By Liz Lane, Sky Reporter The family of a teenage girl who died from a rare form of bone cancer is calling for the relaxation of rules governing who is eligible to take part in potentially life-saving drugs trials. Despite the pleas of her parents, doctors and politicians, Chloe Drury was refused access to treatment being trialled by American pharmaceutical company BioMarin. Her family says she was told last September, when she was 17, that she was too young to take part, and that her participation could "jeopardise [her] safety and the integrity of the trial data". Chloe, from Purley in Surrey, died in February, a month after her 18th birthday. She had finally been allowed on the course to treat her Ewing's Sarcoma, but the cancer had progressed aggressively and it was too late. Her mother, Debbie Binner, says she felt totally impotent. "We were just sitting there watching our beautiful 17-year-old daughter get weaker and weaker, knowing there is something out there she could have had and it just seems totally wrong to me, and not a world that I want to live in that treats young people like that." BioMarin said in a statement: "Our deepest sympathy … Continue reading
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