She credits an experimental stem cell treatment with giving her new hope for her health and her future -- a newfound hope that also caught attention of Republican Rep. Pete Olson. "She is the face of the 21st Century Cures Act because of what she's gone through in her life," he said Tuesday. "It became pretty clear to me that ... I (have) got to tell her story," he said. "That's why she's here: She's awesome." Immediately after the House vote, Hughes said, Olson called her at home to invite her to be his guest of honor. "I still cannot believe I will be in the same room as our President and lawmakers," she added. Hughes spent most of her adolescence hospitalized, as she became so sick that she could barely walk and suffered immense pain. Her body was evaluated, treated and studied at the National Institutes of Health in collaboration with her doctors from the University of Texas Health Science Center at Houston. Yet relief came in 2014, when Hughes received a high-dose adult stem cell treatment that was not approved in the United States. For the procedure, Hughes had her own healthy stem cells cultured at the FDA-registered … Continue reading
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