May Liang Many years ago, my uncle was diagnosed with epilepsy. As the story goes, when he was a baby, he was dropped on his head. Then, the seizures started. My uncles epilepsy shaped his life and the choices he made. In my culture, like in many others, epilepsy is a condition not to be talked about. Even today, epilepsy is often associated with shame, superstition, stigma, secrecy and negative perceptions. But we should all know better. Epilepsy knows no boundarieswhether they be race, gender, age or geography. People with epilepsy span all walks of life, including children and adults, college students, athletes, professionals, parents and grandparents. While epilepsy is one of the worlds oldest known medical conditions and an estimated 1.5 percent of Asian Americans live with this chronic condition, in our community there is still a lack of information that leads to confusion, misunderstanding, fear and a reluctance to talk about epilepsy. And for those who do not speak English or dont speak it very well, patients and caregivers alike, getting information about epilepsy and separating the facts from the myths is hard. Growing up, the condition wasnt discussed in my family, and my uncle was fortunate that … Continue reading
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