Newswise MAYWOOD, Il. Several companies sell genetic testing directly to consumers, but little research has been done on how consumers experience such tests. The tests have raised questions about the validity and accuracy of the information provided to consumers especially without the involvement of a qualified health care professional. Now, a study lead by a Loyola University Chicago Stritch School of Medicine researcher is providing insight into how a diverse sample of primary care patients experience genetic testing. Lead researcher Katherine Wasson, PhD, MPH, and colleagues conducted in-depth interviews with 20 patients recruited from primary care clinics. Among the findings, published online ahead of print in the Journal of Community Genetics: - Most participants thought results were fairly easy to understand with the help of a genetic counselor (provided by the study, not the testing company). But fewer than half said they might be able to understand results on their own. - Most participants expressed no concern or hesitation about testing. But a few worried about confidentiality especially whether results could affect their health insurance coverage. A few also expressed fears about getting bad results. As one participant explained, I mean, you want to know, but then you dont want … Continue reading
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