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Man makes sick kids feel like super heroes

Posted: Published on March 21st, 2013

ST. LOUIS (KSDK) - It's a mission of super hero proportions. A man with cerebral palsy is reaching out to help children with the same disorder. The idea is, if you feel like a super hero, you can act like one. "I want to show them that it's possible to do what you can do while you can do it, as long as you try," said Marty Gregoire. Gregoire had to undergo multiple surgeries just to walk. Now, he runs a 5K every single month. He motivates himself by motivating others. He founded the Capes for Kids program, which provides personally monogrammed super-hero capes for children facing surgery or taking an important step in their CP treatment. Gregoire is from New York, but on Thursday his work reached all the way to St. Louis. Maya received her super hero cape to help her through recovery from a tough surgery at St. Louis Children's Hospital. She had the same procedure that Gregoire had about eight years ago. She was one of two patients to receive capes at Children's Hospital Thursday. KSDK Excerpt from: Man makes sick kids feel like super heroes … Continue reading

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Undeterred by cerebral palsy , New Bedford woman faces new health challenge

Posted: Published on March 21st, 2013

Buy This Photo John Garcia/Standard-Times special Tiffany DeBarros, who suffers from a neuroendocrine disease in addition to cerebral palsy, does not give in, and still manages a beautiful smile. By JOHN GARCIA March 17, 2013 12:00 AM NEW BEDFORD Tiffany DeBarros never let the fact that she was born with cerebral palsy get her down. She was in the top 20 percent of her class at Greater New Bedford Vocational-Technical High School, where she participated in a number of activities and graduated in 2005. And last May, she earned a master's degree in counseling from the University of Connecticut and looked forward to a fulfilling career in her chosen field. Even though DeBarros, 26, had struggled with a variety of puzzling ailments for the past seven years, she persevered. With a pair of Canadian crutches the kind with cuffs for the arms she forged on. Then, in October, her health took a sharp decline that marked the beginning of a three-month period of stays in various hospitals, rehab facilities, and nursing homes. Her muscles became so weakened that she couldn't walk. Finally, in January, she was diagnosed with a neuroendocrine illness, a pituitary and hypothalamic disorder. Doctors are still trying … Continue reading

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More money pours in for Hope for Georgia

Posted: Published on March 21st, 2013

Buy photos Paradise Forum played the gig for Georgia at the Slug and Lettuce. s A BROMSGROVE pub has raised more than 600 for the Hope for Georgia campaign, which was set up to help Bromsgrove toddler Georgia Almquest. The appeal is aimed at funding specialist stem cell treatment for two-year-old cerebral palsy sufferer Georgia, who is unable to hold her head up, sit or crawl. The stem cell peocedure provides her with her only chance of being able to walk. The 600 was raised by the Slug and Lettuce from a charity night held last month. That featured a performance from indie band Paradise Forum (pictured) and a raffle of prizes donated by local businesses. They included a 100 gift voucher from designer clothes shop Block 98, a makeover session at Profiles hair and beauty salon, Artrix cinema tickets, zumba classes at Passion4Dance, dance classes with Elite Performing Arts and a signed Manchester United football. General manager James Morrall said the evening was a huge success and the atmosphere was amazing. We are truly thankful to the local businesses who kindly donated prizes for the raffle, to our fabulous customers who dug deep in their pockets on the night … Continue reading

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Why Brain -Injured Defendants in Vermont Often Go Free

Posted: Published on March 21st, 2013

Superior Court Judge Helen Toor cant say whether shes seeing more defendants entering her Middlebury courtroom with a traumatic brain injury or if shes just noticing them more. She can say, however, that if the accused is found incompetent to stand trial because of a TBI, theres not a lot she can do with them. The state is required to dismiss the charges under our laws, says Toor, whos been a judge for 14 years and now presides over Addison Countys criminal division. And yet, we dont have a process for monitoring that person to try to avoid future criminal conduct. In the last few months, Toor has had to dismiss charges against defendants accused of aggravated assault and repeated stalking because they had TBIs that might explain their inappropriate or violent behavior. In a third case, Toor has yet to rule on the competence of a brain-injured defendant charged with the sexual assault of a child. This situation differs from other cases involving defendants deemed by the court to lack a rational understanding of the charges, proceedings and their potential consequences. If a defendant has a severe mental illness, such as schizophrenia, a judge may commit that individual to … Continue reading

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Long-term view urged on brain injury

Posted: Published on March 21st, 2013

March 20, 2013, 3 a.m. Concussion campaigner Peter Jess has urged sports doctors to shift their attention to the treatment of long-term brain injuries, declaring it is nonsense to suggest there is no link between concussion and post-career problems. Jess, a prominent AFL player manager who has invested considerable time and money on the issue, dismissed claims by leading doctors that it was too early to link concussion with chronic traumatic encephalopathy (CTE), a degenerative brain disease. Doctor Ryan Kohler, who will attend the Concussion in Football Conference, beginning on Wednesday at Etihad Stadium, was the latest to do so. ''Whilst I applaud the AFL's initiative in holding the concussion conference, I'm concerned about the thought process of Dr Ryan Kohler, and the comments attributed to him in Fairfax Media,'' Jess said. ''Concussion in the 1980s and '90s is a concussion that cannot reasonably be distinguished from a concussion today. ''If anything, concussions are more likely to occur due to the speed of the game and the body size of players today compared with the '80s and '90s. ''To say that there is no casual relationship between concussions and long-term impairment is counter to the available research today. ''In fact, … Continue reading

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In the midst of Brain Injury Prevention Month, Senate Bill 112 could protect and prevent student athletes from head …

Posted: Published on March 21st, 2013

Posted: Mar 19, 2013 5:51 PM by Victoria Fregoso-Q2 News Updated: Mar 19, 2013 6:42 PM BILLINGS - Playing the piano comes fairly easy to Ian Elliot. Being a traumatic brain injury survivor himself, Elliot considers himself lucky. Since his car wreck in 1994, he noticed a shift in the attention brain injuries receive, especially for student athletes. "I'm seeing a wave of focus, of improvement," Elliot said. This improvement includes Senate Bill 112 which would require youth athletes suspected of having a concussion be taken off the field and receive medical attention before getting back in the game. "I think it's a long time coming, trying to get health care providers and coaches and parents to treat concussions seriously," said Timothy Sanders with the Billings Clinic Concussion Treatment Program. Five years ago Billings Clinic teamed up with Billings School District 2 along with other teams in the area to monitor student athlete concussions. "Most of what the school district does now is what is being required by the new law. So, if the law passes, which I hope it does, I don't see much changing in school district 2 because we're way ahead of the game right now," Sanders … Continue reading

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Adamas Pharmaceuticals Presents New Traumatic Brain Injury Data From Its Nurelin™ Program At American Academy Of …

Posted: Published on March 21st, 2013

EMERYVILLE, Calif., March 20, 2013 /PRNewswire/--Adamas Pharmaceuticals, Inc. will present research results today from its NurelinTM (amantadine HCl extended release capsules) program demonstrating the benefit of amantadine in traumatic brain injury (TBI) at the 65th American Academy of Neurology (AAN) Annual Meeting being held in San Diego, CA. Nurelin, a once-daily extended release formulation of amantadine intended for nighttime administration, is being evaluated in a Phase 2/3 clinical study for the treatment of levodopa-induced dyskinesia (LID) in Parkinson's disease (PD) patients. Adamas is currently investigating the activity of amantadine in preclinical models for other central nervous system (CNS) disorders, and anticipates identifying up to two additional indications for development. "The results presented today are the first from several research studies demonstrating additional therapeutic applications for Nurelin beyond our initial indication for the treatment of LID in Parkinson's disease," said Gregory T. Went, Ph.D., Chief Executive Officer of Adamas. "Our data presented at AAN data show a statistically significant dose response for amantadine in the improvements in cognition in a murine model of moderate traumatic injury. A significant reduction in neuronal cell death was also observed. This is the first time this preclinical model has been validated with a drug that … Continue reading

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Boxing: Should science on brain injury inspire a ban?

Posted: Published on March 21st, 2013

March 21, 2013 Orlando Cruz of Puerto Rico fights Aalan Martinez of Mexico in the fifth round of a sixth-round knockout at the Kissimmee Civic Center in Kissimmee, Florida March 15, 2013. Reuters picLONDON, March 21 When Irelands Katie Taylor was taking hits and striking blows for boxings Olympic debut in an east London ring last year, John Hardy did not want to look. To this leading neuroscientist and molecular biologist, a boxing bout is little more than a session of mutual brain injury. He was horrified to see women boxing at Olympic level for the first time at the London 2012 Games. We shouldnt get our fun out of watching people inflict brain damage on each other, said Hardy, who is chair of Molecular Biology of Neurological Disease at University College Londons Institute of Neurology. To me as a neuroscientist its almost surreal. Hardy, whose research work focuses on Alzheimers and other types of dementia, said having women in an Olympic boxing ring was a terrible thing not because he thinks women should not compete alongside men in sport, but because women boxing simply meant more people inflicting more damage on more brains. That, in turn, was highly likely … Continue reading

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Should science on brain injury inspire a ban?

Posted: Published on March 21st, 2013

By Kate Kelland, Health and Science Correspondent LONDON (Reuters) - When Ireland's Katie Taylor was taking hits and striking blows for boxing's Olympic debut in an east London ring last year, John Hardy did not want to look. To this leading neuroscientist and molecular biologist, a boxing bout is little more than a session of mutual brain injury. He was horrified to see women boxing at Olympic level for the first time at the London 2012 Games. "We shouldn't get our fun out of watching people inflict brain damage on each other," said Hardy, who is chair of Molecular Biology of Neurological Disease at University College London's Institute of Neurology. "To me as a neuroscientist it's almost surreal." Hardy, whose research work focuses on Alzheimer's and other types of dementia, said having women in an Olympic boxing ring was "a terrible thing" - not because he thinks women should not compete alongside men in sport, but because women boxing simply meant more people inflicting more damage on more brains. That, in turn, was highly likely to mean more people suffering the devastating, incurable symptoms of brain diseases such as Alzheimer's. Advances in modern neuroscience mean scientists know more than ever … Continue reading

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FEATURE-Boxing-Should science on brain injury inspire a ban?

Posted: Published on March 21st, 2013

By Kate Kelland, Health and Science Correspondent LONDON, March 21 (Reuters) - When Ireland's Katie Taylor was taking hits and striking blows for boxing's Olympic debut in an east London ring last year, John Hardy did not want to look. To this leading neuroscientist and molecular biologist, a boxing bout is little more than a session of mutual brain injury. He was horrified to see women boxing at Olympic level for the first time at the London 2012 Games. "We shouldn't get our fun out of watching people inflict brain damage on each other," said Hardy, who is chair of Molecular Biology of Neurological Disease at University College London's Institute of Neurology. "To me as a neuroscientist it's almost surreal." Hardy, whose research work focuses on Alzheimer's and other types of dementia, said having women in an Olympic boxing ring was "a terrible thing" - not because he thinks women should not compete alongside men in sport, but because women boxing simply meant more people inflicting more damage on more brains. That, in turn, was highly likely to mean more people suffering the devastating, incurable symptoms of brain diseases such as Alzheimer's. Advances in modern neuroscience mean scientists know more … Continue reading

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