on the … Continue reading

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It Was Rebellion That Led Indian American Teen to $250000 Science Prize – India West

Posted: Published on April 12th, 2017

NEW YORK It was rebellion against parental expectations that led Indian American teen Indrani Das to embark on the brain research project that eventually won her the $250,000 Regeneron Science Talent Search award for high school students. Most Indian parents want their children to become doctors, but not her parents. Das, who calls herself a rebel, told IANS that her parents had said to her, "Whatever you do, don't be a doctor. Don't become a doctor, it's long and expensive." "So I decided I wanted to be a doctor," she said. That rebellion led her to her medical-oriented science project. Her parents Bidyut and Tanima Das, who are from Kolkata and now live in Oradell, New Jersey, are bankers by profession. The 17-year-old, who is in her final year of high school at the Academy for Medical Science Technology in Hackensack, New Jersey, said she wants to work both as a doctor and scientific researcher. "I want to be physician-scientist," she said. "I would like to see patients, but I would also like to do research." Her project, which explored ways to treat damage to the brain from injuries or disease, won her the top prize last month at the … Continue reading

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Yes, You Can Get Pregnant If You Have MS – LifeZette

Posted: Published on April 12th, 2017

People who deal with the debilitating effects of multiple sclerosis are strong and courageous. While some show few symptoms and can live a normal life, others deal with more severe effects like paralysis and impaired speech. Since women between ages 20 to 50 are the most likely to get MS, doctors expect some questions about pregnancy. How does MS affect pregnancy? Can MS patients have children? For the most part, women dealing with MS can have children successfully. On the other hand, they should know more about treating MS outside of pregnancy first. Then, they can talk with their practitioners further before getting pregnant. Breaking treatment.If MS patients are not pregnant, they will usually take a round of drugs that slow down the diseases effects. They may also take medicines to lessen painful symptoms. While the usual drugs prescribed for MS help patients somewhat, they have not proven extremely effective. Recently, researchers have been studying and testing a new drug that will even help patients with severe MS. These patients usually suffer debilitating symptoms that worsen over time, a form of MS called primary progressive. Until now, they had little hope of battling these severe effects. Then last week, the … Continue reading

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Graphene, electricity used to change stem cells for nerve regrowth … – Science Daily

Posted: Published on April 12th, 2017

Science Daily Graphene, electricity used to change stem cells for nerve regrowth ... Science Daily Iowa State University researchers, left to right, Metin Uz, Suprem Das, Surya Mallapragada and Jonathan Claussen are developing technologies to promote ... and more » Go here to read the rest: Graphene, electricity used to change stem cells for nerve regrowth ... - Science Daily … Continue reading

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