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Southwold boy with muscular dystrophy is first to be helped by new nurse service

Posted: Published on May 3rd, 2014

Alexis, with parents Katrina and Adrian, and sister Eva. Staff reporter Friday, May 2, 2014 9:08 AM A boy from Southwold will be one of the first to be helped by a new nurse funded by an authors charity. To send a link to this page to a friend, you must be logged in. Five-year-old Alexis Ruthven was six months old when he was diagnosed with Duchenne muscular dystrophy, a condition that causes muscle weakness. About one in 3,500 boys have the condition, and it rarely affects girls. Alexis, his parents Adrian and Katrina, and his two sisters Eva, two, and Beatrice, one, used to travel down to Great Ormond Hospital in London for an annual health review. Mr Ruthven said: Wed have to leave early and come back late. It would be a whole day and wed sometimes stay down there. It was such an upheaval at the best of times. Read the original: Southwold boy with muscular dystrophy is first to be helped by new nurse service … Continue reading

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Iowa Bill Would Allow Form Of Marijuana For Epilepsy Treatment – Video

Posted: Published on May 3rd, 2014

Iowa Bill Would Allow Form Of Marijuana For Epilepsy Treatment Iowa lawmakers on Thursday approved a bill that would legalize possession of a liquid, non-intoxicating form of marijuana as a treatment for severe epilepsy,... By: WochitGeneralNews … Continue reading

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Marijuana-based treatment for epilepsy closer to being legal in Missouri

Posted: Published on May 3rd, 2014

Posted on: 10:20 pm, May 1, 2014, by Rebecca Roberts, updated on: 04:14am, May 2, 2014 For State Senator Eric Schmitt (R-Glendale), who has a son with severe epilepsy, the day this bill is signed into law cant come soon enough. Schmitt, along with his wife and three children, spent Thursday in Jefferson City, speaking before a senate committee on what this new epilepsy treatment would mean for them. Schmitt explains, Stephens been through a lot. Obviously its affected his development, hes non-verbal, but I was proud, and I know Jaime was right there with me, to be a voice for Stephen and kids like Stephen, and to see that this can actually happen in our state. Nine year-old Stephen Schmitt had his first seizure at 11 months. Now, he suffers from 5 to 12 seizures per day. His mother, Jaime Schmitt, says, Usually it just starts with him staring, and we go over and make sure its not going to get worse. If it gets to 15 minutes or so, then we call 911. Stephens father adds, All we can really do is love him, and do the best we can. Weve tried all the meds and they just … Continue reading

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FDA Issues Complete Response Letter for PLUMIAZ, Investigational Medicine for Epilepsy Cluster Seizures

Posted: Published on May 3rd, 2014

ARDSLEY, N.Y.--(BUSINESS WIRE)--Acorda Therapeutics, Inc. (Nasdaq:ACOR) today announced that the U.S. Food and Drug Administration (FDA) has issued a Complete Response Letter (CRL) for the New Drug Application (NDA) for PLUMIAZTM (diazepam) Nasal Spray for the treatment of people with epilepsy who experience cluster seizures. A CRL is a communication from the FDA that informs a company that their review of the NDA is complete and the application cannot be approved in its present form. The Company is currently developing a response to address the items outlined in the letter. There is an urgent need for new treatments for people with epilepsy who experience cluster seizures. We are committed to the development and commercialization of PLUMIAZ, a potential therapeutic option for these individuals, said Ron Cohen, M.D., Acordas President and CEO. We are evaluating the Complete Response Letter and expect to work closely with the FDA to address the items outlined in the letter and refile the NDA for PLUMIAZ. We expect to provide further detail as our discussions with the FDA progress. Based on the requirements for approval outlined in the letter, the Company does not expect PLUMIAZ to receive FDA approval in 2014. Of the approximately 2.8 million … Continue reading

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FAST is an important tool in stroke awareness

Posted: Published on May 3rd, 2014

Kentucky is part of the nation's "stroke belt," a region of southeastern U.S. states that rank above the national average in occurrence of stroke. In order to improve that statistic, it is vital for all Kentuckians to understand the signs and symptoms of a stroke, and to act quickly when any of those signs are present. FAST is a public awareness educational tool, adopted by the American Heart Association, that reminds people to recognize many early signs of stroke and encourages people to take action fast when the first signs of a stroke occur. FAST stands for: Face drooping, weakness or numbness; Arm weakness or numbness; Speech difficulty or alteration and Time to call 9-1-1. In past years, many patients felt that there was very little that could be done to treat a stroke. Consequently, many patients remained at home before seeking help they waited and watched to see if stroke symptoms would recover. Fortunately, we now have acute stroke treatment that can minimize the damage of a stroke. The key for success is time; in the acute treatment of stroke, minutes matter. For every minute that we shorten the time between the onset of symptoms and the start of … Continue reading

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Montefiore Steps Up Stroke Survival Education

Posted: Published on May 3rd, 2014

Contact Information Available for logged-in reporters only Newswise NEW YORK (May 2, 2014) Every year, almost 800,000 people in the United States experience a stroke, which occurs when blood flow to the brain is interrupted by a blocked or ruptured blood vessel. Stroke causes more serious long-term disability than any other disease, but a greater chance of recovery can occur if signs of a stroke are recognized and victims get to a hospital quickly. This May, during National Stroke Awareness Month, the Stern Stroke Center at Montefiore Medical Center is ramping up education efforts about how immediate recognition and treatment of stroke can minimize associated side effects and even prevent death. When it comes to stroke, every minute counts, said Daniel L. Labovitz, M.D., director, Stern Stroke Center, Montefiore and assistant professor of Neurology, Albert Einstein College of Medicine of Yeshiva University. Ischemic stroke, which represents 85 percent of all stroke cases, occurs when a clot blocks blood supply to part of the brain. If these patients are seen within a three hour window, we can use a clot buster called tPA to restore blood flow and improve chances of good recovery. That is why if you think it might … Continue reading

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A spinal cord injury treatment breakthrough moves legs!

Posted: Published on May 3rd, 2014

Spinal cord injury survivor Dustin Shillcox moves his toes with new SCI treatment. For people with spinal cord injuries, something as small as the wiggle of a toe can seem a miracle. So imagine the excitement when a research project involving the application of electrical stimulation to broken spinal cords unexpectedly enabled a spinal cord injury survivor to voluntarily wiggle his toes. Imagine what this may bode one day for hundreds of people paralyzed in car accidents and other serious traumas who may one day regain movement. Neuroscientist Susan Harkema of the University of Louisville said her research project was meant to learn more about nerve pathways, not to actually make patients move. Over the past five years, her team has applied e-stim to four paralyzed men, and they all development substantial movement, including wiggling their toes, lifting and swinging their legs, moving their ankles and sitting up without support. Two patients can even do sit ups. Take a look at this video from CNN, which shows Dustin Shillcox, a paralyzed man, move his leg with Harkemas treatment: You can read about this groundbreaking study, which is being funded in part by the Christopher and Dana Reeve Foundation in Brain: … Continue reading

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Saskatoon-based researcher sees growth in Parkinsons treatment

Posted: Published on May 3rd, 2014

Watch above: a respected voice on Parkinsons disease says newly diagnosed patients are benefiting from treatment advancements SASKATOON A University of Saskatchewan researcher says that a lot has changed about Parkinsons disease over the decades. In the 1950s and 60s, patients were diagnosed with Parkinsons, they lived less than ten years after their [diagnosis], said Dr. Ali Rajput, whos been studying the disease for over 40 years. People are now living close to a normal life span; maybe a couple years shorter, said Rajput. Parkinsons disease is a degenerative, movement disorder. Rajput said there are five stages to the disease; patients can experience symptoms that range from only affecting one side of the body, to being bedridden or wheelchair bound. The advancements in treatment of Parkinsons are good news for Elaine Gilbert, a newly diagnosed patient who learned the news on April Fools Day. I said youre kidding, youre joking right, its April fools, said Gilbert, a retired elementary school teacher. Elaine joins her husband, Malcolm, who has been battling the disease for around 15 years. Her Parkinsons is in its preliminary stages, which will allow doctors to properly formulate a plan of action. If you treat [Parkinsons] too late, … Continue reading

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Derby Day A Chance To Help The Needy

Posted: Published on May 3rd, 2014

Get Breaking News First Receive News, Politics, and Entertainment Headlines Each Morning. By MEREDITH SOMERS The Washington Times CROWNSVILLE, Md. (AP) Katie Parrys muscles were so weakened from cerebral palsy that when she rode her first horse at age 4, all she could do was lie down on its back. Nearly 20 years later on a recent spring day, Parry, 23, and her mother, Debbie, made their way from the stables at Maryland Therapeutic Riding. Parrys key chain jangled as her mechanized wheelchair bounced along the dirt road. For most of her life, Parry has been riding horses with the therapeutic center. Her mother said riding helped her relax so much that she would fall asleep during rides. The lessons also helped Parry build strength and increase her muscle tone to the point where she can sit up in the saddle on her own. Shes progressed, Debbie Parry said. Shes got core strength now. Parrys story is just one of the many triumphs of the riding center in Crownsville. On Saturday, the farm is opening its pastures to guests for its fifth annual Derby Day, one of the few times the center asks for help. We have seen riders say … Continue reading

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Paris girl made honorary firefighter

Posted: Published on May 3rd, 2014

PARIS, TX -- A young Paris girl born with a debilitating condition is overcoming her fears, thanks to the help of some new friends. 11-year old Kimberly Crawford is no ordinary kid, she's a firefighter. Kimberly has cerebral palsy, a movement disorder that confines her to a wheelchair. She's always been a little scared by loud noises, so when she heard a siren recently her mom explained it was a fire truck, rushing to help people. Kimberly asked her mom if she could see one and the next day her mom called the station, asking if they could make a quick visit. "I was really expecting really about a five minute show around, just to kind of familiarize her with what the fire department did," said Kimberly's mom Elena Crawford. "We came in and they just really gave her the red carpet treatment." These firefighters helped Kimberly face her fear. "From that moment on she has not been afraid," said Crawford. Kimberly made her second visit to station one Thursday, this time she even got to sit in the driver's seat. She also proved she's even got what it takes to fight a fire. "Her riding in the truck, wanting … Continue reading

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