10 things you only know if your sibling has cerebral palsy – Metro

Posted: Published on July 12th, 2017

This post was added by Alex Diaz-Granados

Cerebral palsy doesnt mean you cant have fun together (Picture: Getty)

When a sibling has cerebral palsy life is very different, not just for them, but for the whole family.

Cerebral Palsy is a permanent muscle disorder that appears in early childhood, and it is caused by abnormal development or damage to parts of the brain that control movement, balance and posture.

It varies person to person, and like with all conditions there are good days as well as bad ones.

But if your sibling has this condition it certainly hasnt gotten in the way of how close you are, how much you make one another laugh and it doesnt mean you dont bicker over things like what to watch on TV.

This condition means that your sibling is physically restricted, and often relies on a wheelchair, walker, crutches or help from family and friends to get around.

And at times it leaves them in pain and discomfort which is hard to watch.

But youve definitely got a few secret tricks to help them through this, like putting on their favourite movie and ordering their best loved takeaway.

The adaptations are not just about accepting that your sibling will have a different life to your own, but also physical ones.

There will be changes around the house, such as a stair lift, hoist and widened doors for easy wheelchair access.

Sometimes there are certain people who due to ignorance cannot cope very well when they spot someone who is a little different.

Youve lost count of the amount of times people have stared, made comments, or quickly walked in the opposite direction to you.

It used to make you angry, but now you feel sorry for how narrow minded these people are.

The rude people are always outweighed by some lovely people you have met on this journey.

The kindness of strangers continues to surprise you, and you are always thankful when someone offers to help with something as simple as opening a door for your sibling.

Some people are naturally curious and you enjoy answering their questions on the condition.

Holding down a job, or getting through exams and still finding time to be a carer, means that when it comes to juggling different responsibilities youre a professional.

When you were younger, chances are that you felt quite isolated and felt that no-one else would understand what you were going through.

But as you grew up and through different support groups and networks you realised just how common the condition is.

It is actually the most common motor disability in children.

Naturally we are protective over our siblings, but having a sibling with cerebral palsy means that you are extra vigilant to ensure that no-one is giving them a difficult time.

In that respect at times you understand how parents feel.

Just because they have this condition, doesnt mean that their personality has been impacted.

In fact, they are one of the most funniest, unique and exciting people to be around.

Yes you love them so much, yes you are protective over them, but this doesnt mean that when they are annoying you by hiding the TV remote you wont get into an argument.

Everyday you witness the challenges they face, the constant hurdles they have to conquer and you are amazed and inspired by just how strong they are.

You would never change them, and you are proud to be part of their life.

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