Alexis, with parents Katrina and Adrian, and sister Eva.
Staff reporter Friday, May 2, 2014 9:08 AM
A boy from Southwold will be one of the first to be helped by a new nurse funded by an authors charity.
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Five-year-old Alexis Ruthven was six months old when he was diagnosed with Duchenne muscular dystrophy, a condition that causes muscle weakness.
About one in 3,500 boys have the condition, and it rarely affects girls.
Alexis, his parents Adrian and Katrina, and his two sisters Eva, two, and Beatrice, one, used to travel down to Great Ormond Hospital in London for an annual health review.
Mr Ruthven said: Wed have to leave early and come back late.
It would be a whole day and wed sometimes stay down there.
It was such an upheaval at the best of times.
Read the original:
Southwold boy with muscular dystrophy is first to be helped by new nurse service
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