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Life after Parkinson’s

Posted: Published on September 6th, 2012

Sept. 6, 2012, 10:06 a.m. Despite the restrictions that Parkinsons Disease brings, John Coppens has adapted so that he can still do the things he enjoys. Coppens was diagnosed with Parkinsons 12 years ago at the age of 46 while working as a fitter at the steelworks. The first indication of the disease was a sore shoulder, followed by dyskinesia - involuntary movements. Its a hideous disease, Coppens says, sitting in his Corrimal lounge room with wife Anna. He relies on a walker to get around and carries a pump and tube that works all day to deliver Duodopa intestinal gel which controls the severe involuntary movements of advanced Parkinsons. Luckily, the Duodopa is being provided as part of a medical trial otherwise, Coppens says, it would cost about $76,000 a year to stay on the medication. Because the effectiveness of medication used to treat the disease wears off over time, Coppens has been through a myriad of treatments, including Apomorphine which requires 12 injections each day. Even now, with the intestinal gel, once Coppens turns off the pump at 10pm he can only sleep for about two hours before the movements increase and wake him up. And the medication … Continue reading

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Unity Walk for Parkinson's Qld

Posted: Published on September 6th, 2012

JOIN Queensland Reds and Wallabies player, Jake Schatz, and former Australian butterfly champion living with a chronic brain disorder, Ian Findlay, for Parkinson's Queensland's fourth annual Unity Walk on Sunday, September 9 in Brisbane. To commemorate the final day of Parkinson's Awareness Week (September 2 - 9, 2012), support the 16,200 Queenslanders living with Australia's second most common neurological disorder, by strolling from New Farm Park, along the Brisbane River, to Teneriffe and back, to raise community awareness and much-needed funds for Parkinson's disease. Jake, who was named in the 30-man Wallabies squad last month, said it's a terrific way to spend Sunday morning supporting a great cause. "The event will be jam-packed with live entertainment, a sausage sizzle, face painting and balloon art for the kids," he said. >>Video - Striking a chord with complex Parkinson's Ian Findlay, Australian butterfly champion in the early 1980s and a representative at the 1992 Pan Pacific Games, will be joined by his close-knit family to walk for the cause this week. "People from all walks of life are encouraged to celebrate Parkinson's Awareness Week by joining the Parkinson's Queensland Unity Walk to support and honour those living with, or affected by Parkinson's," … Continue reading

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Parkinson's group names Plum couple local heroes

Posted: Published on September 6th, 2012

Tom and Carol Reid of Plum began their journey to help people with Parkinson's disease 15 years ago. Mr. Reid was an in-house attorney for Koppers Co. Inc. in Pittsburgh, when he began to have symptoms of Parkinson's, such as drooling and watering eyes. His wife said family members noticed he had developed a masklike, expressionless face, another symptom of Parkinson's. He also fell off a ladder, and he broke a rib after he couldn't stop while running downhill. "We knew something was wrong," Mrs. Reid said. Mr. Reid went to his family doctor soon after the symptoms began, but it took two years to get a diagnosis. When Mr. Reid retired, the couple moved to their former vacation home in Ligonier, where they became active in the Westmoreland County Parkinson Support Group in Greensburg and helped to start a support group at Forbes Regional Hospital. Now, the Reids will be honored for their volunteer work to help those with Parkinson's. They will receive the Local Hero Award at a symposium on Parkinson's disease Sept. 15 at the David L. Lawrence Convention Center, Downtown. The Reids have helped to raise awareness of the National Parkinson Foundation of Western Pennsylvania, volunteer … Continue reading

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Nebraska coaches sued

Posted: Published on September 6th, 2012

A WOMAN HAS sued Nebraska coach Bo Pelini's foundation and offensive coordinator Tim Beck, alleging she suffered a traumatic brain injury while participating in a drill at a football clinic put on by the foundation 2 years ago. Beverly Morgan, 66, of Lincoln said in the lawsuit filed Tuesday in Lancaster County Court that she fell and hit the back of her head during a drill in which a gauntlet of women struck her with blocking pads. The fall caused her cap and earrings to fly off, according to the lawsuit. Beck oversaw the drill and, according to the lawsuit, encouraged the women in the lines to "hit her." After Morgan fell, Beck helped her to a chair on the sideline and left. Morgan alleged Beck was negligent because he failed to warn participants of the dangers of the drill and never saw to it that she received on-site medical treatment. The lawsuit seeks $92,500 in medical costs and punitive damages. Morgan's injury occurred at an event targeted at women known as Football 101. It was supposed to be an annual event but was not held in 2011 or 2012. The 1-day event held June 2, 2010, at the University … Continue reading

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Controversial MS treatment has Connecticut link – Video

Posted: Published on September 6th, 2012

06-09-2012 03:47 A controversial approach to treating multiple sclerosis is now gaining widespread attention. Debilitating headaches led to more research, specifically to a novel procedure: Chronic Cerebrospinal Venous Insufficiency or CCSVI. Here is the original post: Controversial MS treatment has Connecticut link - Video … Continue reading

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A*STAR Scientists: Earlier Treatment for Young Patients With Chronic Hepatitis B May Be More Effective in Clearing Virus

Posted: Published on September 6th, 2012

Singapore, Sept 6, 2012 - (ACN Newswire) - Scientists from A*STAR's Singapore Institute for Clinical Sciences (SICS), together with clinical collaborators from London(1), discovered for the first time that children and young patients with chronic Hepatitis B Virus infection (HBV carriers) do have a protective immune response, contrary to current belief, and hence can be more suitable treatment candidates than previously considered. This discovery by the team of scientists led by Professor Antonio Bertoletti, programme director and research director of the infection and immunity programme at SICS, could lead to a paradigm shift in the current treatment of patients with chronic HBV. The findings were published in Gastroenterology on 1st September. Current guidelines from international liver associations recommend delaying therapy until HBV carriers show clear signs of active liver disease, which generally appear after the age of 30(2). This is based on two assumptions. One, young patients are unable to react to treatment because they are immune-tolerant to the virus. This means that there is no protective immune response(3) in their body to help them get rid of the virus, and therefore, they will not run the risk of liver damage or inflammation. Two, HBV infection is largely harmless in … Continue reading

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Gallagher accused of putting 'photo op' before patients

Posted: Published on September 6th, 2012

The ACT opposition has accused the government of putting a ''photo opportunity' at the Canberra Hospital ahead of patient treatment. Some patient appointments for radiation therapy at the hospital were rescheduled to a different time of day last month when Chief Minister Katy Gallagher officially launched a new linear accelerator device used to treat cancer. The government said yesterday the date of the launch had been changed at short notice because of the no-confidence motion moved by the Liberals against Ms Gallagher in the Assembly and there had been no intention to inconvenience patients. A Health Directorate spokesman said some appointments had been moved to a different time to protect patient privacy when the media and other visitors attended the launch on August 21. Advertisement Opposition health spokesman Jeremy Hanson said the rescheduling of patient appointments was disgusting and Ms Gallagher should take responsibility for what had occurred. ''I think it's actually disgraceful that she has prioritised her photo op over the cancer patients who have been disrupted by this,'' he said. Mr Hanson said he had spoken with a patient whose appointment time for radiation treatment had been changed to accommodate the ministerial visit to the hospital. The patient … Continue reading

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Controversial MS treatment has CT link

Posted: Published on September 6th, 2012

NORTHFORD, Conn. (WTNH) -- A controversial approach to treating multiple sclerosis is now gaining widespread attention. And a small group of Connecticut women diagnosed with MS had a part in it. Jennine Kelley has multiple sclerosis, an often disabling chronic disease that affects the brain and spinal cord. "I started to lose the ability to speak clearly and then I started to lose the ability to use my right hand," Kelley said. Debilitating headaches led to more research, specifically to a novel procedure: Chronic Cerebrospinal Venous Insufficiency or CCSVI. And Joan Beal says, "I wrote about it online. And then other people found out about it." Beal's husband has MS and underwent CCSVI, which was first performed overseas. It gets blood flowing to the brain by using a balloon to open blocked jugular veins. Beal explains, "if you have slowed blood flow going through your brain, you're going to suffer for it." MS symptoms like heat fatigue disappeared. That convinced Kelley to follow suit. Kelley says her doctor, "found both my jugular veins had stenosis on both sides. And then where he found the stenosis, he ballooned it open. Since I had the procedure, I haven't had the headaches." Since … Continue reading

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Delhi – [ Min 25.8 °C

Posted: Published on September 6th, 2012

A woman showsher cleavage. According to the study, other factors like higher body mass index (BMI) and larger bra and cup sizes also contribute to accelerated breast aging.Now, women can identify lifestyle behaviours that can slow the aging process to avoid surgical intervention, according to the study, which was funded by a grant from the Aesthetic Surgery Education and Research Foundation. For the last three years, plastic surgeon Hooman T. Soltanian of University Hospitals Case Medical Center and Case Western Reserve University School of Medicine in Cleveland, Ohio, studied 161 pairs of twins.Its very rare that both twins have been through the same exact environmental factors throughout life, ABC News quoted him as saying.The idea was that they have the same [breasts] from a genetic standpoint. If we see a difference, its more likely to be environmental factors, he said. Soltanian collected data from consenting women between the ages of 25 and 74 at the annual Twins Days Festival in Twinsberg, Ohio.The average of the study participants was 45.5 years old.The twins come from all over the country for a weekend to have fun and celebrate, he said.We have been using that opportunity to study their breasts. Its not a … Continue reading

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Hormone Replacement Therapy: Help or Hype?

Posted: Published on September 6th, 2012

WHAT IS HORMONE REPLACEMENT THERAPY?: Hormone replacement therapy medications containing female hormones to replace the ones the body no longer makes after menopause used to be a standard treatment for women with hot flashes and other menopause symptoms. Hormone therapy (as it's now called) was also thought to have the long-term benefits of preventing heart disease and possibly dementia. Use of hormone therapy changed abruptly when a large clinical trial found that the treatment actually posed more health risks than benefits for one type of hormone therapy, particularly when given to older postmenopausal women. As the concern about health hazards attributed to hormone therapy grew, doctors became less likely to prescribe it. Hormone therapy is no longer recommended for disease prevention, such as heart disease or memory loss. However, further review of clinical trials and new evidence shows that hormone therapy may be a good choice for certain women, depending on their risk factors. (Source: MayoClinic.com) BENEFITS OF HORMONE THERAPY: Systemic hormone therapy contains systemic estrogen (pill, skin patch, gel, cream or spray form) and is the most effective treatment for relief of hot flashes and night sweats. Estrogen can also ease vaginal symptoms of menopause (dryness, itching, burning and … Continue reading

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