Teen with cerebral palsy faces one last hurdle on difficult road to university – CBC.ca

Posted: Published on August 17th, 2017

This post was added by Dr. Richardson

A teen with a disability, who made his own way out ofa homeless shelter and into university, is now up against a new challenge: he can't afford the student life.

Benjamin Williamson says he'sshort $5,000 tocover hisremainingtuition andresidence costs at Carleton University, plusthousands more forliving expenses.

Williamson, who has cerebral palsy,says the system is failing him, and says hefeels like he's drowning.

"[It's like] continuously having tidalwaves that pound you," saidWilliamson. "The system is shattered. It's frustrating, it's exhausting, it's complicated."

The university says it's tapped every award and bursary availableto help Williamson, but it's not enough.

A concerned staff member is now raising moneyto try tohelp him out.

Williamson is in one of the most expensive dorm rooms at Carleton University because he needs an accessible room with 24/7 on-call assistance. (Ashley Burke/CBC News)

The 18-year-old's neurological disorder makes it difficult for him to walk, so he relies on an electric wheelchair to get around.He can't write because he lacks the fine motor skills, and he struggleswith chronic pain.

Williamson hasno cognitive impairment, and excelledinhigh school. But because he has special needs, he was placedinto a program for students with developmental difficulties. Staying there meant he wouldn't graduate until 21, and wouldn't have the courses necessary to advance to university. Leaving the program would mean losing the special help he needed to write.

Williamson worries about other disabled teens stuck in toxic situations at home. (Ashley Burke/CBC News)

MeanwhileWilliamson was also struggling with what he callsa"toxic environment" athome, where he says his parents didn't support his dream of one day attending university. In February, he decided to leave. (The rift led to a legal battle between the teen and his parents, and is currently before the courts.)

Williamson says it took months to find a homeless shelter in York Region that couldaccommodatehis needs, albeit temporarily. After leaving the shelter to have surgery, Williamson ended up staying in hospital longer than necessary because he hadnowhere else to go.

Luckily, he'd managed to connect with MPP Chris Ballard during an earlier co-op placement, and that helped open the door to Carleton University.

Carleton's co-ordinator for initiatives and education, Susan Burhoe, said she was touched by Williamson'sstory and saw promise in the teenager. Despite his lack of a high school diploma, the university administration admitted him into a special bridging program where the teen would get the support he needs, due to begin in September.

"I was really moved by Ben's story because he's had such a set of challenges, and despite thathe's shown suchpersistenceand resilience," said Burhoe.

Susan Burhoe, a co-ordinator of Carleton's enriched support program, started an online fundraising campaign to help Williamson. (Ashley Burke/CBC News)

Carleton Universitygranted Williamson $3,000 in awards and bursaries, and is covering his living expenses for the month of August.

Williamsonqualifies for student loans from the province, but even the maximum amount he can apply for$15,000 would fail to cover all his costs, including his wheelchair-accessible room in residence.

Running out of options to help the teen,Burhoeset up aGoFundMepage to raise money for his education.

"Ben has so much potential," saidBurhoe.

Williamson said he worries about other young people with disabilities who are trapped in bad home situations. He sees the lack of long-termhousing and adequate education funding for young people like him as a gap in the system that needs fixing.

"It's tragic. A person should not have to become homeless and have to rely on the university to house them for 10 months of the year,"said Williamson, who wants to study law and become an advocate for youth.

"I think the government needs to take a stance and say, 'We need to do something.'"

To be so near, and yet so far from realizing his dream is frustrating, and not a little frightening, he says.

"It's a fresh start," saidWilliamson."It's a new reality. It's a chance to put the tornado of the past behind me, but it presents a whole host of new challenges. The future scares me."

Read more:
Teen with cerebral palsy faces one last hurdle on difficult road to university - CBC.ca

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