Earlier today, I was telling a story about how I rejected calling myself disabled for a long time. As fate would have it, The Mighty newsletter featured a post called, When I Started Calling Myself Disabled. Floored and completely interested, I read Holly Abels words. We had different stories, but two things were similar and they really stood out: The word disabled didnt feel like it was our word, and finding and confirming her identity gave her strength.
YES! I literally almost screamed. Holly didnt really elaborate on what either of those things meant, but for me, I instantly returned to being a 10-year-old girl isolated in a classroom. My peers were supposed to be my equals and yet I felt as ifI werestanding on the edge of a cliff. My classmates socialized with ease, but I felt like interacting with them would push me off the cliff into the icy water. It was that intense for me. I didnt want to be disabled, I wanted to be normal. I would tell people I had cerebral palsy, and I could even explain it, if I had to, just to avoid using the word disabled.
I, like Holly, believed that if I identified with that term then all the hopes and dreams I had for myself would be impossible. (I remember clearly feeling like this as a 10-year-old!) I didnt start finding myself until college. High school was difficult and I just did what I could to get through. Around my second year of college, I started to really share my life online. I wrote about everything and, to my surprise, people related to it. They understood me and embraced me! It was so exciting and it gave me so much confidence. I even started being paid. I was basically living my dream.
Still, disabled didnt feel like MY word. In fact, it wasnt until I had found the community full of disabled people who were, in a lot of ways, just like me. Before, I didnt want to be disabled because I didnt want to lose my dreams, and now that I had them, I felt like I was too lucky to be disabled. I found incredible love, acceptance, and strength logging onto the #Spoonie, #ChronicLife, and #SpoonieProblems hashtags on Twitter. Engaging in the discussions there, I made friends, I found support, and it ultimately helped me find my voice.
Honestly, Twitter helped me embrace my identity as a disabled person. I am a proud Spoonie. And that is why you should start calling yourself disabled. There is so much power in finding your identity. Finding and accepting myself brought such a comfort to me, I finally felt as though I could live within my body and I started to pay attention to how I treat it.
Every day is a work in progress. There is nothing wrong with accepting and embracing yourself, no matter who you are. Loving yourself is the best practice of self-care.
***
Note:Cerebral Palsy News Todayis strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician orother qualified health providerwith any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofCerebral Palsy News Todayor its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to cerebral palsy.
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Why You Should Start Calling Yourself Disabled - Cerebral Palsy News Today
- Man With Cerebral Palsy Imitates Michael Phelps Rule Yourself Video - SwimSwam - March 24th, 2017 [March 24th, 2017]
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- Missing 13-year-old with cerebral palsy found safe - WLWT.com - WLWT Cincinnati - March 26th, 2017 [March 26th, 2017]
- Cerebral Palsy | The Mighty - March 26th, 2017 [March 26th, 2017]
- Cerebral Palsy Overview - Cerebal Palsy Guidance - March 26th, 2017 [March 26th, 2017]
- Cerebral Palsy Group Support and Resources for Cerebral Palsy - March 26th, 2017 [March 26th, 2017]
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- Living with cerebral palsy - TheChronicleHerald.ca - March 28th, 2017 [March 28th, 2017]
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- Cerebral Palsy - Cerebral Palsy - April 1st, 2017 [April 1st, 2017]
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- Cord blood stem cells offer promising treatments for Cerebral Palsy - April 4th, 2017 [April 4th, 2017]
- This 3-Year-Old With Cerebral Palsy Is Spreading Awareness In Style - Huffington Post - April 5th, 2017 [April 5th, 2017]
- Govt Urged to Make Special Provision for Children with Cerebral Palsy - THISDAY Newspapers - April 5th, 2017 [April 5th, 2017]
- Topsham student with cerebral palsy launches road race - The Forecaster - April 5th, 2017 [April 5th, 2017]
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- WWE star John Cena surprises young fan with cerebral palsy in heartwarming video - Globalnews.ca - April 5th, 2017 [April 5th, 2017]
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- Cerebral palsy may be linked to birth weight - Independent Online - April 8th, 2017 [April 8th, 2017]
- Cerebral Palsy's Kate Laver tennis invitational - The Desert Sun - April 8th, 2017 [April 8th, 2017]
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- Five-year-old with cerebral palsy making strides thanks to surgery in Ohio - WKEF ABC 22 - April 20th, 2017 [April 20th, 2017]
- Greek Week Raises Over $50,000 for Cerebral Palsy Awareness - University of Miami - April 21st, 2017 [April 21st, 2017]
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- Amazing Women Series: Mother in 'constant awe' of triplets - Canadian Jewish News (blog) - April 24th, 2017 [April 24th, 2017]
- 1st annual Madoc walk for cerebral palsy - www.insidebelleville.com/ - April 24th, 2017 [April 24th, 2017]
- Willard senior with cerebral palsy to compete in national speech tournament - Springfield News-Leader - April 26th, 2017 [April 26th, 2017]
- Meet Dr Amitabh Mehrotra, who defeated cerebral palsy to start a school for children with disabilities in Lucknow - YourStory.com - April 26th, 2017 [April 26th, 2017]
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- Patrick Barden set to complete London marathon with cerebral palsy - Metro - April 27th, 2017 [April 27th, 2017]
- Cerebral Palsy sufferer, Patrick Barden, from Shorne, completes London Marathon - Kent Online - April 30th, 2017 [April 30th, 2017]