Parkinson's Disease sufferer from York pressing ahead with trip to Kiev for pioneering treatment, despite political turmoil 2:49pm Monday 20th January 2014 in News By Mike Laycock, Chief reporter A PARKINSONS Disease sufferer from York is pressing ahead with a trip to Ukraine for pioneering stem cell treatment - despite growing political turmoil and personal difficulties in getting insurance. The Press reported earlier this month how James DeLittle, 49, of Broadway West, Fulford, was hoping the two-day course in the capital Kiev will tackle his worsening condition, lessening symptoms such as poor balance, tremor, difficulties controlling his limbs and slurred speech. The treatment, which involves foetal stem cells being injected into his stomach and arms, will cost about 7,000. The former St Peters School pupil believes he will be the first person from the UK to receive it. His mother Rosemary revealed yesterday (mon) that after reading the newspapers report, several relatives and friends of the family had made additional donations towards the bill, including one man who had known James late father when he was a child and had sent a cheque for 100. I was very touched, she said. She said she had been worried about the impact … Continue reading →

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By ALANNA DURKIN/Associated Press/January 19, 2014 AUGUSTA, Maine (AP) More children would receive private insurance coverage for autism treatment under a bill being considered by Maine lawmakers. But the price tag it carries gives it an uncertain future in the Democrat-controlled Legislature this session. Current law, which mandates that insurance companies provide coverage for treatment of autism spectrum disorder only for children ages 5 and under, is preventing families from getting effective, proven treatment for their children or forcing them onto Medicaid, say advocates who are pushing for the bill that would raise that age to 21. Were basically boxing people into a corner, said Nancy Cronin, executive director of the Maine Developmental Disabilities Council. Medicaid now covers applied behavior analysis treatment a regimen that psychiatric and medical professionals say is the most effective and promising for autistic children if their autism is so severe that they would be institutionalized without treatment. But families may not want to go onto Medicaid or their child may have a mild form of autism, preventing them from qualifying for the approach that teaches children skills by breaking them down into smaller skills, she said. Furthermore, many children arent diagnosed with autism until theyre … Continue reading →

HARTFORD The Sandy Hook Advisory Commission secured a promise Friday from Peter Lanza to turn over at least some of Newtown shooter Adam Lanza's treatment records, and heard from two of the foremost autism experts on what the disorder isn't, as much as what it is. Peter Lanza "called me during the last presentation,'' Sandy Hook panel Chairman Scott Jackson said before the commission broke for lunch Friday afternoon. "I'm going to sit down with him in short order" to work out the parameters of a records release. Jackson, the mayor of Hamden, said earlier Friday that Peter Lanza had reached out to him recently and promised to help the commission in its quest to better understand what drove Lanza's son to kill 26 children and women at Sandy Hook Elementary School on Dec. 14, 2012, and to analyze Connecticut's mental health system for gaps and breakdowns. Peter Lanza's commitment was one step on that journey Friday; another was hearing Dr. Fred R. Volkmar of Yale and Matthew D. Lerner of Stony Brook University in New York cite study after study showing no link between autism spectrum disorders and violent crime. Adam Lanza "displayed a profound autism spectrum disorder with … Continue reading →