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Muscular dystrophy petition 3K signatures short of goal

Posted: Published on March 26th, 2014

A petition for the Federal Drug Administration to consider a new drug treatment for Duchenne muscular dystrophy is close to a critical milestone. WLWT News 5 spoke with a Cincinnati family Monday whose 3-year-old son, Mason, has Duchenne muscular dystrophy. The Diersing Family wanted to raise awareness about the disease and a new treatment that is up for consideration. They asked people to sign an online petition for the FDA to consider a new experimental drug for treating the genetic disease. I tell people that it's a mourning period that you go through. You really mourn a life that you thought was going to be one way and it's going to be drastically different, said Katherine Mayrhofer Diersing, Masons mother. The petition is only 3,000 signatures from 100,000. If the petition reaches 100,000 signatures by Saturday, the White House said it will take action on the proposal. We have no time. Science is finally on our side. We have no time and the Food and Drug Administration is dragging its heels, said Dr. Benjamin Seckler, a physician who founded the national nonprofit organization fighting for DMD Charleys Fund said. Children are dying. To sign the petition or find out more … Continue reading

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Ryan Dunne's White House petition reaches 100K

Posted: Published on March 26th, 2014

Winter Storm Watchissued March 25 at 3:47PM MDT expiring March 28 at 6:00AM MDT in effect for: Chaffee, Conejos, Lake, Mineral, Rio Grande, Saguache Winter Storm Watchissued March 25 at 4:10PM MDT expiring March 28 at 9:00AM MDT in effect for: Eagle, Garfield, Moffat, Rio Blanco, Routt Winter Storm Watchissued March 25 at 4:10PM MDT expiring March 28 at 9:00AM MDT in effect for: Archuleta, Delta, Dolores, Eagle, Garfield, Gunnison, Hinsdale, La Plata, Mesa, Montezuma, Montrose, Ouray, Pitkin, San Juan, San Miguel Winter Storm Watchissued March 25 at 3:59PM MDT expiring March 28 at 9:00AM MDT in effect for: Eagle, Garfield, Moffat, Rio Blanco, Routt Winter Storm Watchissued March 25 at 3:59PM MDT expiring March 28 at 9:00AM MDT in effect for: Archuleta, Delta, Dolores, Eagle, Garfield, Gunnison, Hinsdale, La Plata, Mesa, Montezuma, Montrose, Ouray, Pitkin, San Juan, San Miguel Fire Weather Warningissued March 25 at 3:08PM MDT expiring March 26 at 8:00PM MDT in effect for: Baca, Bent, Crowley, El Paso, Fremont, Huerfano, Kiowa, Las Animas, Otero, Prowers, Pueblo Fire Weather Watchissued March 25 at 4:13AM MDT expiring March 26 at 8:00PM MDT in effect for: Baca, Bent, Crowley, El Paso, Fremont, Huerfano, Kiowa, Las Animas, Otero, Prowers, Pueblo … Continue reading

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Purple Day raises awareness of epilepsy challenges

Posted: Published on March 26th, 2014

By RACHEL AFFLICKMarch 25, 2014, 11 p.m. Living with epilepsy has its challenges but Ballarat resident Kamina Handyside is no different to everyone else. Living with epilepsy has its challenges but Ballarat resident Kamina Handyside is no different to everyone else. The mother of three has just applied to enrol in a behavioural studies course at university and is looking forward to a bright and healthy future. Having developed epilepsy in 2008 while pregnant with her second child, Ms Handyside found herself falling into dreamlike states and experiencing strange sensations and hallucinations. After numerous tests and hospital visits she was diagnosed with right temporal lobe epilepsy, but finding a successful treatment took much longer. I ended up in bed for 30 days having 30 seizures a day, Ms Handyside said. It certainly impacted our whole family. She also lost four years of memories, including during and after two of her pregnancies. Today is Purple Day, an international grassroots effort dedicated to increasing awareness of epilepsy. See more here: Purple Day raises awareness of epilepsy challenges … Continue reading

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Parents want epilepsy added to list for medical marijuana

Posted: Published on March 26th, 2014

SPRINGFIELD Parents of children with seizure disorders will be among those testifying before state lawmakers Tuesday, seeking to add epilepsy to the list of allowable compassionate uses under the state's new medical marijuana law. The law currently lists 35 debilitating medical conditions for which marijuana can be obtained and used as a treatment among them cancer, Chron's disease, glaucoma and severe fibromyalgia. About 2.2 million people in the U.S. have epilepsy, according to the Epilepsy Foundation. The Epilepsy Foundation of Greater Chicago contends it is appropriate to allow patients, parents and doctors the ability to determine if marijuana is an appropriate treatment in each individual epilepsy case given evidence of the impact that cannabidiol (CBD), a compound found in marijuana, can have on seizures. "Right now, there is anecdotal evidence that the cannabidiol has helped people reduce seizures," said the organization's director of communications, Morgan Murphy. The hearing before the Senate Public Health Committee on SB 2636 is set for 1 p.m. Tuesday in Room 409 of the Illinois State Capitol. The proposed amendment would allow access to medical marijuana to both adults and minors suffering from seizure disorders. "Medical marijuana has been found to produce significant benefits for patients … Continue reading

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Risperdal Use Approved for Irritability Treatment in Children, Adolescents with Autism

Posted: Published on March 26th, 2014

Risperdal is approved by the FDA to treat irritability in children and young adults with autism. The FDA first approved this use in 2006 and was the first drug used to treat behaviors associated with autism. At that time, the FDA released results from controlled-trials which found that children on Risperdal showed improvement for some behavioral symptoms versus those on the placebo. The side effects reported by the FDA included weight gain, constipation, drowsiness, and fatigue. What is Autism Spectrum Disorder? There are over 2 million people affected by autism spectrum disorder (ASD) across the U.S. It is a common term for complex disorders of brain development. This can affect motor coordination, attention, intellectual disabilities, and/or physical health issues. It is important to note that those on the spectrum are affected by the disorder in different ways. The disorder is more common among boys than girls. Its not entirely clear what causes autism spectrum disorder, and there is no one single cause. Research shows that environmental factors such as illness during pregnancy, and genetic factors, such as mutations can both contribute to different types of autism. Women can help reduce this risk by getting enough folic acid before and during … Continue reading

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Star power sheds light on autism

Posted: Published on March 26th, 2014

Ed Asner was in the throes of a custody battle when a psychologist examining the family remarked that his son seemed to lack empathy. Two weeks later, doctors at UCLA's Center for Autism Research and Treatment revealed that Charles, then 7 or 8, was on the autism spectrum. "I thought he was utterly charming, and I was in love with him," Asner, 84, said. "I was his slave, so I don't care what title you put on it. He was my boy and I would do whatever I had to do to treat him." Today, his boy is 26 years old, and the Emmy recipient and former Screen Actors Guild president also has a grandson, Will, who is similarly afflicted, although to a different extent. A longtime supporter of the advocacy organization Autism Speaks, Asner finds that people living with the disorder have wonderful qualities including phenomenal brain power and honesty that more than make up for their struggles with interpersonal relationships. "They believe there's a pony in the tent someplace," he said, deeming such people "a motherlode of discovery." On April 2, the Santa Ana-based Center for Autism and Neurodevelopmental Disorders will host Asner at "Autism and the Arts" … Continue reading

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BSL Stroke Treatment – Video

Posted: Published on March 26th, 2014

BSL Stroke Treatment BSL clip explaining Stroke treatment. By: SignHealth … Continue reading

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USF study: Blood-brain barrier repair after stroke may prevent chronic brain deficits

Posted: Published on March 26th, 2014

PUBLIC RELEASE DATE: 25-Mar-2014 Contact: Anne DeLotto Baier abaier@health.usf.edu 813-974-3303 University of South Florida (USF Innovation) TAMPA, Fla. (March 25, 2014) Following ischemic stroke, the integrity of the blood-brain barrier (BBB), which prevents harmful substances such as inflammatory molecules from entering the brain, can be impaired in cerebral areas distant from initial ischemic insult. This disruptive condition, known as diaschisis, can lead to chronic post-stroke deficits, University of South Florida researchers report. In experiments using laboratory rats modeling ischemic stroke, USF investigators studied the consequences of the compromised BBB at the chronic post-stroke stage. Their findings appear in a recent issue of the Journal of Comparative Neurology. "Following ischemic stroke, the pathological changes in remote areas of the brain likely contribute to chronic deficits," said neuroscientist and study lead author Svitlana Garbuzova-Davis, PhD, associate professor in the USF Health Department of Neurosurgery and Brain Repair. "These changes are often related to the loss of integrity of the BBB, a condition that should be considered in the development of strategies for treating stroke and its long-term effects." Edward Haller of the USF Department of Integrative Biology, the coauthor who performed electron microscopy and contributed to image analysis, emphasized that "major BBB … Continue reading

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Blood-brain barrier repair after stroke may prevent chronic brain deficits

Posted: Published on March 26th, 2014

Following ischemic stroke, the integrity of the blood-brain barrier (BBB), which prevents harmful substances such as inflammatory molecules from entering the brain, can be impaired in cerebral areas distant from initial ischemic insult. This disruptive condition, known as diaschisis, can lead to chronic post-stroke deficits, University of South Florida researchers report. In experiments using laboratory rats modeling ischemic stroke, USF investigators studied the consequences of the compromised BBB at the chronic post-stroke stage. Their findings appear in a recent issue of the Journal of Comparative Neurology. "Following ischemic stroke, the pathological changes in remote areas of the brain likely contribute to chronic deficits," said neuroscientist and study lead author Svitlana Garbuzova-Davis, PhD, associate professor in the USF Health Department of Neurosurgery and Brain Repair. "These changes are often related to the loss of integrity of the BBB, a condition that should be considered in the development of strategies for treating stroke and its long-term effects." Edward Haller of the USF Department of Integrative Biology, the coauthor who performed electron microscopy and contributed to image analysis, emphasized that "major BBB damage was found in endothelial and pericyte cells, leading to capillary leakage in both brain hemispheres." These findings were essential in … Continue reading

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End-of-life decisions in patients with severe acute brain injury

Posted: Published on March 26th, 2014

Most in-hospital deaths of patients with stroke, traumatic brain injury, or postanoxic encephalopathy after cardiac arrest occur after a decision to withhold or withdraw life-sustaining treatments. Decisions on treatment restrictions in these patients are generally complex and are based only in part on evidence from published work. Prognostic models to be used in this decision-making process should have a strong discriminative power. However, for most causes of acute brain injury, prognostic models are not sufficiently accurate to serve as the sole basis of decisions to limit treatment. These decisions are also complicated because patients often do not have the capacity to communicate their preferences. Additionally, surrogate decision makers might not accurately represent the patient's preferences. Finally, in the acute stage, prediction of how a patient would adapt to a life with major disability is difficult. See the article here: End-of-life decisions in patients with severe acute brain injury … Continue reading

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