Long dissatisfied with the doctor treating his diabetes, Reginald Relf decided to fight through whatever was causing his nagging cough. But then his temperature spiked and his breathing became so labored that he reluctantly took his sisters advice to visit a doctor.
The staff at an urgent care clinic in suburban Chicago sent him home, without testing him for Covid-19 but after advising him to quarantine.
So Mr. Relf, a 50-year-old African-American engineer, settled into his mothers basement. A week later, after he was found dead, his sister, Ami Relf, was left shaken.
When I finally get him to go to seek help, hes turned away, she said. If he was a middle-aged white woman, would they have turned her away? Those are questions that haunt me.
The coronavirus has left tens of thousands of grief-stricken American families struggling to make sense of the seemingly random terror it inflicts, sickening many but only taking some lives.
But for many black families, mourning coronavirus deaths brings an added burden as they wonder whether racial bias may have played a role.
Decades of research shows that black patients receive inferior medical care to white patients. A long history of experimentation, exploitation and mistreatment has left many African-Americans deeply suspicious of the medical establishment. Now comes Covid-19, and the fear among many families, social scientists and public health experts that racial bias might be contributing to the disproportionately high rate at which the novel coronavirus is killing African-Americans.
Americans of all races may have experienced less than ideal care in recent months in an overwhelmed health care system, and it is not uncommon to hear stories of people who visited health professionals for treatment, only to be turned away.
But African-American patients enter the health care system with distinct disadvantages, experts say. There is less access to quality health care in many black communities, research shows, and black people are more likely to suffer from diabetes, hypertension and other underlying conditions that make Covid-19 particularly fatal.
So, should providers misinterpret or ignore coronavirus symptoms in black patients, there is a higher likelihood that the results could be grave, experts say.
The countrys largest professional organization representing black doctors is calling on federal health agencies to study the role bias may have played in the testing and treatment of African-Americans for Covid-19.
I think what we will find is race is a factor, said Dr. Oliver Brooks, president of the organization, the National Medical Association.
In previous studies, doctors have been found to have downplayed African-Americans complaints of pain, given them weaker pain medication for broken bones and withheld cardiac treatments from black patients who needed them. Research suggests that the decisions are the result of ingrained assumptions, cultural ignorance and hostile attitudes toward African-Americans.
The C.D.C. said in a statement to The New York Times that it did not have data to quantify the role of implicit bias in Covid-19 deaths. But the agency added, Becoming aware of and reflecting on ones own biases to help ensure they do not impact decisions is a potentially lifesaving step for clinicians to undertake.
When Ms. Relf made an appointment for her brother at the Loyola Center for Immediate Care in River Forest, Ill., in late March, she said she was hopeful that the clinic would be able to test and treat him for the coronavirus. He had become extremely lethargic with persistent coughs and chills, she said.
Before Mr. Relf left the clinic, he called his sister complaining that the staff would not test him because he did not have a fever. He sounded defeated, Ms. Relf said.
Quarantine at home for 7 days, his discharge papers said. Infection control will contact you regarding eligibility for testing.
The clinic set up an appointment for him to see his regular doctor 11 days later. Mr. Relf never made it. One of his brothers went to check on him after he stopped answering his phone and found his lifeless body crumpled in front of a couch. A posthumous test confirmed that Mr. Relf had Covid-19.
A spokeswoman for Loyola Medicine said in an email that privacy laws prevented it from discussing Mr. Relfs case specifically, but that Loyola did not discriminate based on race, age, gender or socioeconomic status.
It is difficult to know if any individual medical decision was affected by bias.
Still, a 2003 report commissioned by Congress on racial and ethnic disparities in health care found that even controlling for income and insurance access, Racial and ethnic minorities tend to receive a lower quality of health care.
Significantly, the report added, these differences are associated with greater mortality among African-American patients.
A pilot study by Rubix Life Sciences, the biotech research firm, compared the severity of Covid-19 symptoms exhibited by more than 27,000 patients during hospital visits in seven states with the treatment they received.
The study, which has not gone through peer review, showed that black patients were six times less likely to get treatment or testing than white patients, said Reginald Swift, the founder of Rubix.
Dr. Brooks, medical director at Watts Healthcare in Los Angeles, explained the issue this way: When we walk into an E.R., what they sometimes see is not a patient who is suffering from respiratory illness, they see a black man here who needs something.
Gary Fowlers family believes that the minimizing of his symptoms by doctors ultimately cost him his life.
Mr. Fowler, 56, who is black, had developed a deep, worrying cough, a fever and labored breathing, said one of his sons, Keith Gambrell. Over the course of five days, Mr. Fowler was sent home by three hospitals in metro Detroit, Mr. Gambrell said. A week later, Mr. Fowler died sitting in a blue recliner in his bedroom. He tested positive for the coronavirus after his death.
The three hospitals where his family said he sought care disagreed with the familys account. A spokesman from one of the hospitals, Detroit Receiving Hospital, said, there is no record of this individual coming to Detroit Receiving Hospital for any type of treatment. The other two hospitals disputed that Mr. Fowler was denied care.
Mr. Fowlers death added to the grim tally of deaths in Detroit, a city with a majority African-American population that has come to tragically symbolize the viruss devastation of black America.
Kaila Corrothers believed that her mother, Deborah Gatewood, did not have to be part of that tally.
Ms. Gatewood, 63, developed a high fever in mid March. But in four visits over six days, she was sent home with nothing more than Tylenol and cough medicine from the suburban Detroit hospital where she worked as a phlebotomist for 31 years, her daughter said.
Days after that last visit, Ms. Gatewood became so weak at home that her daughter insisted she go to the hospital again.
No, theyre not going to take me, Ms. Corrothers recalled her mother saying.
But Ms. Gatewood collapsed and an ambulance rushed her to a different hospital, where she tested positive for the coronavirus and was placed on a ventilator.
On April 17, three weeks after being admitted, her heart, kidney and lungs failed, and she died.
Ms. Corrothers said she could not say whether the fact that her mother was African-American played a role in her treatment.
In her visits to the emergency room of her employer, Beaumont Hospital in Farmington Hills, Mich., Ms. Gatewood never presented with symptoms severe enough to warrant admission, a hospital spokesman said in a statement. Given the shortage of testing supplies, patients with mild symptoms were not tested and told to quarantine at home, but return if their condition deteriorated, the statement said.
The lack of resources in some hospitals and the overwhelming number of cases likely have played more of a role than bias in the negative outcomes for African-Americans, some public health experts said.
But, in another case that has raised concern of medical bias, the family of Robert Johnson Jr. cannot help but think that doctors could have done more for him.
He seemed to embody many coronavirus risk factors: 49 and black, he had diabetes, hypertension, a low-functioning kidney and a double amputation.
The day before Easter, he woke up too weak to leave his bed, eat, or tell his mother what precisely hurt.
The next morning, Mr. Johnsons fever soared to 103.3 degrees. He was rushed to the emergency room at Yale New Haven Hospital. His mother, Gloria Johnson, 71, called the hospital hours later and was told her son had been given the green light to return home after receiving a chest X-ray that showed signs of pneumonia. The hospital did not test him for the coronavirus.
Ms. Johnson brought her son Easter dinner that night after his discharge. He had no appetite but she insisted he taste a few spoonfuls of yams. When she called the following morning to check on him, he didnt answer.
She hurried to his apartment only to find him unresponsive in his bed. Ms. Johnson watched as emergency responders tried to revive him.
I thought, Oh my God, what if they had given him the Covid-19 test or even kept him overnight for observation? What would the outcome be? she said.
The medical examiner confirmed that Mr. Johnson had died of complications from the coronavirus and diabetes, Ms. Johnson said.
A spokesman for Yale New Haven Health said in a statement that they understand the familys concern. The hospital was confident in the care provided to Mr. Johnson, but his case was under review, the spokesman said.
After Mr. Johnsons burial in a graveside service in New Haven, his mother was preparing to have his old apartment packed and cleaned when she received one last call from the Yale hospital.
They were calling, she said, to schedule Mr. Johnsons Covid-19 test.
Sheelagh McNeill contributed research.
Follow this link:
Questions of Bias in Covid-19 Treatment Add to the Mourning for Black Families - The New York Times
- Rally for Multiple Sclerosis Treatment Funding - May 7th, 2011 [May 7th, 2011]
- Breakthrough Multiple Sclerosis Treatment? - May 8th, 2011 [May 8th, 2011]
- Multiple Sclerosis Treatment - Mayo Clinic - May 11th, 2011 [May 11th, 2011]
- Tracy Macchia: Controversial MS Treatment - May 14th, 2011 [May 14th, 2011]
- What is Multiple Sclerosis - May 19th, 2011 [May 19th, 2011]
- MS Multiple Sclerosis treatment testimonial from Sanoviv Medical Institute - May 20th, 2011 [May 20th, 2011]
- Patient with progressive ms(paraplegia) Fmr treatment 1/4 - May 22nd, 2011 [May 22nd, 2011]
- New Jersey Multiple Sclerosis Treatment with Chiropractic Care - May 23rd, 2011 [May 23rd, 2011]
- MS Cure - Progression - June 2nd, 2011 [June 2nd, 2011]
- CCSVI UK Multiple Sclerosis Liberation Treatment - June 2nd, 2011 [June 2nd, 2011]
- Stem Cell Therapy MS: Sam Harrell and The Superbowl - June 3rd, 2011 [June 3rd, 2011]
- Holly Huber on Recovery: Stem Cell Therapy for Multiple Sclerosis Community Outreach Dallas, TX 2011 - June 8th, 2011 [June 8th, 2011]
- MS treatment sees early success - June 9th, 2011 [June 9th, 2011]
- CCSVI Possible cure for Multiple sclerosis - June 10th, 2011 [June 10th, 2011]
- MS Cure - Introduction to stem cell bone marrow transplant in Australia - June 11th, 2011 [June 11th, 2011]
- (Multiple Sclerosis Cure) Change Your Thinking? (Multiple Sclerosis Cure) - June 12th, 2011 [June 12th, 2011]
- Essiac cancer treatment herbal tincture, Ms Caisse...from The Secrets of Eden - June 12th, 2011 [June 12th, 2011]
- MS walking treatment breakthrough - June 14th, 2011 [June 14th, 2011]
- multiple sclerosis natural treatment | Kathy Canada Testimonial - June 18th, 2011 [June 18th, 2011]
- CCSVI Surgery India - Liberation Procedure Multiple Sclerosis Treatment in India - June 29th, 2011 [June 29th, 2011]
- XCell-Center MS CCSVI Liberation Angioplasty Treatment Results E.Schuurman 18_01_11 - July 1st, 2011 [July 1st, 2011]
- MS Cure - 7PM Project Carmel Turner MS Stem Cell Treatment - July 9th, 2011 [July 9th, 2011]
- MS Update! Tysabri or Gilenya? - July 10th, 2011 [July 10th, 2011]
- What causes BSE, CJD - July 15th, 2011 [July 15th, 2011]
- Kath Bartlett, MS, LAc Balance Method Acupuncture - July 16th, 2011 [July 16th, 2011]
- MS Cure - 730 report ben leahy carmel turner ms stem cell treatment - July 17th, 2011 [July 17th, 2011]
- CCSVI LIberation Treatment Tokuda - July 18th, 2011 [July 18th, 2011]
- FOX News Interview on the O'Reilly Factor - Treatment of Women in Islam - July 18th, 2011 [July 18th, 2011]
- CCSVI treatment bloopers holy crap - July 18th, 2011 [July 18th, 2011]
- Tarah's CCSVI Venoplasty. Dr McGuckin Explaining procedure findings - July 19th, 2011 [July 19th, 2011]
- Cancer Cure: The One-Minute Cure For Cancer, MS - July 24th, 2011 [July 24th, 2011]
- Not Ready to Cheer CCSVI Trials - July 29th, 2011 [July 29th, 2011]
- New Oral Treatment for MS - July 30th, 2011 [July 30th, 2011]
- 27/07/2011 - MS patients seek controversial treatment - August 1st, 2011 [August 1st, 2011]
- MS Cure - 11 I am still walking - August 5th, 2011 [August 5th, 2011]
- Upcoming Treatments for MS - Pt 1 -MSRA Public Lecture - Dr Suzanne Hodgkinson - August 10th, 2011 [August 10th, 2011]
- Stem Cells for MS Community Outreach: Patient Judi Lecoq - Dallas, TX 2011 - August 18th, 2011 [August 18th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach, San Diego: David Oliver - August 19th, 2011 [August 19th, 2011]
- New Study Tests Possible Treatment for MS - August 25th, 2011 [August 25th, 2011]
- Professor Dimitrios Karussis: Treating MS - August 26th, 2011 [August 26th, 2011]
- walking with MS before CCSVI treatment.wmv - August 27th, 2011 [August 27th, 2011]
- Suzy Cohen Discusses The Liberation Treatment for MS - September 14th, 2011 [September 14th, 2011]
- Multiple Sclerosis MS People - Amazing New Treatment - September 15th, 2011 [September 15th, 2011]
- Multiple Sclerosis Alternative Treatment - September 17th, 2011 [September 17th, 2011]
- CLEAR scoliosis treatment, Dr. Culpepper (MS) - September 22nd, 2011 [September 22nd, 2011]
- Liberation treatment for MS - September 23rd, 2011 [September 23rd, 2011]
- 44b - My Lyme disease and rheumatoid arthritis journey - Miraculous CCSVI treatment for MS sufferers - September 24th, 2011 [September 24th, 2011]
- A Closer Look at Gilenya - The First Oral Treatment for MS - September 28th, 2011 [September 28th, 2011]
- Unequal Treatment Drives Disability Rights Movement - September 28th, 2011 [September 28th, 2011]
- Multiple Sclerosis - The Nebraska Medical Center - September 29th, 2011 [September 29th, 2011]
- Testimonial for CCSVI Treatment Excel Heart Center Mexico -- Tanya Reay - September 30th, 2011 [September 30th, 2011]
- Current thinking on what causes MS - Pt 1 - MSRA Public Lecture -Prof Graeme Stewart - October 2nd, 2011 [October 2nd, 2011]
- Current and emerging therapies in MS - Part 02 (How do these treatments work?) - October 2nd, 2011 [October 2nd, 2011]
- MS Richard Humphries before and after treatment for Multiple Sclerosis with stem cells - October 3rd, 2011 [October 3rd, 2011]
- Matthew - CCSVI and his Liberation Treatment - October 8th, 2011 [October 8th, 2011]
- Multiple Sclerosis - Myelin Repair - Video - October 14th, 2011 [October 14th, 2011]
- MS Auto Immune vs CCSVI Treatment Simple Pictures by Berukoff - Video - October 23rd, 2011 [October 23rd, 2011]
- New Promising Treatment for Those Living with Multiple Sclerosis - Video - October 29th, 2011 [October 29th, 2011]
- Stem cells to treat MS - Pt 2 - MSRA Public Lecture - A/Prof Richard Burt - Video - October 30th, 2011 [October 30th, 2011]
- New hope for treating multiple sclerosis - Video - October 31st, 2011 [October 31st, 2011]
- CCSVI Multiple sclerosis Breakthrough/cure - Video - October 31st, 2011 [October 31st, 2011]
- Inhuman Treatment of Wheelchair bound Multiple Sclerosis Patient in Canadian Care Home - Video - November 9th, 2011 [November 9th, 2011]
- MS treatment movie Cells4health.mp4 - Video - November 10th, 2011 [November 10th, 2011]
- Racing to the Cure for MS: Myelin Repair Foundation Celebrates MS Awareness Week - Video - November 12th, 2011 [November 12th, 2011]
- [Symptoms of Multiple Sclerosis] - Video - November 12th, 2011 [November 12th, 2011]
- Multiple Sclerosis Treated with Adult Stem Cells - Video - November 13th, 2011 [November 13th, 2011]
- Stem cells to treat MS - Pt 1 - MSRA Public Lecture - A/Prof Richard Burt - Video - November 16th, 2011 [November 16th, 2011]
- Multiple Sclerosis A Natural Treatment - Video - November 16th, 2011 [November 16th, 2011]
- My MS and Stem Cell Treatment - Video - November 16th, 2011 [November 16th, 2011]
- CCSVI Liberation News Reports - Video - November 20th, 2011 [November 20th, 2011]
- Stem Cells for MS Community Outreach: Patient Sam Harrell - Dallas, TX 2011 - Video - November 21st, 2011 [November 21st, 2011]
- Arthur S13 E2-1 - The Silent Treatment - Video - November 27th, 2011 [November 27th, 2011]
- Holly Huber on Recovery: Stem Cell Therapy for Multiple Sclerosis Community Outreach San Diego CA - Video - December 3rd, 2011 [December 3rd, 2011]
- CCSVI - Video - December 3rd, 2011 [December 3rd, 2011]
- My Sister's Experience with Liberation Treatment for Multiple Sclerosis PART 2/2 - Video - December 5th, 2011 [December 5th, 2011]
- Multiple Sclerosis -- Treatment LDN story - Video - December 7th, 2011 [December 7th, 2011]
- ABC News - Multiple Sclerosis effectively treated by a new acoustic medical device. - Video - December 9th, 2011 [December 9th, 2011]
- MS Patient After Stem Cell Therapy - Video - December 10th, 2011 [December 10th, 2011]
- Multiple Sclerosis - Video - December 12th, 2011 [December 12th, 2011]
- Journey of Connective Tissue, Autoimmune disease, steroid treatment updates. - Video - December 22nd, 2011 [December 22nd, 2011]