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Chesapeake firefighters ask drivers to help Fill the Boot

Posted: Published on August 14th, 2014

by 13News Now WVEC.com Posted on August 14, 2014 at 9:44 AM Updated today at 12:49 PM CHESAPEAKE -- Fire departments across Hampton Roads will be asking you to help them Fill the Boot. The campaign in Chesapeake to benefit the Muscular Dystrophy Association is August 15th-17th and 22nd-24th. Every dollar that drivers pitch into the firefighters boots helps Local 2449 firefighters provide medical treatment and support services to individuals and their families living with neuromuscular diseases in the area. "We know the money we raise definitely makes a difference in the lives of people affected by neuromuscular diseases, and that it helps them get the care they need, said LOCAL 2449 Fill the Boot Coordinator, Chris Moore. Fill the Boot is a proud tradition for us, and its a great way for fire fighters to be out in the community reminding residents that we are here, always ready to help. The International Association of Fire Fighters has been a national MDA partner for more than 60 years and remains committed to the fight to end neuromuscular diseases. Fill the Boot funds also are used to support some of the 300 worldwide research projects seeking better treatments and cures for … Continue reading

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Exploring The Impact Of A Ruling On Autism Treatment

Posted: Published on August 14th, 2014

Contributed By: Allison Frost OPB | Aug. 14, 2014 12:20 p.m. | Updated: Aug. 14, 2014 1:56 p.m. A few years ago, Paul Terdal told us hispersonal story about life with two autistic sons. At that time hewas trying to get his insurer, Kaiser Permanente, to cover a treatment calledApplied Behavior Analysis (ABA). He ultimately prevailed, and his sons began getting the ABA treatment. Kaiserchanged its policy and now routinely coversABA. This week acourt ruled that Providence, which hadalso denied ABA insurance claims, was violating state and federal law by denying such treatment. Well talk with Terdal about how his sons have responded to the treatment and what he sees as the broader implications of this weeks ruling. And well also find about about the families of autistic children who he has helped shepherd through the complicated world of health insuranceappeals. Rose E. Tucker Charitable Trust James F. and Marion L. Miller Foundation Dawn and Al Vermeulen Ray and Marilyn Johnson View original post here: Exploring The Impact Of A Ruling On Autism Treatment … Continue reading

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State Will Tell Insurers to Stop Denying Autism Treatment

Posted: Published on August 14th, 2014

Seven years after families began asking the Oregon Insurance Division to intervene on their behalf, the states insurance regulator announced today it will issue a formal bulletin, clarifying that insurers cannot refuse to cover a costly therapy for autistic kids called Applied Behavior Analysis. The decision comes a week after a federal judge ruled that the Providence Health Plan broke federal and state law by denying coverage for the treatment. Since 2007, families have won more than 20 appeals to Independent Review Organizations after insurers failed to pay for ABA, which for more than a decade has been considered medically necessary, effective and the national standard of care to treat children with autism. In 2010, a federal judge in Portland ordered PacificSource to pay for the treatment after the insurer argued the therapy was experimental and educational. The great majority of the studies in the record indicate that ABA therapy is not only supported by decades of research, but is one of the only autism treatments which has consistently shown measurable success in improving the lives of autistic children, the judge ruled in that case. California ordered its insured to stop denying coverage in 2011. Meanwhile the Oregon Insurance Division … Continue reading

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Adults with autism at higher risk of sexual victimization: York University study

Posted: Published on August 14th, 2014

PUBLIC RELEASE DATE: 14-Aug-2014 Contact: Gloria Suhasini suhasini@yorku.ca 416-736-2100 x22094 York University Adults with autism are at a higher risk of sexual victimization than adults without, due to lack of sex education, but with improved interventions that focus on sexual knowledge and skill building, the risk could be reduced, according to a recent study by York University researchers. "Adults with Autism Spectrum Disorder (ASD) gain more of their sexual knowledge from external sources such as the internet and the television whereas social sources would include parents, teachers and peers," says Professor Jonathan Weiss in the Faculty of Health and the CIHR Chair in Autism Spectrum Disorders Treatment and Care Research. The study, conducted by Weiss, and clinical developmental psychology PhD candidates Stephanie Brown-Lavoie and Michelle Viecili, found that the lack of sexual knowledge in adults with autism played a role in increasing the risk of sexual victimization experiences of sexual coercion, unwanted sexual contact, attempted rape or rape. The researchers used an online survey involving 95 adults with ASD and 117 without, ranging in age from 19 to 43. Of the 95 participants with ASD, 78 per cent reported at least one occurrence of sexual victimization compared to 47.4 per … Continue reading

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University of California brings researchers together for statewide autism summit

Posted: Published on August 14th, 2014

PUBLIC RELEASE DATE: 13-Aug-2014 Contact: Phyllis Brown phyllis.brown@ucdmc.ucdavis.edu 916-734-9111 University of California - Davis Health System (SACRAMENTO, Calif.) Bringing together the research prowess of the University of California to address the increase in autism incidence, its public health impacts, and the need to speed the development of treatments for affected individuals and their families, internationally respected scientists from UC campuses at Irvine, Los Angeles, San Diego, San Francisco and Davis will converge at the UC Davis MIND Institute for a daylong summit on innovative translational neurodevelopmental research. An initiative of the UC Office of the President, the University of California Summit on Translational Research in Autism Spectrum Disorders will be held Thursday, Aug. 14, from 8 a.m. to 5 p.m. at the UC Davis MIND Institute, 2825 50th St., Sacramento. The summit will include a presentation via video conference on "Pressing Issues for a Translational Science of Autism Spectrum Disorder" by Thomas Insel, director of the National Institute of Mental Health (NIMH). Participation in the summit is by invitation only. "The increase in autism spectrum disorder cases has exceeded the capacity of public and private organizations to provide effective health care, education and treatment to affected families," said Leonard Abbeduto, … Continue reading

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State Finally Tells Insurers to Cover Autism Treatment

Posted: Published on August 14th, 2014

Seven years after families began asking the Oregon Insurance Division to intervene on their behalf, the states insurance regulator announced today it will issue a formal bulletin, clarifying that insurers cannot refuse to cover a costly therapy for autistic kids called Applied Behavior Analysis. The decision comes a week after a federal judge ruled that the Providence Health Plan broke federal and state law by denying coverage for the treatment. Since 2007, families have won more than 20 appeals to Independent Review Organizations after insurers failed to pay for ABA, which for more than a decade has been considered medically necessary, effective and the national standard of care to treat children with autism. In 2010, a federal judge in Portland ordered PacificSource to pay for the treatment after the insurer argued the therapy was experimental and educational. The great majority of the studies in the record indicate that ABA therapy is not only supported by decades of research, but is one of the only autism treatments which has consistently shown measurable success in improving the lives of autistic children, the judge ruled in that case. California ordered its insured to stop denying coverage in 2011. Meanwhile the Oregon Insurance Division … Continue reading

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Autism Summit Today at University of California Davis

Posted: Published on August 14th, 2014

(SACRAMENTO, Calif.) - Bringing together the research prowess of the University of California to address the increase in autism incidence, its public health impacts, and the need to speed the development of treatments for affected individuals and their families, internationally respected scientists from UC campuses at Irvine, Los Angeles, San Diego, San Francisco and Davis will converge at the UC Davis MIND Institute for a daylong summit on innovative translational neurodevelopmental research. An initiative of the UC Office of the President, the University of California Summit on Translational Research in Autism Spectrum Disorders will be held Thursday, Aug. 14, from 8 a.m. to 5 p.m. at the UC Davis MIND Institute, 2825 50th St., Sacramento. The summit will include a presentation via video conference on "Pressing Issues for a Translational Science of Autism Spectrum Disorder" by Thomas Insel, director of the National Institute of Mental Health (NIMH). Participation in the summit is by invitation only. "The increase in autism spectrum disorder cases has exceeded the capacity of public and private organizations to provide effective health care, education and treatment to affected families," said Leonard Abbeduto, Vismara-Tsakopoulos Endowed Chair and director of the MIND Institute. "We must develop new, more effective … Continue reading

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Olympian Amy Van Dyken-Rouen leaves hospital feeling 'a thousand times better'

Posted: Published on August 14th, 2014

News Amy Eley TODAY 4 hours ago For Amy Van Dyken-Rouen, Thursday marked another great stride in the wake of her spinal-cord injury. The six-time Olympic swimming champion was released from Craig Hospital in Denver, where she has been receiving treatment since severing her spinal cord in June in an accident that left her paralyzed below the waist. Im a thousand times better, she said on Thursday at the time of her release. Physically ... and mentally as well. Brennan Linsley / AP Amy Van Dyken-Rouen sits in her wheelchair beside her husband, Tom Rouen and Craig Hospital CEO Mike Fordyce, as all three talk about her stay at the hospital over the past two months. The Colorado native thanked the medical staff before leaving and spoke about the highs and lows of her hospital stay. She said her hardest moment was entering the pool for the first time since the accident and realizing she could no longer swim laps. Theres been a lot of tears shed for sure, Van Dyken-Rouen said. This is not easy and I dont want to portray the fact that because I have a smile on my face, it really is easy. Its really not. … Continue reading

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Michael J. Fox 'Stunned' by Robin Williams's Parkinson's Diagnosis

Posted: Published on August 14th, 2014

Could Robin Williams's battle with Parkinson's disease have exacerbated his existing issues with depression? On Thursday, the late actor's widow, Susan Schneider, revealed Williams had been struggling, before his death at age 63, with the early stages of the neurodegenerative disorder. Michael J. Fox has said that he felt depressed and turned to alcohol when he was first diagnosed with the disease in 1991. "My first reaction to it was to start drinking heavily," he admitted last year. "I used to drink to party, but now I was drinking alone and every day." "Once I did that it was then about a year of like a knife fight in a closet, where I just didn't have my tools to deal with it," he said. Fox went to Alcoholics Anonymous and therapy to help him cope. Fox Tweeted his reaction Thursday to the news of Williams's own struggle with the diagnosis, and noted that the Academy Award winner supported his foundation for Parkinson's research. "Stunned to learn Robin had PD. Pretty sure his support for our Fdn predated his diagnosis. A true friend; I wish him peace." The disease causes many patients to "suffer from major depression," according to Dr. Michael … Continue reading

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Intel wearable devices to aid Parkinson's disease research

Posted: Published on August 14th, 2014

Shara Tibken/CNET Intel's upcoming wave of wearable technology won't be aimed at helping the chip maker establish itself in the budding consumer electronics' space now filling up with smartwatches and fitness bands. Rather, Intel's devices will serve a grander purpose: helping research on and treatment of neurodegenerative brain disease. Intel announced Wednesday a partnership with the Michael J. Fox Foundation for Parkinson's Research, the nonprofit founded in 2000 by the "Back to the Future" movie actor and Parkinson's advocate who has suffered from the illness since 1991. The goal will be to combine Intel's hardware and software -- specifically an upcoming mobile app, new wearable devices, and a data analytics platform -- for a multi-phase research study that will take advantage of monitoring techniques unique to technology. The hope is that wearables and analytic studies of the data they produce could better record a patient's symptoms, such as hand tremors, and offer new insights into Parkinson's disease and its drug treatments, which have been difficult to study objectively on a widespread scale in the past. "Nearly 200 years after Parkinson's disease was first described by Dr. James Parkinson in 1817, we are still subjectively measuring Parkinson's disease largely the same … Continue reading

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