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Waskoms VFD sets annual Fill the Boot fundraiser

Posted: Published on August 22nd, 2014

Members of Waskom Volunteer Fire/EMS will again be participating in the Annual Muscular Dystrophy Association Fill the Boot fundraising campaign on Labor Day, Monday, Sept. 1. The boot drive has been a community project of the Waskom VFD for a number of years and Waskom VFD members will be joining many other fire departments nationwide in raising money for MDA. Chief Murf King reports that VFD volunteers and emergency vehicles will be stationed at several major intersections in Waskom beginning around 8 a.m. Monday morning and the drive will last until around noon. Firefighters will be holding fire boots and will be asking that Waskom area citizens and persons traveling through the Waskom area make generous contributions to support MDA. Donations received will be turned in as part of effort to raise money for the Muscular Dystrophy Association. Monies raised in the Fill the Boot campaign help provide services and equipment to families in the ArkLaTex area and helps fund research projects aimed at finding causes, cures, and treatment for 43 neuromuscular diseases. More information on the local services provided by MDA can be obtained by calling Samantha Bower in the Ark-La-Tex MDA office at (318) 742-3632. Waskom area citizens … Continue reading

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Venture Philanthropy: How a Mother's Love for Her Son Led Her to a New Nonprofit Model

Posted: Published on August 22nd, 2014

This article is by Debra Miller, cofounder and chief executive of CureDuchenne. How do you raise millions of dollars to help find a cure for a terminal disease that affects 300,000 boys worldwideand parlay that into more than $100 million in pharma and biotech R&D investment?When my beautiful five-year-old son was diagnosed with Duchenne muscular dystrophy 12 years ago, I wasnt sure, but I knew I had to do something to try to save him and the hundreds of thousands of other boys afflicted with the rare progressive muscle-wasting disease. I founded CureDuchenne with my husband, Paul, in 2003. We wanted to create a nonprofit business model that would allow us to help accelerate drug development for the treatment of Duchenne. We turned to the very few examples of venture philanthropy in existence for inspiration. Now three of the projects CureDuchenne funded are close to becoming the first drugs to be approved for the treatment of the disorder. We have just begun a new $7 million investment to speed the work along. Paul and Debra Miller with their son, Hawken. Venture philanthropy is a way nonprofit organizations can become self-sustaining while raising funding for new programs or projects. The nonprofit … Continue reading

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2014 One Hour Long Cycle with Kettlebells 4 Autism – Video

Posted: Published on August 22nd, 2014

2014 One Hour Long Cycle with Kettlebells 4 Autism When? Join us on Saturday October 18, 2014. Start time- 11:00 a.m. (PDT) This year marks the 5 year anniversary of the One Hour Long Cycle! Why take part in the 2014 One Hour Long Cycle... By: Jason Dolby … Continue reading

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What causes autism? Scientists discover people with the condition have too many brain 'connections'

Posted: Published on August 22nd, 2014

People with autism have too many synapses in their brains, say researchers Synapses are places where where neurons connect and communicate Surplus synapses due to a lack of pruning that normally occurs early in life Discovery is huge leap in understanding of the complex condition - and could pave the way for possible treatments By Ben Spencer for the Daily Mail Published: 13:20 EST, 21 August 2014 | Updated: 03:59 EST, 22 August 2014 5,434 shares 251 View comments People with autism have too many synapses in their brains - places where where neurons connect and communicate Scientists say they have discovered the reason why some people suffer from autism. Those with the condition have too many synapses in their brains - places where where neurons connect and communicate, a new study has found. Scientists at Columbia University in New York believe that the surplus synapses are created because of a lack of pruning that normally occurs early in life. More: What causes autism? Scientists discover people with the condition have too many brain 'connections' … Continue reading

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Regulator: Insurers May Not Limit Doctor Visits For Autism Treatment

Posted: Published on August 22nd, 2014

Insurance companies may not limit the number of doctor visits to treat autism, the Connecticut Insurance Department said in a bulletin this week. The Affordable Care Act passed by Congress in 2010 prohibits a dollar limit on benefits in a health, including money used for "Applied Behavioral Analysis," according to the department. However, guidelines from the U.S. Department of Health and Human Services to state insurance regulators left open the option of an actuarial approach that could be used to limit the number of visits to a clinician's office for autism treatment, the department said. "This bulletin, in a single sense, basically lifts any limitations on autism treatment for families in Connecticut who are covered commercially," said Connecticut's deputy insurance commissioner, Anne Melissa Dowling. "There was so just so much anxiety from families and very few pierce those limits anyway. So, in conversations that I had personally with each one of the companies, we asked them if there was any reason to keep limits," Dowling said. Each insurer that had an actuarial limit on autism treatments agreed to lift it this year, rather than wait for new requirements that would take effect in 2015, Dowling said. Read more from the … Continue reading

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Autistic children may have too many synapses

Posted: Published on August 22nd, 2014

The surplus synapses - places where neurons connect and communicate - is due to a lack of "pruning" that normally occurs early in life. In mice with autistic traits, scientists were able to restore synaptic pruning and reduce symptoms with a drug used to suppress the immune systems of transplant patients. Loading article content The drug, rapamycin, has side-effects that make it unsuitable as an autism treatment. But the discovery opens up possibilities for other therapies based on synaptic pruning. Excessive synapses could be a fundamental causal factor behind autism, the scientists believe. "This is an important finding that could lead to a novel and much-needed therapeutic strategy for autism," said Professor Jeffrey Lieberman, chairman of psychiatry at Columbia University Medical Centre in New York, where the research took place. Autism, which affects about 500,000 people in the UK, covers a range of behavioural disorders that reduce the ability of sufferers to communicate with and relate to other people. It is though to be triggered by a combination of genetic and environmental factors. During normal brain development, a burst of synapse formation occurs in infancy, especially in the cortex - a region closely linked to autistic behaviour. Pruning removes more … Continue reading

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Blood Transfusions May Cut Risk of 'Silent' Stroke in Kids With Sickle Cell

Posted: Published on August 22nd, 2014

By Amy Norton HealthDay Reporter WEDNESDAY, Aug. 20, 2014 (HealthDay News) -- Monthly blood transfusions may lower the chances of "silent" strokes in some children with sickle cell anemia, a new clinical trial indicates. The study, reported in the Aug. 21 issue of the New England Journal of Medicine, found that in children with a previous silent stroke, monthly blood transfusions cut the rate of future strokes by more than half. The researchers said their findings support screening children with sickle cell for evidence of silent stroke -- something that is not routinely done now. "Prior to this, there was no treatment, so the argument was, 'Why screen?'" explained Dr. James Casella, vice chair of the clinical trial and director of pediatric hematology at Johns Hopkins Children's Center in Baltimore. "Now we have a treatment to offer." However, Casella also stressed that "this study is a first step, not the last one." Many questions remain, he said. A big one is, do the blood transfusions have to be continued for life? "It's possible the treatment could be indefinite," Casella said. Sickle cell anemia is an inherited disease that mainly affects people of African, South or Central American or Mediterranean descent. … Continue reading

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Nikki Spangler ice bucket challenge – Video

Posted: Published on August 22nd, 2014

Nikki Spangler ice bucket challenge I did the als ice bucket challenge but instead donated to Team Gleason because they don't do stem cell research. I nominate my favorite nascar driver Kasey Kahne! By: Nikki Spangler … Continue reading

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Catholic Archdiocese denounces Ice Bucket Challenge over stem cell research

Posted: Published on August 22nd, 2014

The Cincinnati Archdiocese asked Catholic schools to refrain from donating to the ALS Association, due to the possibility that the funds will be used to support embryonic stem cell research, the Washington Postis reporting. This summer the ALS Association has raised over $30 million, and counting, in conjunction with the viral ALS Ice Bucket Challenge. Catholic schools, are still permitted to participate and film themselves dumping ice-cold water on their heads and to donate. They just must donate to morally acceptable charities, like theJohn Paul II Medical Research Institute in Iowa. We appreciate the compassion that has caused so many people to engage in this, the Archdioceses spokesman Dan Andriaccotold the Cincinnati Enquirer. But its a well-established moral principle that a good end is not enough. The means to that ends must be morally licit. So what is so potentially morally illicit about donating? The Catholic Church fears that they money will go to embryonic stem cell research. With embryonic stem cell research, as opposed to adult stem cell research, the stem cells must be taken from, you guessed it a four to five day old embryo.The destruction of the embryo, to the Catholic Church, is tantamount to abortion. The … Continue reading

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ALS Ice Bucket Challenge prompts Catholic criticism over embryonic research

Posted: Published on August 22nd, 2014

(PIX11) As the Ice Bucket Challenge grows in a popularity by the day, a Catholic archdiocese in Ohio has denounced donations to the ALS Association, because of the organizations position on embryonic stem-cell research. Jimmy Rigg, superintendent of the Catholic schools for the Archdiocese of Cincinnati, told 113 schools to immediately cease donations to the association. We appreciate the compassion that has caused so many people to engage in this, said Dan Andriacco, the archdiocese spokesman. But its a well-established moral principle that a good end is not enough. The means to that ends must be morally licit. Father Michael Duffy published a blog poston Pathoes.com condemning the ALS Ice Bucket Challenge and the practices of the ALS Association. The problem that I have the with ALS Ice Bucket challenge is that the ALS Association is a supporter of embryonic stem cell research, explained Duffy. Because the Catholic Church holds that life begins at conception, many believe destroying an embryo is comparable to taking a life. The American Life League, an anti-abortion organization, has tagged the ALS Association as being not worthy of support from pro-lifers. However, Life League admits the ALS Association primarily funds adult, not embryonic stem cell … Continue reading

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